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Help with pain
2 Replies
charity+5 - November 24

I am newly diagnosed with Fibro, but have been suffering for about a year and half. I am on nortriptyline, lots of ibuprofen, zanaflex and narco. The problem is I have been on Narco for 8-9yrs for prev. injury and my dr refuses to try another medication. What kind of dr should I be looking for? PLEASE HELP
I think alot of docs don't believe it is real, I have been told frequently that it is all in my head. I want to scream out, YES, I AM DEPRESSED, BUT ONLY B/C YOU PEOPLE DON'T HEAR WHAT I AM SAYING! THIS DISEASE HAS TAKEN CONTROL OF MY LIFE. YEAH DOC, YOU TRY BEING IN PAIN AND CONFUSED AND ALL THE OTHER SHIT THAT COMES WITH IT FOR ALMOST 2YRS AND SEE IF YOU AREN'T DEPRESSED!

 

Stacey373 - November 24

Hi Charity+5 - The doctor you should be seeing is a Rheumatologist. And try to find one who actually specializes in Fibromyalgia.

I understand what you're going through. I've been taking Norco for several years now and I'm pretty sure they just aren't working anymore. I really don't want anything stronger...but I also don't want to go through my meds too fast or be in all this pain.

You really shouldn't be taking all that Ibuprofen. OTC meds don't work for fibro pain and you are just going to destroy your stomach. But I understand if you don't have any other option. It's just something to keep in mind...

I've probably told the doctors a hundred times....I'm not depressed and in pain, I'm in pain and that's making me depressed! Hopefully you will be able to find a new doctor that will be able to help you and listen to you.

I know how hard it is to deal with this illness. Hang in there...Take Care, Stacey :o)

 

Fantod - November 24

Hello charity+5 and welcome to the board! This is the most comphrensive site on the Internet for information about Fibromyalgia (FMS). There is a lot of good information in the blue boxes on the lefthand side of this page. And, we have a good group of people available to offer support, suggestions or just listen when you need to rant.

You need to find a rheumotologist and/or a pain specialist that has an interest in Fibromyalgia. You can call your local hospital and ask for the physician referral service. They should be able to match you with a rheumy who treats FMS. Or, you can go to the National Fibromyalgia Association website and see a list of fibro-friendly doctors in your area.

Fibromyalgia (FMS) is a disorder of the central nervous system. It is correctly referred to as a syndrome. The mechanism that causes it is not understood. There is no cure but it can be managed with certain classes of prescribed medication. OTC remedies like Tylenol do not work for the type of pain associated with FMS. Fibromyalgia is recognised by the National Arthitis Foundation, The Centers for Disease Control and the World Health Organization. It is confirmed as a real illness and is not figment of our collective imaginations.

One of the reasons that you are in so much pain is that you are not getting restorative, deep sleep. FMS interrupts the deep sleep cycle with short bursts of high intensity brain activity. Your muscles require deep sleep in order to repair themselves from the days activities. No deep sleep means higher levels of pain. Treating the sleep issues associated with FMS is a crucial part of treatment. You should be on a sleep aid like Amitriptyline.

There are now three prescribed medications used to treat FMS. You have probably seen the ads on TV for Lyrica. The most common complaint associated with this medication is rapid weight gain. It may not happen to everyone but when it does most rheumotologists are not proactive about changing medications. The second choice is Cymbalta which addresses both the pain and depression associated with FMS. I use Cymbalta myself and have had pretty good results. The third and newest choice is Savella. It has been used in Europe for decades and was approved for use in the USA last year. It is going to take time and a lot of tinkering to find the right combination of medication and doseage to make you more comfortable. At a bare minimum, it will take two weeks or longer once you start on something to notice any difference.

With regards to to diet, if you use an artifical sweetner (including Splenda) get rid of it. If you need a sweetner, use something made with the nontoxic Stevia plant like Sun Crystals or Truvia. You can find the latter in the grocery store alongside the other sweetners. Try to avoid eating deep fried food, lunchmeat or red wine (nitrates) as these items will also ratchet up your pain level.

You could purchase "Fibromyalgia for Dummies" through Amazon. Like the rest of the dummies series, it contains good basic information. Read yourself and pass it around among family and friends. I'd also like to gently suggest that you consider finding a therapist who deals with chronic illness. Many of us see someone and find the extra support very helpful. You can call your local hospital and ask for the physician referral service. They should be able to recommend someone. The other option is to use Google and see who pops up in your metro area.

The key to living with FMS is learning to be grateful for what you can accomplish rather than what you are no longer able to manage. You must learn to pace yourself and respect what your body is telling you. Learn to say "no" and not feel guilty about it. Break tasks down into more managable increments and/or not be too proud to ask for help. As you have already discovered, FMS is variable on a daily basis. This makes it very difficult to plan. You will have good days but you will also have bad days. Knowledge is power. Read through the blue boxes on the lefthand side of this page and look at some of the old posts to see how people manage this syndrome. You are not alone. I hope that my comments are helpful to you. Take care and God Bless.

 

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