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manju1968 - August 23

Hello, my wife have this it seems. i need help finding out what needs to be done to make her feel better. i am desprate for help. here are some issues and questions.
1.hand and food feels burning, lots of pain all over body including back neck, hips bones, back legs. some time swelling hands and feets.
2.can not sleep at afternoon at all. feels bad after that.
3.went to doctors many of them savella drug and it will help some time.
5.she has lot of pain all over the body but almost 2 years now no help.
6. had some issue with vitamin D and taking suppliment
7.did blood tests no clues...

any help is appriciated...


Stacey373 - August 23

Hi Manju1968 - This was a good place for you to come to get help and information. I'm not as knowledgeable as some people on here, but I can start you out with the basic information you need.

The doctor your wife needs to see is a Rheumatologist who specializes in fibromyalgia. Maybe try looking for one on the internet yellow pages in your area. Not many doctors understand or even believe that this illness is real, so you need to make sure you find one that specializes in this illness.

The main symptoms of fibro are these - chronic pain for at least 3 months (most of us have had it for years), Pain in all 4 quadrants of the body (upper, lower, left, & right), extreme fatigue, severe headaches, and I can't think of any more right now...Sorry I didn't sleep good last night and now I'm a little brain dead! LOL This website has a lot of good information so you need to read the blue boxes on the left side of this page. Also read the "Associated Conditions", alot of Fibro sufferers deal with many other problems that go along with the fibro stuff.

There are no actual tests that can be done to prove she has fibro. It's usually diagnosed because of the symptoms and also when every other disease has been ruled out. There are MANY illnesses that mimic Fibro, Lupus is one of she needs to be tested for everything to be sure it's not something else.

One of the tests a doctor can do is called the "Tender Point" test. If your wife has pain in most of the 18 tender points when a doctor applies slight pressure, then that's usually a sure sign that she has fibro. The doctor can also test her to see if she has a Vitamin D deficiency...most fibro sufferers have this deficiency.

If you read on the other post just below yours that is also titled "help"...there is a post on there that is a "crash course" in Fibromyalgia and explains exactly what your wife is dealing with. The lady who wrote the "crash course" post is VERY knowledgeable and hopefully she will reply to your post soon, but in the mean time, read what she wrote on the other one.

Fibromyalgia is not curable. The only thing we can do is treat the symptoms. It's very important for your wife to find the right combination of medications ASAP so she will start feeling a little better. The longer you let a "flare up" go, the harder it is to treat it. The medications she needs are - an anti-depressant (cymbalta is a good anti-depressant which also helps with the pain caused by fibro), sleeping meds, pain meds, a muscle relaxer (can help the headaches and the neck problems), and vitamins. Over the counter medications do NOT work for fibro patients, she NEEDS a doctor to prescribe all these meds to her.

If she has a Vitamin D deficiency, the doctor should prescribe her a strong Vitamin D. I take 50,000 IU once a week. But she can buy Vitamin B complex and magnesium at any pharmacy and they are supposed to help too.

and most of all, she needs her family and friends to understand and support her. She's dealing with physical and emotional problems, as well. It gets to be extremely frustrating when everyone, including doctors, don't believe that what you are telling them is true. People usually have a hard time understanding how much pain we are in because we don't "look" like we are "sick". Thankfully she has a very supportive and understanding husband like you...I appreciate you getting on here and looking for ways to help your wife. Not many people have that type of support and your wife is lucky to have you.

She needs to learn how to "pace herself". Doing too much and "pushing" your self will only cause more damage to her body and cause more pain. It's mostly a "trial and error" thing...figuring out what is "too much" and taking lots of breaks throughout the day.

That's all I can think of right now...I hope this information helps you. you should encourage her to get on this forum and talk to other people who are dealing with the same problems as her. This forum will help her better understand what she's going through and she won't feel quite so "alone". This illness makes you feel very alone and like no one understands you and this forum has helped so many of us to deal with fibro a little better.

Take care and I hope she gets the help she needs. Let us know how she is doing, Stacey :o)


axxie - August 25

Welcome Manju1968, I applaude you for helping your wife and having the patience to do research. Your wife is very lucky to have you. I hope a little research will help you with a diagnostic.
Had she had many tests done, such as lupus, ms, and other disease that can mimic fibro. If not then please have a talk with her physician and get them to follow through with many tests. As tests result come back with nothing wrong, the more you narrow your tests result to fibro.

Deffinately see a Rheumatologist, some specializes in fibro, but not all, so it's best if you get one that does.

Sometimes hospital can lead you to the right specialist, sometimes yellow pages, the internet, a search engine or even talking to your friends or family physician can help.

As for fibromyalgia, it's difficult to manage at first but with time and medication, things start to look up.

What is Fibromyalgia?
Pain, Fatigue, Fibro Fog & More - All Part of Fibromyalgia Syndrome

Fibromyalgia syndrome is a chronic condition that causes intense pain in various places around the body, including muscles, connective tissues and joints, as well as a host of other symptoms. It affects more than 6 million people in the United States.

Doctors classify fibromyalgia as a syndrome, which means it has a group of signs, symptoms and characteristics that occur together.

To make a diagnosis, doctors usually rely on signs and symptoms alone. Complicating the matter, symptoms vary widely from person to person and often, as do their intensity.

Symptoms of Fibromyalgia
People with fibromyalgia frequently hurt all over and feel exhausted all the time. Those symptoms often force you to seriously limit your physical activity. It's also common to have problems concentrating and remembering things. A lot of people with fibromyalgia have symptoms so severe that they have to quit or modify their jobs.

Because fibromyalgia is frequently misunderstood, family, friends, co-workers and even medical providers may not believe the person is actually sick. A proper diagnosis often takes months at the very least, I found people on this board had it for years before they where diagnosed.

Keep in mind that the signs and symptoms vary widely from one person to another. Some people have only a few, while others have many. The intensity of symptoms is different in everyone as well, ranging from mildly annoying to highly debilitating.

Common symptoms of fibromyalgia:
Widespread pain
Chest pain
Morning stiffness
Sleep disorders
Cognitive or memory impairment (“fibro fog”)
Abdominal complaints
Frequently, people with undiagnosed fibromyalgia don't realize that a host of secondary symptoms are related to the pain, fatigue and other primary symptoms. Keeping a detailed list of symptoms can help your doctor make a diagnosis.

Additional fibromyalgia symptoms include:
Painful menstrual cramps
Vision problems
Nausea and dizziness
Weight gain
Chronic headaches
Skin problems
Muscle twitches and weakness

These lists include the most common symptoms. For a complete symptoms list, see the Monster List of Fibromyalgia Symptoms.

Fibromyalgia Treatments
While a lot of fibromyalgia treatments are available, you'll likely need to experiment with different options before you find what works best for you.

Fibromyalgia treatments include:
Prescription drugs
Complementary/alternative treatments, including massage and physical therapy, chiropractic, and acupuncture
Vitamins and supplements
Moderate exercise, but only if done correctly

Lifestyle changes, including diet, stress management, and pacing
Every case of fibromyalgia is different, and no treatment works for everyone. You'll probably need to work closely with your doctor to custom tailor a treatment regimen that helps you become more functional. Many people benefit from a multidisciplinary approach, which involves several healthcare providers.

Prognosis for People With Fibromyalgia
Fibromyalgia is a chronic condition. While some people do experience long remissions, no one who's had fibromyalgia can truly say they don't have it any more.

As for the progression of the illness, it's hard to say whether your symptoms will get better or worse with time. Because fibromyalgia isn't degenerative, its course isn't clearly established like it is for many diseases.

Some experts say about a third of us will get worse, a third will improve significantly, and the remaining third will stay about the same. Some studies have linked early diagnosis and treatment to better long-term outcomes, but other than this it's unclear what role treatment plays in the progression, or lack thereof, of fibromyalgia.

Fibromyalgia & Overlapping Conditions
As if all this weren't enough, several other conditions frequently go along with fibromyalgia. Researchers aren't sure whether one condition leads to another or whether they have related underlying causes. Becoming familiar with the symptoms of these disorders can help you determine whether you have more than one.

Overlapping conditions include:
Chronic fatigue syndrome
Irritable bowel syndrome
Temporomandibular joint syndrome (TMJ)
Multiple chemical sensitivity
Myofascial pain syndrome
Restless leg syndrome
Costochondritis (chest pain)

History of Fibromyalgia
Doctors coined the term fibromyalgia (fibro –- meaning fibrous tissue, my -– meaning muscle, and algia -– meaning pain) in 1976, but it wasn’t until 1990 that the American College of Rheumatology developed diagnostic criteria. While muscle pain is the primary symptom, research found that nothing is wrong with the muscles themselves. For a time, researchers thought it could be an autoimmune disease, such as lupus or rheumatoid arthritis. Now it’s widely believed in the medical community that a malfunction of the central nervous system (called central sensitization) causes fibromyalgia, leading to new research into treatments and new hope that fibromyalgia will be not only more treatable, but perhaps even curable.

To date, three drugs -- Lyrica (pregabalin), Cymbalta (duloxetine), and Savella (milnacipran) are FDA approved for treating fibromyalgia, but other drug trials are in the works.



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