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Hello New to this and FMS
1 Replies
cpgoofy16 - May 17

Hello I am new to this forum and I was just diagnosed with Fibromyalgia.
I have lots of questions but I will read the posts first before I ask some of them.
Two I have straight off are:
Has anyone experienced pain in the palm of your left hand that seems to be aggravated by a spot just under your should blade? If I get my husband to push on the spot under my shoulder blade it releives the pain in my hand.
Also my son thinks there is nothing wrong with me and that all I need to do is more exercise. I don't know how to explain it to him. I do tai chi and walk but I still hurt alot and get tired soooo much.
and the medications that they have me on make me really tired all of the time or dizzy.

 

Fantod - May 17

Hello and welcome to the group. There is a lot of good information on this site. Your best defense as someone with Fibromyalgia is to be well educated on the subject.

I am just wondering about the age of your son. I'm sure that you know that his attitude towards your illness is very disrespectful. He may be scared and is this how he is handling it. I am going to try and explain Fibromyalgia (FMS) simply so you can explain it to him. And, I'd like to suggest that you have him look at this website too.

FMS is a disorder of the central nervous system. Your pain receptors get stuck in the "on" position. The mechanism that causes this is not understood. There is no cure but it can be managed to some degree. Everyone has a different array of symptoms varying in severity day to day.
Because of this, it virtually impossible to plan ahead as you may not be able to meet the commitment.

There are quite a few drugs available to manage the symptoms associated with FMS. However, they all have side effects which can be inconvenient, incapacitating and/or downright annoying. A few examples are Amitriptyline which is commonly prescribed for sleep problems. Lyrica which is especially formulated for FMS but usually causes huge weight gain. And Cymbalata which seems to be pretty effective for wide spread pain.

Lack of restorative sleep is a big problem for most people with FMS. If you are unable to get deep sleep, your muscles are unable to repair themselves. This leads to more widespread pain and becomes a vicious circle over time. It is particularly important not to push yourself and rest as much as possible. I speak from experience when I tell you that "paybacks are h*ll from overextending myself.

I'd like to commend you for continuing with your Tai Chi exercise program. Tai Chi is highly recommended for FMS as it addresses both the physical and mental aspects of the disease. FMS can be quite debilitating for some people. Try to keep your exercise program up.

And finally, FMS is recognized by the National Arthitis Foundation and the Center for Disease Control.

I hope my comments are helpful to you in some way. Take care and let us know how you are doing.

 

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