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Do you have burning, numbness, and weakness?
5 Replies
chucksusanandgrace - December 9

Hello,
I am a 40 year old female and I have had symptoms for 12+ years. My symptoms come and go. When they are gone they are usually gone for sometimes several months at a time. Sometimes my symptoms come very mild. Othertimes (like now) quite severe). This most recent one has lasted 6 weeks and I am still experiencing it. I have tested positive for ANA and ACA. I have seen Rhuematologist & Nuerologist about 10 years ago and recently a Rhuematologist. The Rhuematologist told me "I don't know what is wrong with you.

These are my symtpoms that occur sporadically.

1. numbness and weakness feeling in my feet, legs, arms and hands. Sometimes my face
2. burning sensation that travels back of neck, chest both front and back, breasts, arms, legs, hands, feet. The sensation is almost like it is very cold as if Vicks Vapor Rub was rubbed on my skin.
3. fibro fog
4. joint pain - but not always
5. dizziness
6. anxiety
7. severe problems sleeping. I wake up very easily from any little noise.
8. muscular skeletal pain (that is what the Dr calls it) costochondritis and pleurisy.

Does this sound like fibromyalgia to you? I am getting a second opinion with a new Rhuematologist & Nuerologist in January. Thank you kindly for your replies. I feel soooo desperate.

 

Fantod - December 10

Hello - I am very sorry to read about your situation. Have you considered going to a website with a symptom checker? For example, the Mayo Clinic has one online. That might help give you a better idea of what you may be dealing with while you wait for your appointments with the new rheumotologist and neurologist. You might also want to consider adding a pain management specialist to the roster.

Some of your symptoms could be related to Fibromyalgia (FMS). However, you need to be proactive in pursuing a firm diagnosis of whatever the problem may be. Seeing someone every ten years is not the answer. The longer a chronic pain cycle continues, the harder it is to manage or stop. I sincerely hope that you can get to the bottom of your health issues. Take care and God Bless.

 

gucci - December 10

hi chucksusanandgrace
I suffer from 7 of your symptoms the only 1 i dont have is the problem with sleep as i take amitriptyline 40mg each night and that helps me sleep well (thankfully) it is hard somedays to carry on with daily activities and work when in so much pain thankfully i do have some good days and i make the most of them to compensate the bad days. the costochondritis is the worse for me as i have anxiety attacks when that flares up in my chest area i hope you get diagnosed soon so you can try different pain relief to help you get by each day take care

 

chucksusanandgrace - December 10

Thank you both of you for taking the time to respond. I agree, 10 years is not enough. I just remember going to Drs after Drs 10 years ago and none of them knew anything. One did say a modified but not complete fibromyalgia.

My regular Dr doesn't know. I'm praying that one of these Drs can shed some light. Sometimes you just feel crazy.

Oh also, in terms of not going to the Dr that often, it is because my symptoms usually do disappear and when they are gone, they are gone and I feel GREAT!

It is hard when you go through something and they can't tell you what is wrong. I just want a label.

Thanks so much. I appreciate any and all responses.

God Bless
Sue

 

susanandpaul - April 29

Hello, I just found this forum this morning and I'm really interested to read your symptoms because I have about 6 of them. I was diagnosed 8 years ago with fibromyalgia but wasn't given any significant info on the long term effects. Like you my symptoms disappeared and would return intermittantly. The worst symptom was the painful neck but luckily I haven't had it for a couple of years. Again, like you, when I have no symptoms I feel really good. However, I am 50 and have been having awful perimenopause problems. I was also rear ended by a teenage driver recently and may have suffered whiplash. Since this has happened I've had headaches, neckpain and a lot of the symptoms on your list.I too have been constantly at the Drs and told they don't know what is wrong with me. I too want an answer no matter what.

 

chucksusanandgrace - July 29

Thanks for your responses. I've also added paresthesia mainly on my left side to this (however, maybe I just can "label" it more then I could before)

 

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