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Does it go away?
10 Replies
Ginge - October 18

Hi I wrote on here a few mths ago, my Dr mentioned I may have Fibromyalgia,
Okay Im a male 44yrs old and a long haul truck driver, I have been unable to work now for 4 mths due to my body aching all the damn time, neck, back, kness, headaches, Im fatigued daily and find it hard to sleep at nite usally my neck and shoulders lower back ache at that time!
Im taking 1 oxy (20mg) in the morning and 1 at nite, I have Percocet for breakthrough pain, Im needing to work again, Can anyone tell me am I ever going to feel normal again?

 

kvc33 - October 18

I would think that your pain is work-related. Have you seen a chiropractor and had your spine x-rayed? I would also see someone who specializes in work-related injuries, rehabilitation and such. Sports medicine specailists are good for these types of things (in Canada).

 

Ginge - October 18

I have had MRI done on my neck, Xrays on my cheast , shoulders, lower back, seen a Reumo doc who also said Fibro, I have been on Cymbalta which was no use to me, kvc33 Im in Atlantic Canada , I dunno where to turn now EI sickness is done in 3 weeks...

 

Fantod - October 19

Ginge - Fibromyalgia (FMS) only affects 20% of men. It is a syndrome that is a disorder of the central nervous system that causes wide spread chronic pain. The mechanism that causes it is not understood and there is no cure. Fibromyalgia is recognised by the World Health Organization, The Centers for Disease Control and the National Arthitis Foundation.

Are you taking anything for sleep? FMS interrupts the deep sleep cycle with short bursts of high intensity brain activity. Your muscles require deep sleep in order to repair themselves from the days activities. No deep sleep means higher levels of pain which rapidly becomes a vicious circle. Amitriptyline is usually prescribed for this issue. This is a crucial part of treating FMS.

Have you tried the other two drugs commonly used to treat FMS? They are Lyrica and Savella (also known as Milnacipran). It usually takes time and a lot of tinkering to find the right dose and combination of prescription medicine for each FMS patient. Only certain classes of prescribed medications are effective. Tylenol, Alleve etc are not.

How is your diet? If you use anything with an artifical sweetner get rid of it. That includes Splenda. If you need a sweetner use something made with the Stevia plant which you can find at any decent grocery store. Truvia and Sun Crystals are a couple of names that come to mind. Avoid anything with nitrates like lunchmeat, red wine and bacon or deep fried food. All of the aforementioned items will spike your pain levels.

Unfortunately, a diagnosis of Fibromyalgia means that you will have to make some changes in your life. Pushing yourself will only lead to more problems - paybacks are hell with this syndrome. I don't know what to tell you about work as I am in the US. We do have some Canadians on the board. One of them will likely reply to you as well. As to whether you will ever feel normal again - I can not answer that. I was diagnosed in 2007 and my situation (in spite of excellent medical care) remains largely unchanged.

You might want to get a second opinion from another rheumotologist and/or find a pain management specialist. Good luck and keep in touch.

 

kvc33 - October 19

Chiropractors are really the only doctors who are qualified to treat spinal problems without surgery. They look at x-rays much differently than a regular medical doctor. An MD would have said that there was nothing wrong with my spine but I have been going for adjustments for 10 years and it is one of the things that keeps me off of pain pills. The adjustments they do also affect brain function and can stop the pain signals. Driving truck is murder on the spine, I can't believe that you wouldn't have damage from that kind of work. Drugs won't heal you they only mask the pain. Do you have the associated symptoms that come with fibro? Do your best to get better sleep. A hot bath really helps with my pain. Some people find that cold packs are the answer.

 

Canada17 - October 20

If your x-rays have come back as being normal and your doctors don't think that chiropractic care will help you then avoid it.

For me, even with a neck issue that is traditionally treated by a chiropractor, the treatments used aggravated my Fibro. In other words, I got worse, not better. I explained this to my specialist and she told me that for most people who have Fibro, chiropractic care is the last thing they should be looking at.

Instead, she suggested massage therapy and I have to agree with her. It has done a world of good for me at relieving the pain I feel in my back, neck, and shoulders. I cannot tolerate pharmaceuticals so the drugs used to treat the pain are no good for me.

I also changed my diet. There are a lot of simple foods (even healthy ones) that can make our symptoms worse. Take a look at the Diet forum for more info on that.

Also, I would suggest looking at your sleep hygiene. Sleep is so important to us and is also to blame for part of our symptoms.

 

AEnci - October 20

Hi Ginge, I am a 31 year old female who has fibro. I have extreme neck and chest pain also hip an back pain as well. I have been to a chiropractor and it only makes the pain worse. I have started taking Lyrica, Tramadol, Effexor, and many others but the pain in my neck has really decreased with the lyrica. I think once you find the right combination of medicine that works for you, you will start to feel better. You will still have good days, bad days and really bad days. Hang in there and keep pushing your doctors for the right medicines.

 

kvc33 - October 20

When a person has a treatment of some kind and the pain temporarily increases they often think that the treatment 'made them worse'. That is rarely the case. People have pain after surgery to fix something and without drugs they would often be in a lot of pain and sometimes are even with pain medication. I have heard people with fibro say that massage therapy increased their pain and it certainly can. I have had lots of massage therapy and at times it did increase pain sensations but I never thought of it as making my fibro worse. If you do choose to try massage therapy, make sure the therapist knows you have fibro and to not massage too deeply. It is quite common for a therapist to find all kinds of spots that you didn't know you had pain in, and quite common to not feel much pain at the time of the massage but feel more later. Keep searching and trying different things, everyone's answer is different. Obviously the medication you are taking is not working well for you so you need to try other things. I wish there was a straight forward magic answer to pain reduction but there isn't. Have you discussed your pain issues with other truckers? Perhaps they would be the best people to help you find an answer.

 

axxie - October 21

Hi Ginge, sorry to hear you have fibro, I feel for you, we all know how devastating it is, to live with fibro.

So now you now that there is no cure, there is a chance you can get better, we all strive for that, some of us have an easier time, others not.
We all struggle at our own pace.

I would book myself to see a chiro, and follow a routine with the chiro, the reason I say mention chiro, is you mentioned that you do, long haul driving, this will destroy your back, beside that as time passes by, the stress and the long road, creates a nesting area around your waist area, and as we age, we tend to not loose weight in the middle as fast as when we were once young. If this is not you, then hurray for you, but still go follow a regine with the chiro. I can safely say, it's going to hurt, put the first thing you want to do is get that spine where it belongs. This is no miracle worker, but lots people, including me say it helps if you stick with going to see the chiro 3 or 4 times a week, until your back has stabalize. You'll fine some of the pain, will disapear, not all of it, but enough that you will feel better about yourself.

Another thing you can do is go see your rheumy or whoever gave you oxy, wrong drug to have, tell them to change you to Ralivia, if they can give you oxy, they should be in position to give you Ralivia instead.

Ralivia (tramadol) belongs to a group of medications called opioid analgesics. It is used to manage moderate to moderately severe pain for people who need several days or more of pain control. It decreases pain by working on the central nervous system. It’s a once-daily formulation per 24 hours.

The type of pain you have is called neuropathic pain, does not respond to tylenol, the pain is the result from signals coming from the peripheral nervous system, that is, the nerves outside of the barin, or spinal cord.

Neuropathic pain occures when you have chronic pain. The sumptoms of neuropathic pain include a constant gnawing pain, as well as shooting and burning sensation or tingling and numbness. No matter how you describe it, its effect can be debilitating, causing tremendous physical and emotitional suffering and loss of quality of life. Not surprisingly, patients who suffer from neuropathic pain experience high rates of depression and insomnia.

Neuropathic pain is fequently chronic, sometimes lasting months or even years. While complete cures are unlikely, it can be controlled with the proper treatment.

If this is work related then you should have made a claim with Workers Compensation, if you haven't start calling them and ask them to send you the forms and fill them out. Start at the begining of your injury and put in you have been seeing doctors etc. You might get some help. If they say no, keep putting in for a review, it usually takes 5 or 6 tries before they claim you with disability.

But right now, you have no choice but to move in different direction, see your doctor and get them to give you Ralivia, trust me, you'll start sleeping and some of the pain, might feel less painful.

If you can't work, then go back to EI, and tell them you don't have a job to return to, they should be able to give you benefits.

If you have health insurance, you may have disability, this is the time to get your papers in, see if you can get disability.



Seek help from Workers Compensation and

 

axxie - October 21

Seek help with
Canada Pension Plan Disability Benefits
CPP provides a monthly taxable benefit to contributors who are disabled and to their dependent children

Canada Pension Plan Disability Vocational Rehabilitation Program

Workers Compensation, look in the blue pages or go online to fine them

There’s also Federal Workers’ Compensation Services

Go back to see EI, before your run out of time, and ask them what can you do to get further assistance because you have no job. They might be able to extend your EI.

 

Stacey373 - October 21

Hi Ginge - Tramadol is a very mild non-narcotic pain medication. I have to assume that if you are taking Oxy and percocet already, then tramadol isn't going to help you much. Something you can try is taking muscle relaxers at night when you go to bed. They don't take the pain away, but it might help a little with your neck and shoulder problems.

I'm probably just repeating what everyone else has told you so far....Fibro doesn't every go away. For some people it does get progressively worse....and there are some that can maintain and even feel better. If you aren't able to work, then you really should try for some sort of disability compensation or worker's comp or whatever you qualify for.

Good Luck and let us know how you are doing, Stacey :o)

 

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