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Diagnosed but not treated?
7 Replies
ImaHurtin - June 17

I was recently diagnosed with Fibromyalgia..I have been in sooo much pain for a year now..BUT, I am not being treated? Is this normal...I also have bursitis of the hip...which is VERY painful...my doctor gave me flector patches for it but it isnt working either. I finally called the doc today and of course I am waiting for a phone call back...I hurt so bad I am ready to snap!

 

Noca - June 17

At first when my chronic pain started I was just using 3 T1's and 2 Advil's at a time. After I realized they did nothing I saw my doctor to get stronger meds like Codeine. When Codeine could no longer help me I went to a pain clinic and tried the other stronger opioids. I am now on Dilaudid and Fentanyl, they help take the edge off the pain.

I suggest going to a pain clinic. They can help you there get the meds you need. It took me like 9 months wait to get into mine though.

 

Myriam - June 17

Hello ImaHurtin, there is only a few things that can help fibromyalgia. Savella, Lyrica and Cymbalta. They are the only 3 meds approved for the treatment of fibro. it will not take it away, it is incurable. I have read in many articles and also heard from a well known rheumatologist that narcotics, ibuprofene, acetaminophen and opoids are not proven to help the pain. The reason is because the pain is not actually in your muscle or articulation, it is in your brain. The pain receptors and neurotransmitters are the issue. Therefore, antidepressant will offer more help than heavy painkillers. For your bursitis, than anti inflammatory may help, like celebrex, or Tylenol. Painkillers are often overused in fibro because they seem like they work, but they really just make you feel druggy so you dont really realize the pain is there. Anyway, hoped it helped

 

Fantod - June 17

No, this is not normal. You need to find a new doctor immediately. The doctor best suited to treat Fibromyalgia (FMS) is a rheumotologist. However, there are still plenty of regular doctors and rheumotologists who don't believe FMS exists. FMS is recognised by the National Arthitis Foundation, The Centers for Disease Control and the World Health Organization. Call your local hospital physician referral service and ask them for a recommendation to a rheumotologist and/or a pain specialist (I have both) with an interest in FMS. If you have any recent bloodwork, get copies to take with you to the appointment.

I have bursitis in both hips and shoulders. I can really sympathize with the type of pain that can cause. This is going to sound totally crazy but start eating as much fresh pineapple as you can stand. It contains an enzyme which helps break up bursitis. Unfortunately, bursitis is very persistent. If you eat a lot of lunchmeat or deep fried foods - don't. They make it worse.

There is absolutely no excuse for your doctor not treating FMS. The longer a chronic pain cycle goes on, the hard it becomes to manage or stop.
The sooner you see someone else the better.

Good luck and take care.

 

ImaHurtin - June 18

Thank you for your replies...I was taking 2 alieve in the morning and 2 at night...it did not work at all. I am hoping when I go back to the doctor next week, she can explain things better. I do know there are certain meds my insurance will not cover. One of them is the Lyrica. My days have been just awful :( ..Hugs for all

 

powderblue - June 28

Please let us know how you got on. You deserve a doctor that takes your health and pain seriously. I don't know much about medications but there are lots of people here such as Fantod that can give you a lot of advice and know a lot more than most doctors about FMS. Take care, hope you are feeling a bit better

 

LAWANDA - July 10

it is not true that narcotics do not help fibro pain. they do help the pain. that is why so many people with fibro are on them. i have tried all three "fibro" meds and they do not work. savella actually made my blood pressure go up very high. stroke high.

 

Stacey373 - July 10

I have to agree with Lawanda...narcotics DO help a great deal. I just don't want anyone to read that and than not even try to get a narcotic prescription because they don't think it's worth it. Whether they make my brain not feel the pain so much (and not care) or whether they really do take the pain away...I don't care which it is....as long as I feel better when I take them!

No, the pain meds I take don't completely take all my pain away...but they sure as hell help alot of it! I remember what it was like having to deal with all of this without any prescription help and I don't ever want to go back to that way of life again.

Yes, there are occasionally times when I still get a little "loopy" but I guarantee it's not like when a "normal" person takes these meds. I really noticed mostly last year when I tried to go to college and I just couldn't retain ALL the information like I thought I should be able to. But the truth is, I've been taking these meds for so long that they really don't affect me that way anymore and I hardly notice any difference from being on them compared to not being on them.

Like I said...I just don't want someone new to FMS to see that and then not try to get prescription pain relief. I know there is a lot of controversy over opiod dependency compared to the actual relief a person gets from them. And I'm just glad that I found a doctor who thinks the relief is greater than the "side effects".

Take Care Everyone, Stacey :o)

 

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