Hi Missi, sorry to hear you are feeling so bad! I imagine pregnancy with twins takes a huge toll on the body, as well as the strain of caring for two babies! But you mention you had glandular fever… do you mean Epstein Barr virus? A lot of us have had that!
Acupuncture can be very helpful. It sounds like you got someone who was not very good. It might be worth another try, but make sure you get a good one. I try to find acupuncturists who are also RNs or MDs - I figure they know anatomy better, and will know exactly where to place the needles. There are many things you do to help yourself feel better, but the first thing is to get a good diagnosis. You could have one problem or several going on. This site has a lot of information about various symptoms and how to treat them.
I would suggest you ask your doctor (or another doctor) about your concerns regarding the epidural. Do you feel that started your pain symptoms? Or others? I'm not sure where you live, but in the US, there was a recent problem with cortisone injections - they were contaminated with fungus. Tens of thousands of people got these injections, and some became seriously ill. I doubt that you were given cortisone - but it's possible you had a bad reaction to the medication you got. So check with a doctor. Another idea is to ask for a copy of your medical records and read through them - sometimes lab results come back positive but you aren't told. Sometimes mistakes are made and you don't know.
While things are fresh in your mind, write down all you can remember about how you felt before the pregnancy, what symptoms cropped up, when, and what preceded them (example is the epidural). It's a good idea to keep this journal going day to day. It will help you and your doctor figure things out. Think about any illnesses you had. Any insect bites? You already have one answer, "glandular fever" which I think is Epstein Barr. Some people believe that can hang around for years - but it can be treated with antiviral medication if that is causing your problems. If you had a tick or insect bite (or a bull's eye rash) get evaluated for Lyme and other tick borne illness.
A lot of doctors don't know much about Lyme disease. It is called the Great Imitator because so many other diseases link with it. I read that a number of neurological diseases - like MS, ALS, Parkinson's, etc. - improve when the patient is treated for Lyme. Most doctors don't think to look for it, but it is spreading rapidly - possibly ticks are being carried on migrating birds and dropping off wherever. Some people think Lyme is the cause of many fibromyalgia cases. Lyme is hard to diagnose. If you have it, you need to treat it sooner not later. The disease occurs throughout the US, Canada and Europe. I'm not sure about other areas. There's a good documentary online called "Under Our Skin." There is also a good book you can google by Dr. Joseph Burrascano. It is full of information and has a few pages of symptoms - you might want to print those out and see if they apply to you. Some of the things you mentioned above were on his list of symptoms. (You will also find negative information about Burrascano online. The govt. took his license away - for his aggressive methods of treating people with chronic Lyme - even though he had a court room full of people who said he had cured them. This is covered in the documentary. So there is a political component to this and a lot Lyme doctors have gone underground. You need to find a Lyme Literate doctor (LLMD) to treat Lyme successfully. There are forums online with helpful people if you feel this disease might apply to you.
But there are many things you need to be evaluated for - the best thing you can do is take a thorough list of your symptoms to a good diagnostic doctor. You may have to try several until you get one who will work with you. There are also some fibromyalgia doctors who have written books or who work online with patients. One doctor, Jacob Teitelbaum, has fibro himself. His book is From Fatigued to Fantastic. Some people like the book Fibromyalgia for Dummies. Some people think fibromyalgia is incurable, and maybe in some cases it is. But I have worked hard, done my research, and tried lots of drugs, supplements, massages, acupuncture, diet changes, etc. and I AM BETTER! So, even though you feel horrible, please don't give up. Try to get as much rest as you can, take your vitamins, eat healthy food and work with a medical person to see if there are some supplements that might help you. You might see if you have developed food allergies also - they can cause some very strange symptoms. You can search for topics by putting any word into the blue search box on the right - conversations will come up. We are all different here, so different things work for different people. You just have to keep plugging to find the right answer for YOU.
I've been on this site a couple years, and have researched a lot of different conditions that lead to a fibromyalgia diagnosis. Fibro is not a specific disease, it's a collection of symptoms called a "syndrome," a dumping ground where they put people with unexplained pain and fatigue. Understand that the fibro label will mean some doctors will assume you are mentally ill. If you have depression, and you might, that can be treated by a decent therapist - the drugs do not solve a thing, and should be reserved for people who are really out of touch with reality. But, if you get the fibro label, doctors will treat you with antidepressant medications or anticonvulsants. Before you take the standard fibro drugs, know that they come with heavy side effects and interactions so research them well. They don't work for everyone - and for some of us, they make us worse. They are highly addictive and hard to quit. There is a doctor who has a lot to say about the SNRI and SSRI drugs and the damage they do. His name is Peter Breggin, MD - and his book "Your Drug May Be Your Problem" was what inspired me to quit taking fibro drugs. Guess what. I got better. But withdrawing from the drugs was a nightmare, and I don't recommend anyone do it without medical supervision. I wish I had never taken them, and will never touch another one. But that was me. There are some people who claim the drugs work for them. I still take some very low dose meds, but they are very old ones, not the newer drugs. So we each have to find what works for our specific problems.
The above is just my opinion, and info I have learned from trying to get myself well. I advise you to find a medical person you like and work closely with that person to tailor a regimen to help you get better. And learn all you can! YOU are the one with the most interest in your case. Doctors are busy and you can't depend on them to know everything about your situation - some are very open to patients who do their own research and bring in printouts. Please come back and let us know how you are doing. I know how awful you must feel right now with your pain and brain fog, but please don't get discouraged because you can get better. Wishing you the best. (Sorry this is so long, I gave you a lot of info. If you don't feel up to it, maybe your husband or a family member can do some online research for you.)