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High Sed Rate? Changing Symptoms?
7 Replies
Jangel - January 9

Hi folks~
I am new to this site, but not to FM. I was diagnosed several years ago by a nasty Rheumatologist (who I will never go to again.) I am under the care of my primary doc, but she is limited in knowledge. My pain is primarily in the neck, shoulders, and upper back and is constant , as well as many of the other "fun" symptoms of FM: frequent headaches/migraines, unrefreshed sleep and some insomnia, anxiety, bruxism, fatigue, weight gain and more)

My question is does anyone have a high sed rate? Mine is 47 and I wonder if it is related to FM

My other question is do you have symptoms that change, perhaps due to increased stress? My mom died this summer and my husband recently injured his back, not to mention a very stressful job. Over the past few weeks, I've had chest pain, a weird upper-mid back pain/burning, some jaw pain, increased acid reflux, indigestion and major anxiety over all of it.

When this first happened, I went to the ER cause I thought I was having a heart attack. All test clear, though I am getting a stress test on Monday to be sure. Can these things all be because of fibro?

It seems that I do okay during a stressful period, but weeks or months later my body falls apart.

I would love to hear anyone else's experience with these symptoms. It would be reassuring.
Thanks so much.
Jane

 

JoniB - January 9

Hello Jane. I have all of the symptoms that you described. My rheumy told me I had a high sed rate, but I don't know the number. Also low on vitamin D so I take 1,000 I.U. per day. I understand what you are saying about the pain and other symptoms! It sounds like me. The pain can be so bad in one area of the body, then switch to another area the next day. A stressful period can & will bring on a fibro flare. I moved in Oct and was sick with it most of Nov., couldn't hold my head up, felt like bad migraine in the neck. I have the bruxism, jaw & body pain daily. I went to the ER 10 yrs ago & the Dr. told me I had a panic attack. It is tough living with the fibromyalgia. I had to quit work 3 yrs ago due to it. I'm on a lot of medication to help with the various symptoms of fibro. You need to know your limits and what works to help you. There is a white search box on the upper left side of this page. You can type in TMJ, chest pain or whatever subject you want more information on. It brings you back to this website. I'm sorry for the loss of your mother. Is there any way your stress can be less at work (light duty, fewer hours, etc.?) Is there another Rheumatologist you can go to? I pray for more awareness and advancement in medical technology to treat or cure this condition! I hope that the New Year gets better for you.

 

shellthom - January 31

Jane,
Your symptoms are my symptoms. I have also tested positive for high ANA levels (Anti-nuclear Antibodies), as well as other autoimmune markers in my blood work. I get severe neck pain and headaches regularly. Stress is a MAJOR, MAJOR influencer in the severity of pain with fibro, so it is no wonder you're having all of the issues you listed with all that you have going on in your life. In my personal opinion, your symptoms are fibro-related. I was put on Cymbalta last year during a stressful, period, and it helped me a lot for a while. It is a neuropathic pain reliever as well as an antidepressant. As with most medicines that work for fibro patients, it eventually stopped working for pain after about 9 months or so. I am now using Lyrica, but I have yet to experience any positive effects. Anyway, I am rambling. I just wanted to reassure you that your symptoms are not abnormal for fibro (at least for me). The chest pain is also normal - I also have that - it has something to do with the muscles which support the lungs (I just read some research in a fibro journal - possibly from the Fibromyalgia Association). I have thought I had lung or heart problems for years, with all tests proving the contrary.

 

niccin - January 31

I JANGEL

WELL I WAS DIAGNOSED WITH FM IN 1999 AFTER YEARS AND YESR OF THINKING I WAS GOING CRAZY, ANYWAY YES YES ITS ALL SYMPTOMS AND YES I DO NOT HANDLE STRESS AND UPSET VERY WELL AND YES MY SYMPTOMS CAN GET WORSE AFTER TRAUMA UPSET OR STREES ANYTHINK FROM A DAY TO A FEW WEEKS OR EVEN MONTHS LATER. I HATE FM

 

niccin - January 31

I HATE FM, I THINK EVERY SYMPTOM AND EVRY BIT OF EVERY THINK IS FM IN FACT I AM SICK OF GOING TO MY GP AS I KNOW WHAT HE IS GOING TO SAY ( IT FM) I WAS DIAGNOSED IN 99 AFTER YEARS OF FEELING LIKE A HYPO AND FEELING I WAS GOING CRAZY, ANYWAY YES FM SYPTOMS ARE CRAZY AND YEH MY SYPTOMS CAN GET WORSE AFTER STRESS TRAUMA OR UPSET, FM SUCKS! BUT I WOULD LIKE TO KNOW FROM ALL READERS DOES ANYONE EVER HAVE A GOOD DAY AS I NEVER EVER I AM SICK OF THIS!

 

cwatson - February 2

My sed. rate was 49. I am going to have it retested next week to see if it came down. The rest of my blood work has come back normal. I do have ulcerative col. so that might be why mine is high-although I have a very mild case of uc.

 

SAHMof2 - February 4

Gosh you sound So much like me. I had a High SED rate too. Can't remember just how high though. it's been awhile. My Reumo Dr had me get a bone scan and she Dxd me with Costo Chrondritis. I mainly hurt in my back, shoulders, neck, chest arms, collar bones. I could go on. I take 1200 IU of Vit D a day too. Oh and I have anxiety also. don't know if that goes With the CC or the FM but it's there.

 

pebble87 - May 22

on the off chance that is thread is read by any of the original posters/commenters..I just went through a really similar situation! began two weeks ago with much more depleted energy levels than normal. yesterday 5/21 had sudden chest pain and heart rate shot up and and was very near fainting. went to ER and cardiac workup was totally normal (good thing, i mean I'm 24!) but there were 2 minutes (why the doctor at the urgent care sent me straight toER) where my oxygen levels dropped. they gave me somethings to ease the pains and slow the heart rate, and was discharged with a shrug. blood tests came back from the urgent care when I got home and my sed rates were elevated, neutrophil and leukocytes were off, protein a little elevated, slightly anemic..and I keep getting what I'm going to call phantom UTIs. No positive urine tests, but all the symptoms. it just doesn't make sense! and my vitamin D levels are also low, like many of you. I have some kind of malabsorption that they couldn't figure out in multiple colonoscopies and tests, so I have trouble keeping the vit D levels up. but I eat a rather "pure" diet, basically fruit, vegetable, and nut based. can rule out celiac disease as the cause since I gave up gluten. I was sensitive to gluten though, so's my mom..we both have the gene but not the disease, but are sensitive. My sister has celiac really strongly.

 

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