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Hi I have just been DXed and male
2 Replies
ItsmeWayne - December 21

I have most likely had this quite some time. I am diabetic also and on an insulin pump. Finally a rheumatologist diagnosed me after traveling all over the USA trying to find out what was wrong with me. It was tuff finding a doctor to diagnose anything, especially fibromyalgia in a man.
Now that this has been accomplished, I don't know where to start or how to make myself feel better.
So, I am here asking you for your help! I belong to a diabetes support board and learned more from the members there, than from any doctors, nurses or any other proffesional medical types.
Your help will be appreciated!
Itsme Wayne


Fantod - December 21

Hello and welcome to the group.

If you need to find a fibro-friendly rheumotologist in your area, go to the National Fibromyalgia Association website for a referral.
A rheumotologist is the primary doctor that manages fibromyalgia (FMS). You might also want to consider a pain specialist as a secondary to the rheumy. I have both and they coordinate with each other on my care.

That being said, FMS is tricky to manage. There are still a lot of doctors and rheumys that think that FMS is a figment of our collective imaginations. FMS is recognized by the Center for Disease Control. Take some time to throughly read all of the information contained on the lefthand side of this page. Only 20% of men get FMS so you are in a very select group. You will have to be your own best advocate for FMS so it pays to be educated. Knowledge is power.

Only certain classes of medication work with FMS and they must be prescribed. Generally anti-depressants in low doses are used to treat FMS.
Cymbalta is a popular choice and works on the depression that can accompany FMS as well as chronic pain. Lyrica is a relatively new drug on the market. It is not an antidepressant but it seems to work well for some people. The biggest complaint seems to be weight gain.

Most people with FMS also have a great deal of trouble with sleep disruption. This is a particularly important issue as improper rest leads to more muscular pain. Amitriptyline is generally used for this issue.

It is going to take time and a lot of tinkering to get your medication for FMS perfected. Even under the best of circumstances, most of us still have some level of discomfort. We also have "flares" which are preciptated by weather changes, stress, or too much activity. You will have to learn to adjust your expectations, change the way you do things and learn to say "no." Some people will think that you are being selfish. It is simply a matter of self preservation.

Take some time to read through the posts by other members on this site. There is a lot of good information there too.

If you have specific questions, we will all try to help. Take care and keep in touch.


ItsmeWayne - December 22

Thank you Fantod, I certainly know this is not going to be an easy voyage. I had tried for years to get a diagnosis and only now have it.
I am seeing a pain specialist on 12/23/08. It is quite fae from where I live, but my rheumatologist recomended this one, because they have good experience with fibromyalgia.
I will indeed read all I can now and check posts here!
Thank you for the welcome,
Itsme Wayne



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