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fibro symptoms getting worse
2 Replies
dkarssen79 - December 21

I have read that fibro is not progressive. I am just curious if any of you have noticed your symptoms getting worse as you get older. Mine definitely have become worse. Not only do I continually get new symptoms but the ones I've had since the beginning have become more severe. At this point I am on short term disability because it has become so severe and I'm only 30 years old. I'm really concerned with what's to come.

 

Fantod - December 21

Fibromyalgia (FMS) is not progressive per se but everyone goes through cycles where it can really become unbearable. I had an episode this Fall which made me think I was going to lose what is left of my marbles once and for all.

Some consideration should be given to triggers such as stress, chemical sensitivies and issues with food.

Have you been tested for a Vitamin D deficiency? It can be done with a simple blood test. People with FMS seem to have problems with Vitamin D shortages which increases pain. Another option is a gluten sensitivity. This will also cause widespread pain. The most accurate test is done using a stool sample. It is entirely possible to be sensitive to gluten but not have full blown Celiac disease.

How is your diet? You should not be using anything containing an artifical sweetner (including Splenda). In addition to making your pain level worse it actually makes you eat more. Deep fried foods and lunchmeat (nitrates) are also problematic. If you need a sweetner use something made with the nontoxic Stevia plant like Truvia or Sun Crystals which can be found in any decent grocery store.

Depression will certainly amplify the pain associated with FMS. Are you seeing someone to talk about the things that may be troubling you? If not, call your local hospital physician referral service and ask them for a counseler with a background in chronic illness/pain. I see someone myself and the extra support has really helped.

If you find that you are just spinning your wheels with your current doctor, get a copies of your records and get a second opinion. Again, using the local hospital physician referral service ask them for a rheumotologist and/or a pain specialist (I have both) with an interest in FMS.

I am on Social Security Disability due to FMS and a host of underlying "perks." I am pretty proactive about managing my health issues but it can be very challenging. I try hard to be grateful for anything that I can do as opposed to dwelling on the things I can no longer manage.

I hope that my comments were helpful to you in some small way. Take care and God Bless.

 

iliveinpain - December 21

I've thought the exact same thing, if this isn't progressive then what's up with me? You're reading my mind, I've been wanting to post this exact question. I've noticed as the years go by I definitely am feeling worse and worse, and it's pretty scary...

 

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