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Do I have Fibromyalgia?
6 Replies
allen5 - April 1

Having problems with my left arm and left leg. They feel asleep with Pain, numbess, tingling, loss of strength. On my bad days I find it difficult to walk and grip things. Cant peel a potatoe, open jar of jelly or type an e-mail.

Always feel achy all over like Im getting the flu. Constant headaches. Feel dizzy with upset stomach. Sometimes double vision. Pain in joints with muscle cramps and twitches. Electic "zings" all over body (even on right side).

This has been on-going for about 3 months.

Neurologist ran a bunch of tests. Doesnt think I have pinched nerve or injury or MS. Told me it might be Fibromyalgia or Im just plain crazy and need to see the Valley Mental Health Clinic. (In nicer words but I got the point)

Help. Feel alone and dont know where to go, who to talk to and what to do now. I know I couldnt possibly be making this up. Who wants to feel like this? Just want my life back.

 

ptalana - April 2

Hi Allen, I'm so sorry to hear all that you're going through. Many of the symptoms you have mentioned do relate to Fibromyalgia. Unfortunately so far there is no blood test that will conclusively diagnosis Fms (Fibromyalgia). Getting a diagnosis mainly entails eliminating other disorders, diseases first. This is not only time consuming but extremely frustrating, trust me we've all been there. I would suggest that you find a Fibro friendly specialist in your area, you can contact your local hospital's physician referral service they should be able to give you some names. Start keeping a diary of your symptoms daily to take with you to your appointment, this could speed up a diagnosis.
I'm sorry that this neurologist hasn't shown you the respect nor care that you deserve. Many of us have also had negative experiences with unsympathetic doctors who are ignorant of Fms, sadly:(
I would also suggest that you do some research on Fms the blue boxes located on the left side of screen contains a wealth of info. Knowledge is power, most especially when you're facing Fibro.
There is also an eighteen tender point test that you can request, for a diagnosis you must display 11 of the 18 tender points. You can pull up this info on-line and give yourself this test. That being said I have heard that some sufferers don't display any of these tender points, making it even more challenging. Fibro seems to effect each individual differently, some suffer a mild form while others like myself are blessed with a severe form. I hope for your sake that what you're experiencing isn't Fms, but if it is I hope that it's a mild form.
Your first step however is getting the correct medical care so that you can get a definitive diagnosis.
Please let us know how things are going, good luck and welcome to the forum.
Happy Easter, Patty:)

 

Noca - April 2

Welcome to the forum!

 

Fantod - April 2

Allen - You really should see a rheumotologist to get a firm diagnosis. There are still a lot of doctors out there who think Fibromyalgai (FMS) does not exist. The neurologist you are seeing would be a perfect example (and shame on them!). Fibromyalgia is recognised by the Center for Disease Control and the National Arthitis Foundation.

Go to the National Fibromyalgia Asociation website and register. Then you will be able to see a list of fibro-friendly doctors in your area. Round up your medical records including any recent bloodwork/tests and take them with you to the appointment. That will save time and money.

Patty makes a good point about looking through the information provided in the blue boxes on the lefthand side of this page. This is the best site on the Internet about FMS. Also, take some time to look through some of the posts. Either way, there is a lot of good information on this site.

You are not alone. If you have further questions, concerns or just need to vent - feel free. We are all here to help each other. Keep in touch and let us know how we can help. Take care and God Bless.

 

dsm8122 - April 14

No way, don't let any dr tell you you are crazy! Have you had blood test for RA yet? could be arthritis if not Fibro. Find a new Dr-maybe a woman dr might be more understanding of your symptons. My neurologist said it wasn't fibro but my woman dr thinks it is!

 

Canada17 - April 14

Male or Female, some doctors just don't "believe in" Fibromyalgia, like it is some cult/religion or something.

You probably already know this but please, don't base your decision for a new doctor solely on the sex of the doctor unless having a doctor of the opposite sex makes you uncomfortable. Personally, I wouldn't care if my doctor was a monkey if he/she was the best in their field. And, I think some monkeys might actually be more understanding than a lot of the doctors out there.

If you ever encounter a doctor who doesn't think the Fibromyalgia is real ask them this: "Ok, so are you too lazy to do the research, or do you actually think your patients will benefit from ignorance?" That should get your point across and then you can find yourself a new doctor. Regardless of whether or not you have Fibro, it is real and no doctor worth his license should say otherwise.

You have to be patient. Unfortunately, there is no tried and true test to diagnose Fibromyalgia. And, while it has been characterized by some as something you are only diagnosed with when there is nothing wrong with you that is incredibly false. There is medically documented evidence supporting the existence of Fibromyalgia. However, they don't know the causes and they don't understand the triggers. This makes a Fibro diagnosis a long process.

Make sure all your blood work is done, x-rays, ultrasounds, etc. If all that comes back as "normal" you need to get yourself referred to a rhuematologist and a chronic pain specialist. This will further help you to obtain a solid diagnosis and proper treatment.

Also check out the Diet forum on here and see if you can pinpoint whether or not there are some aggravaters there.

It would be wrong for your doctors to diagnose you with Fibromyalgia without exhausting every other possible cause for the problems you are experiencing. There could be another reason for your pain and perhaps even one that has an effective treatment/cure.

 

tlsinpain - April 15

Yes i would say that you definitely have fibro, and I know this because I have been living it for 12 years. Im sorry to say that I havent been able to stop the pain completely and there are days when I wish I wouldnt wake up in the morning but summer is coming and I find that I can be more functional when its warmer.You need to try Lyrica up to 400 mg a day, go see a rhuematologist they will get u started. You need sllep aids also, I will bet you havent slept all night in years, so melatonin and you may need prescription sleep aids. good luck sometimes just knowing your not crazy helps.

 

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