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Fibro and Psoriatic Arthirtis
2 Replies
mjrichmond - April 25

Does anybody else have both Fibromyalgia and Psoriatic Arthirtis? I do and it's awful. Today my whole body is hurting... that would be the fibro. I am on Humira right now for my arthirits and psoriasis. It helps some for my joints. But overall.... with the pain and the medicine I am on, I always feel drained with no energy. On good days I try to work out. But I have gained 40 lbs since I found out I have these "conditions". I also have PCOS on top of these which makes it even harder to lose weight. I wish there was something out there that would just make the pain and weight just disappear. I am so over the pain and feelings of the worthlessness. I have spells every once in a while where I just let go and start crying. It's just awful. But when you are in so much pain and agony, you just feel like it would be so much better not living anymore. But I have a family to worry about. I am not going to do that to them. I am a happy mother of 2 children and have been with their father for over 8 years now. And he is living with renal kidney failure. He does kidney dialysis 4 times a day at home. So home life is extremely busy with both of us being ill. I just don't know what to do sometimes and want to give up. Please HELP!!

 

MarymPed - May 10

Hi,
So I guess you tested positive for the antibodies? Just wondering because I started to have lesions on my legs about 5 years ago...first the PA at the derm office told me it was folliculitis and to stop shaving my legs. Did that, condition got worse. I was told I had celiac--had the upper GI scope--not celiac. The gastroenterologist told me I could 'try not ingesting gluten if I wanted to'. I never ate much gluten anyway. Over the years I have been told by numerous doctors I have psoriasis plus the joint pain, but the blood test ruled out arthritis. Salicylic acid topical gel helps to control the leg lesions, so I just use that. It controls it--didn't cure it. Shaving my legs actually helps too. Sorry you feel so crappy.

 

January - May 20

MarymPed - the upper GI scope is really NOT the "gold standard" for diagnosis. The small intestine is 20 feet long, and they take biopsies from several areas - but they can easily miss patches of inflammation due to celiac. The only way you can tell if you have celiac is to go strictly gluten free for at least 6 months and see if you get better. (It takes 3-4 months for your intestine to heal.) If you have celiac disease, 1/8 of a tsp of flour (which can come from contamination) can make you sick with pain, depression, exhaustion and other symptoms for a month or two. For the diet to stop your symptoms, you have to be strictly and completely gluten free, not just sort of gluten free. Most doctors were not taught about gluten and celiac disease in medical school - it has only recently been accepted as a real disease that happens even in America, and there is a lot of misinformation floating around.

mj - sorry you are having so much pain and feel so frustrated with everything. Are you on some type of med for fibro? Sometimes these meds, like Lyrica or certain SSRIs can cause extreme weight gain. I'm not sure it's worth it. Extra weight can't be good for painful joints! I have watched a lot of people take these drugs and not get much help for their pain; instead they pack on a lot of weight and develop more medical problems. Maybe it would help to get a second opinion about your meds - and bear in mind that a lot of doctors don't know much about pharmacology. It might be good to talk with the head pharmacist at your drugstore - if you can find a PhD pharmacist, so much the better - they can offer a lot of help identifying side effects and suggesting alternate drugs.

 

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