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hellok - February 6

Hello everyone, this is my first time on any site. I was diagnosed in April 2010 with Fibro. Prior to that I have had Chiari Malformation
surgery & Cervical fusion. I'e been to Mayo clinic this past Sept
2010. My symptoms continue to change & get worse. I have painful biceps,forearms,wrists and hands & fingers that go numb.
The list of symptoms is endless. It seems I get a little better for a little while, then I'm down again. I have alll I can do to make it through the work week. I am 45 YO female. Migraines since age 19
I take 60mg Cymbalta, 300mg BupropionXL, Vitamins & alprazolam
2mg before bed time. My biggest concern is that my symptoms
with my arms are getting worse-its hard to write and I drop a lot of things. When I drive I alot of time don't use my right hand.
It feels like I get "Charlie Horses" or knots in my forearms. My strength is poor. Last Jan 2010 I had a spinal tap done, there was 4 bands found in the CSF and none in the blood. No one caught it. The MD that sent me for the tap told me "all of my symptoms were in my head." This week I returned yet to another
Neurologist and he wants me to have a spinal MRI to rule out
MS or a spinal disorder. Anything anyone can add to this scenario?? Oh and yes I have FIBRO FOG big time. Thanks for
taking the time to read--sorry it is so long. I'm pretty nervous.
sincerely, hellok


Fantod - February 6

hellok - Welcome to the board. I am very sorry to read about your situation. Your experience with doctors and a syndrome like Fibromyalgia (FMS) is not uncommon. Just about everyone on this board can relate to the scenario that you have described. It seems to be particularly true for women who seem to be dismissed as neurotic hysterics.

I think that the numbness in your arms may be due to the Chiari Malformation. It is one of the side effects of that particular disorder.
However, have you been seen by an orthopedic hand specialist to make sure that it is not carpal tunnel? Tendonitis, bursitis and carpal tunnel are also common among people with FMS.

The knotted muscles in your forearms are called "trigger points." They are very common among people who have Fibromyalgia (FMS). Trigger points are muscles that have contracted and will not release on their own. They can appear just about anywhere. You could try taking Malic Acid to see if that helps. It comes in capsules and is available at any decent health food store. The other option is to have them injected to break the cycle. You can read more about them and other "perks" associated with FMS under "Associated Conditions" in the blue boxes on the lefthand side of this page.

For fibro-fog, I'd recommend a supplement called "phosphatidylserine." It was recommended to me by my nutritionist for memory issues. The best deal that I have found on it is through a company called Puritan's Pride online. They call it "Neuro-PS." They have very good sales. I've used the 300 mg version for quite a while. I think that it helps.

If you decide to try Malic Acid and/or Neuro-PS, make sure that you understand how to use these supplements and any risks associated with using them.

That being said, sometimes nothing is going to help your memory when your pain levels are high and you have not been able to get enough restorative sleep. Stress will obliterate anyone's memory no matter how acute it may be.

Have you spoken to your employers about your health issues? Have you considered Social Security Disability as an option? For the latter, go online and find a company called Allsup. I am completely disabled due to FMS and underlying conditions. Like most of us, you are between a rock and a hard place. Your health has to come first.

And finally, I'd like to recommend that you consider finding a pain managment specialist to evaluate your situation which is very complex. You can call your local hospital physician referral service. Ask them to match you up with someone who has an interest in FMS.

Good luck to you. You are not alone. Take care and God Bless.


hellok - February 6

Fantod, thank you for responding so quickly with answers. I do have severe carpel tunnel both hands & O.A. in both hands. I have had multiple testings for both, I was to have the carpal tunnel
surgery but am reluctant. I have used braces and splints to no avail
this is where I still am. For about 5 months everything seemed fine
after the Chiari surg. Although a partial was done, the herniation was small but enough for surgery; in my case the blood vessels were too near the site therefore making me too much of a bleed
risk. The O-bands still frighten me. Things seem good for a while then BAM I'm down with other issues - its a horrible cycle.
I just pray that I don't have M.S. instead of Fibro. Now I am very anxious for the spine MRI. One thingI do know for sure is that people with Fibro have to have an incredible amount of patience!!
Thank you for making me feel welcome. Good night and God Bless you too. hellok


Fantod - February 7

hellok - The procedure for carpal tunnel surgery has changed alot. Now it is usually done via a key hole (a small incision) versus opening up the whole palm of your hand. The recovery time is much, much better and easier. I know several people who have had it done and really just sailed through the whole thing. And, the problems with their hands and arms improved altogether or significantly. I hope that once the spinal MRI is over and done with that you will reconsider. I realize that it is surgery but if it will improve your quality of life that's a bonus as far as I am concerned.

I wanted to ask if you have ever been checked for a Vitamin D deficiency? This is a very common problem among people with FMS. It is a simple blood test. And, if you had it checked a while ago, have it checked again. Mine fluctuates wildly. A deficiency will add to your pain issues and also heighten your fatigue levels.

Keep in touch and let us know how your test comes out. Hang in there - we're rooting for you.



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