For the past 3 months I have been hitting this forum and others, trying to figure out what is wrong with me. Maybe you guys can help.
About 7 years ago I noticed a tight muscular knot, about the size of a quarter, on the right side of my spine, under the shoulder blade. It ached and ached. I would rub at it with my fingers as best as I could, or try to rub it in the corner of a door jamb. I didn't think too much about it, I thought I was just working too hard. The knot would be there for a few months, go away for a while, and then just reappear.
Several years ago I noticed a similar pain in my neck. I thought I might just be tense. I would rub it and rub it and it would feel better for a few minutes and then come right back. Again, it would go away for no apparent reason, and then a few weeks later it would come back.
About 5 months ago I developed a muscular knot on the left side of my spine, in the same place the original one was, but on the other side. Same size, same burning feeling.
This time however, the pain seemed to radiate up my shoulder and across my back. In the course of trying to rub it out I noticed that I had more knots, approximately midway down my shoulder blade, in both shoulders and on both sides of my upper arms. I can actually feel these knots. They are all about the size of a quarter.
When the pain began to cover not just the knot but my entire shoulder, I made an appt. with a doctor. In the three weeks waiting to see her this pain became unbearable.
I could not get comfortable enough to sleep some nights. My husband's hands have gotten stronger from giving me massages, which helped during the time he was doing it, but as soon as he stopped, it was back. Asprin, Ibuprofin, none of it helps.
I would stretch it out, or do yoga, which actually helps a little bit, enough to get me to work in the morning.
I started thinking about what it could be and started doing some research. I started with my mom. She has FMS and our family has a history of arachnoiditis, which is an inflammation of the mylin sheathing that surrounds the nerves branching off of the spine.
I asked her about the knots and she said she wasn't sure if it was the FMS or the arachnoiditis. Doing more research, I found that my symptoms were more like FMS than arachnoiditis, so I started trying to treat myself.
I cut way back on sugar and found that it helped. I also cut back on processed foods and that seems to be helping too. I found a book that focuses on a diet for treating MS and that seems to help too. As does heat.
I also smoked some pot, which my mom suggested, and while it didn't kill the pain, it loosened up my muscles enough for me to do a work out tape, which made me feel great. I slept so good that night, if it weren't illegal and I didn't have a professional job, I would be all over it. *I don't live in a medical marijuana state*
In those weeks leading up to my doctors appointment the pain in my left should got so bad that I couldn't use it. It hurt, unrelentingly.
I saw the doctor. I told her everything I just told yall. She took my blood, got x-rays, gave me a prescription for elavil, mobic, and robaxin. The first 3 days were great. No pain. I slept. I slept too good. I couldn't get up in the morning. I became super fatigued. 7 days in I became lightheaded and dizzy. I had to leave work. I called the doc, she said stop taking the meds. I did. 2 days later the pain is back, with a vengence.
It is now radiating down my left arm and down the backs of both of my legs.
It hurt so bad last night I could not sleep, so by process of elimination I discarded the elavil because I am not depressed. It doesn't feel like a joint issue either so I'm not taking the mobic. I took the Robaxin just to see if it would help and it did. I was able to fall asleep last night but the pain is back again.
Ideas? The doc mentioned giving me an MRI next go around. Oh, the blood work came back, no thyroid issues, no cancer, everything is 'normal'. So were the x-rays.