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FIBRO-FATIGUE CENTRES ARE FANTASTIC!
19 Replies
Imelda - February 1

Hi everybody, I just wanted to tell you all that I have started going to the Fibro Fatigue Centres after hearing about them on this site from other members and from the onsite advertisments. I am very grateful for this place because it seems like this is going to really help me. I have only gone in 3 times so far, so I am still learning about everything, but I would be happy to answer any questions anyone may have about this treatment as I go. I know there are other people on this forum posting info about the Fibro Fatigue centres who are much more educated than I am about medically describing everything, but I can answer anything about what the process is like to go through. I really appreciate the posts by other patients getting treatment at Fibro Fatigue, they are a great help. I only have access to a computer at the library or my daughter's house so please be patient if it takes a while to answer back.Take care everyone. Imelda

 

larry - February 1

Congrats lmelda, you are now well on your way to recovery!

 

Imelda - February 1

Thanks Larry. Your posts also helped point me in the right direction. I am optimistic about things which I ahven't been for a very long time. I have seen some of the "junk" posts towards you and others like dream69 and I really want to encourage you guys to keep on posting. You are helping a lot of people, many of them don't write very much like myself, but we are here. God bless you.

 

Lyle Anderson - February 1

Imelda, I have about $3000 set aside for the centers. Would that be enough to get me started?

 

dream69 - February 1

Larry and Imelda: which centers do you attend? The nearest one for me is 100miles away in Dallas.

 

larry - February 1

My twin sister goes to the one in Dallas. I go to the one in Norwalk. My sister's doctor is Dr. Spurlock and he is absolutely amazing with his knowledge of this desease.

 

JJ1 - February 1

The closest to me is an 8-hour drive away so even if it was something I was interested in (I am still behind conventional doctors), it would be out of the question anyway.

 

dream69 - February 1

The fibro fatigue doctors are MDs and DOs. They all went to conventional medical schools.

 

JJ1 - February 1

Larry's comments are that you can't trust or believe "conventional" doctors while touting those at the Fibro and Fatigue centers, so it led me to believe that they are unconventional. Maybe that they don't follow conventional practices would be more appropriate?

 

dream69 - February 1

The difference is they specialize in fibromyaliga and they are well informed on the latest research. I am judging them based on what is on the website. http://www.fibroandfatigue.com/center_dallas.php

 

dream69 - February 1

JJ1 have you had your cortisol checked? Your central obesity may be more related to high corisol levels than to being hypothyroid.

 

JJ1 - February 1

No I have not had my cortisol checked. I am not really obese, just bloated in the belly and since the rest of me is thin, I can hide it easily with clothes. It is not something that a doctor would necessarily notice. Probably worth looking into, but I looked up other symptoms (Cushings disease) and I don't really have the other signs. Would an endocrinologist test for this? I will probably go see one after a break from all my gastrointestinal tests and figuring out my anemia problem.

 

Iori - February 1

JJ1 you seem to be on a constant search to find a disease for yourself. you have mentioned Celiac disease, Cancer, thyroid issues, MS, ALS, Cushings, etc... to name a few. youve said several times that you have felt like a hypochondriac. my sister has really bad health anxiety so I speak from experience. you post here almost all day, everyday about what diseases you have googled and researched. I know that for my sister the first thing they told her to do was to stop googling diseases completely. its even got a name -cyberchondria- if this applies I hope it helps. good luck.

 

Iori - February 1

Larry & dream69: do they have any fibro centres in canada.

 

larry - February 1

I don't see any listings for Canada on their site. They do have an "out of town" package that they can help you with but you will need to make the initial visit. They can give you prescriptions for bloodwork and meds that you can fill locally. They also are all about the person getting better and will work with your doctors as well. Here is something from their site.....Are you a Physician with questions about Fibromyalgia or Chronic Fatigue?........
If you answer “yes” to this question, you may have a patient that is suffering from the debilitating conditions known as Fibromyalgia (FM), Chronic Fatigue and Immune Dysfunction Syndrome (CFIDS) or Unrelenting Fatigue (UF). At Fibromyalgia & Fatigue Centers, Inc. (FFC), we provide the answers you may be searching for to help your patients, but more importantly, working closely with you, together we can provide the path to your patients’ overall recovery.

We offer help through a successfully proven treatment protocol and have treated over 4,000 patients nationwide. It is through a holistic, integrated and comprehensive approach to the treatment of underlying physiological factors that differentiates our approach and ultimate patient success.

Here you will find information to better serve your patients such as FFC’s general overview; answers to questions you may have on how we work with you; our proven treatment approach to better educate your patients; information on what patients can expect at their 1st appointment; FFC network of physicians and background information; clinical and educational materials and published articles; patient testimonials; Center information; as well as information on our free patient educational seminars.

We know your patient is important to you and that is important to us!

My take on this is--if you make one initial visit and do the rest remotely do this first. If you think your doctor is open to acceptig direction from another doctor and not bucking info that is considered
advanced compared to the what they are already praticing then use this route as a second option. And no JJ1, 90% of he testing that endochrinologist do is wrong, that is why so many peole are still sick. Mary Sholom's website thyroid-about explains this as does her book "Living well with Fibromyalgia, what our doctor doesn't tell you that you need to know " There is more technical info on this at the fibroandfatique.com site and the website stopthethyroidmadness.com and is probably listed on the site you posted about the many diseases that are misdiagnosed.

 

JJ1 - February 1

Lori, Never heard of cyberchondria -- that is so funny. When I first was seen by my rheumatologist and he was running tests on my thyroid levels I had self-diagnosed myself over the computer to have hyperthyroidism and was so convinced that I was disappointed when he told me all was normal with my thyroid, so I guess you could say I was a cyberchondriac! Now I am not really fretting over all these diseases 24/7. I am resolved to do what is best for my health and had a day today that allowed me to play around on my computer most of the day so I am taking advantage of that. I find this to be normally an unintimidating place to discuss these problems and possibilities without judgement. Since we are all in the same boat, I just assumed we shared common concerns, like is this FMS or something more sinister. I am not really stressing out over whether I could have MLS or ALS, it is just one of those occasional nagging fears in the back of my mind, not an obsession. Suggestions from others to check my thyroid or cortisol based on info I have posted about my symptoms is VERY HELPFUL and much appreciated (thanks so much dream69 and larry). My anemia is a very real concern that may or may not be related to my fibromyalgia. it is serious enough that my gastroenterologist feels I should have a colonoscopy and endoscopy to check for internal bleeding and celiac disease. And I have not mentioned or thought of cancer, but now that you mention it, let me google that for a bit.................................(by the way, another new term I heard the other day that applies to a day like today when I have been messing on the computer most of the day -- I am a "mouse potato"!)

 

skidoo - February 1

Lyle, it's expensive to visit them--$325 for the first two doctor visits--$165 for any thereafter--; thousands of dollars for the lab tests, and about $1,000 for the supplements and prescription meds, and none or very little covered by insurance.

 

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