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Fibroymyalgia/Chronic Fatigue
2 Replies
Joyce - April 1

I have had this condition for the past 20 years. The conditions continues to get worse. I have tried just about everything, doctors, rheumatologists, physicial therapists, medications.

Currently, my doctor has prescribed Darvocet and Ultracet for pain and use a TENS Unit. This does help the pain for short periods. At night, after work, I use moist heat pads and baths. The physical therapist gave me an exericse program with the swiss exercise ball to stretch my muscles. I have seen the physical therapist for the past 5 years. She has more knowledge of the condition than my physician. A good sleep remedy she gave me was one melatonin pill plus 1 bag of Celestial Seasonings Tea "Stress Tamer" decaf at bedtime. This helps with sleep. Recently, I have started having numbness/tingling, along witht the pain, on my left side. The physical therapist said I had bilateral fibromyalgia. My physician then sent me to a neurologist to check for neuropathy, which I didn't have, but he told me to take B-12 for energy. This helps some. My physicial therapist suggests I take disability and leave work or my body will shut down or have a mental shut down. My physician does not acknowledge this. So, I just take a day at a time and use what I have, hoping to learn something new or a doctor to go to that can help. It is hard to explain to anyone, who does not have the condition. If anyone knows of a physician or hospital that treats this condition, please respond.

 

DANIELA - March 31

THERE IS A DOCTOR IN NEW YORK CITY THAT I HAVE BEEN REFERED TO -- HER NAME IS SUSAN LEVINE AND SHE CLAIMS TO SPECIALIZE IN FIBROMYALGIA. I HAVE NOT SEEN HER YET BECAUSE I AM NOT DIAGNOSED OFFICIALLY WITH FMS BUT AM PLANNING TO VISIT HER AFTER THE VISIT TO THE REUMATOLOGIST AND THE NEUROLOGIST.

 

Jean - April 1

I've had this for a while too and have come to the conclusion to handle it through your physicians that understand the condition. A pain management clinic could help but all the pain medication in the world will not take all the pain away. You need to find the right combination of medication, good communication with your doctors and work in life style changes to reduce stress and repetitive motions. No one knows what this is caused by or really how to treat it affectively so it's really up to you to get your life back. It will take time and you need to relieve the pain and you need someone to talk to who understands. Hopfully you won't need to leave work but if you do concentrate on other skills you have that will accommodate life style changes. Hope this helps.:)

 

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