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good days/bad days
4 Replies
tnichel - September 14

Since being diagnosed, this has been a pretty good week for me until today. There's not that much pain but I'm completely drained, woke up tired and can barely keep my eyes open. Oh and i got cranky all of a sudden but was in a good mood at the beginning of the day. Just wondering how many of you (either before or after your diagnosis) would wake up and could tell if it was going to be a good day or bad day? I used to say this before I was diagnosed. I usually get 1 good week out of the month.


Robin1237 - September 19

Ok -- I know now what we have: we have Lyme disease, a bacterial infection, generally gotten from the bite of an infected tick, but can also come from other insects as well as human transmission. Go to and study it. There are lots of people helping each other through this. I got tested at the Igenex lab(, came out positive, went on clindamycin antibiotics 150 mg 4x/day and my fibro symptoms went to zero in one week after having fibro for 25 years . It''s best to find a Lyme-treating doctor. You can also email me at


JJ1 - September 19

What doctor did you go through to get tested for Lyme? I have a friend with a very bad case of Lyme disease who thinks that there are many many people who have it but don't know it and she says I should be tested. I have never brought it up to my doctors. Did your rheumatologist order the test?


Robin1237 - September 20

JJ1 -- It's best to find an LLMD -- Lyme-literate medical doctor. They are trained to recognize Lyme and coinfection symptoms, do the right tests at the best labs, and know treatment protocols. The folks at can help you with that.

Your friend is correct: this is an epidemic, I might say pandemic, as in the whole world is facing these infections now, with no end in sight. That's why we've all got to get educated about what is happening with Lyme and coinfections, the insects that carry them and the human forms of tranmission. Then learn how to protect ourselves and our pets/animals too. Yes, our pets need tick repellant too. I think www.lymenet .org does an excellent educating job. There are now bills in congress asking for 100 million for research, prevention and education.


linda brown - September 29

oh yes, i can tell if it's going to be a good day or bad one. everyone thinks we're just lazy or crazy, but i say they don't get it because they don't have it, good luck hon



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