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Dear: Larry and other Helpers
14 Replies
CarrieLee - December 8

Larry you are a devoted, caring, peace-loving man. Your unabashed commitment to administer help to others is an exemplary. It takes a very Big, loving and unselfish person to continue a mission of caring- irregardless of the bombs & barbs being constantly tossed in your direction. KABOOM! I am so glad that you are feeling healthy & well now. It must be invigorating, the desire to help others, now that you understand what you do.... I have learned much from you + a few others out here who have discussed stress-physics via the body's symptoms. Armed with this knowledge I feel like I am now on my way to getting better too! I am off all medication, but for an occasional sleep-aide or painkiller here & there. I was in dire straits for years before & was on 6-7 medications only a few short months ago. I am confident that the day is coming soon when I will once again be healthy. I am 50% there! So thank-you to all the loving wonderful people out here who have offered SO much in the way of information and education. Some of us DID appreciate your caring, education, empowerment & efforts! You are angels to give so much to people, you don't even really know.... Love, Health, Joy & Peace be with you all. Best Wishes!

 

larry - December 8

Thank you for our kind words Carrie Lee and congrats on getting better. Once a week I visit the fibro and Fatigue center for my IV with other patients that are also well on their way to getting better. We laugh and share our stories on how much better we are as we move thru the 6 month program. I get excited about wanting to share the new found medical info that I learn each time that I visit. This info and knowledge along with the treatment is what is empowering us to heal and it also validates every symptom and thought that we have had toward this sickness. What keeps me going is knowing that many more people are reading this info on this forum than are writing, so the few people that do write are not representative of the total population of fibro folks that want to get better. I also visited http://www.bradyinstitute.com where I learned about the fibro personalities -1.) The Perfectionist 2.)The People-Pleaser 3.) The Legalist 4.) The Stoic and 5.) The Fear-Prone person and 6 is a Combo of the above . With this knowledge in hand it helps me understand the responses, the "need to be right". It is ok, we all have a different approach to being sick or getting better. My posts can not meet the needs of all the personalities and are intended for those that are open to my info. I have rec'd many emails for help and I do what I can. I am glad to help you and anyone else that is open to the medical info that is helping me . I know not everyone can get to a Fibro and Fatigue center so I am more than glad to share info on what things your doctor should test you for based on the tests that Fibro and Fatigue have done on me. I can tell you with just about absolute certainty that your doctor probably has not tested you for these things and probably does not know to treat these conditions simutaneously. You are welcome to email me at kathyholfelder@frontiernet.net if you also want to know what the fibro and fatigue have screened me for. With this info you can direct your doctor on your care and be more of partner with your doctor on reclaiming your health. Knowledge is power, this syndrome can be reversed. Happy healing!!!!

 

barbar - December 8

Still, there may be some of us who, for one reason or another, can't quite get to where you are no matter how much they try. Don't condemn us if we don't have the money, transportation, strength, or annual leave days to be able to get to the Fibro Centers. That doesn't mean we aren't trying. Have some mercy on those of us who's difficulties are more harsh and debilitating. We know what we have to do and will do it in the best time we can, considering our situations. In the meantime, don't condemn us for coming to the forum for a little support and lighthearted humor. I don't always want to report only the worst that is going on in my life or the conditions that make it difficult---indeed, impossible---to get to the Fibro Center and get the necessary work done. Some of it is a little too personal and I may wish to keep it private. I am trying my best to arrange getting to the Annaoplis center. I went to one before but I had so many other things going on at the time healthwise that were for more serious, they decided to wait until I had gotten those things taken care of. By then, it was impossible to get back to the center. So please understand, maybe it's not that we're not listening to you. Maybe we ALREADY knew and were working toward that end. Maybe we were already educated and well-advised. But just maybe there were circumstances beyond our control that have intervened to make the journey impossible for now. I will keep you posted on how well i am doing in my attempts. But in the meantime, please leave meour dignity and my privacy. And CARRIELEE, if their is negativity all over the net, where are you going to go? I decided to leave---after being zapped a number of times for no reason---but came back because I refused to let the negativity get me down. You have to stay and try to be as positive as can.

 

barbar - December 8

That sdhould be 'there' where it reads 'their' in the above post.

 

barbar - December 8

Still, there may be some of us who, for one reason or another, can't quite get to where you are no matter how much they try. Don't condemn us if we don't have the money, transportation, strength, or annual leave days to be able to get to the Fibro Centers. That doesn't mean we aren't trying. Have some mercy on those of us who's difficulties are more harsh and debilitating. We know what we have to do and will do it in the best time we can, considering our situations. In the meantime, don't condemn us for coming to the forum for a little support and lighthearted humor. I don't always want to report only the worst that is going on in my life or the conditions that make it difficult---indeed, impossible---to get to the Fibro Center and get the necessary work done. Some of it is a little too personal and I may wish to keep it private. I am trying my best to arrange getting to the Annaoplis center. I went to one before but I had so many other things going on at the time healthwise that were far more serious, they decided to wait until I had gotten those things taken care of. By then, it was impossible to get back to the center. So please understand, maybe it's not that we're not listening to you. Maybe we ALREADY knew and were working toward that end. Maybe we were already educated and well-advised. But just maybe there were circumstances beyond our control that have intervened to make the journey impossible---for now. I will keep you posted on how well I am doing in my attempts. But in the meantime, please leave me my dignity and my privacy. And CARRIELEE, if there is negativity all over the net, where are you going to go? I decided to leave---after being zapped a number of times for no reason---but came back because I refused to let the negativity get me down. You have to stay and try to be as positive as can.

 

CarrieLee - December 8

FYI... I am getting better on my own. I am not going to any special centre to do so. I am in a different country & there are no centre's here. So I am following the plan in Dr Brady's book . It is wonderful. Barbar, I don't not have to stay & be positive.... that is mission impossible around here. I wrote this post for LARRY and the others who have offered info on how to get well... not to start up yet another big debate on MY thread about "why we just can't help ourselves"!!! Was it necessary to paste your admonishment twice? I would like this to be a POSITIVE thread. I don't the condemnation towards anyone that you are constantly accusing him of, at all. He is always quite diplomatic saying time & again that everyone is different etc... He has been a major gentleman considering all the rude & hateful messages people have slung his way. There have been others here too who have tried to help and just plain gave up! Many of them! So to them I say - Thank-You!!! We are stronger than we think. I am learning that now myself. We are not victims, we can empower & help ourselves with the knowledge & some tenacity. Be well.

 

CarrieLee - December 8

p.s. Teresa, who is the one causing trouble? This is MY thread thanking others for their help.... YOU are the one jumping in here & causing the trouble! And make no mistake, this site KNOWS it! Some of us DO get returned emails from them! Keep your negativity AWAY from my posts that are meant for good!

 

larry - December 8

This is a perfect example of “case and point”- this is Right -Fighting 101. Choosing to be "right" instead of being well. You can't have both. Do you want to be right or be well? This is fascinating watching two people be so rude in always attacking anybody that has anything positive to say about healing fibro. Fighting to be right at the expense of your worn out, pain filled bodies. Trying to encourage your groupies to stay closed minded and subscribe to a very negative belief system despite the medical evidence that supports and has successfully reversed the fibro syndrome. The most ironic thing out of this entire scenario I have found since visiting this site is the contradictions from 2 ladies that say they appreciate research (as long as it says they are right in their beliefs that there is no cure). This is OK to have your negative beliefs- but please -not to drag everyone else down with you. The sad thing is that if they could just let go of their need to be right and did really appreciate the research such as the info in the post "A quick FIRST step for fast results..... " both ladies would be 50% better within 2 weeks, that is if it really is true what they have stated in their posts about having thyroid issues in their families.... something to think about...be right or be well, which shall it be? I am sure we will hear the decision whether we want to or not..... my wish is that they chose to be well and welcome peace in their lives, as well as a healthier level of skeptism. My apologies for losing my diplomacy.

 

CarrieLee - December 9

You did not lose your diplomacy Larry. Although you can be sure that those 2 ladies (TERESA and BABAR) will never listen to you... This is why I hesitate to even tell people I have Fibro... people think we are miserable martyrs and whiners. Gee... I wonder why?

 

Jeri - December 9

i actually dont tell ppl i have fibro either (xcept my family + close pals) for kinda the same reason. plus i dont want ppl to feel sorry for me. i know that several of my moms friends have fibro too and they are some of the most grouchy unhappy women i have ever met. i see some of that same thing going on here quite a bit. they get real mad and hostile if someone suggets something. i used to go to a support grp but it was so neg. that i had to stop going coz it made me feel sicker! i dont wnat to be seen in that light, i am open to anything that might help. it seems like there is lotsa fighting round here all the time. you guys need to ease up on other ppls opinions. not everyone has to agree. yikes!

 

larry - December 9

I also do not tell people that i have fibro. .....I made an offer to help anyone that needed help but everytime I mentioned anything positive I got attacked. I am not an employee of Fibro and fatigue, just a patient that is doing so much better and want to help others- but their negativity and need to attack is really hard to take. I understand that not everyone can afford to go to the Fibro and Fatigue centers that is why I offered up advice and medical info that they can take with them to their doctors so they can take charge and educate their doctors and hold their doctors accountable for not keeping updated on the latest scientific data that is curing patients. That damn need to be right and attacking everyone that has a positive thing to say is difficult to take. I just wanted to help them but felt such opposition everytime I posted. I feel sorry for Amber Rose. if she could just request her doctor to look at the info that I posted maybe he/she would be open to helping Amber Rose. I wlll post other quick fixes that I have found that are very helpul but at another time, it is toooo late. It was sad to see Amber Rose's story and sadness when all I ever saw was rudeness and opposition on this site. I wish I could help but the nasty remarks back are more than I need. Not only do I have fibro but I found thru the testing at the fibro site that I also am infected with the Epstein Barr virus as well as a macroplasm (?) at 4X the level of toxicy. This bacteria was found in 80% of the folks that have gulf war syndrome so I have major confusion in the head and fatigue. Also have adrenal insufficiency, hypothalamus suppression, pituitary dysfunction, chronic fatigue syndrome, etc., etc?. all from stress and a genetic component. I am optimistic about the future as i have met others that are doing well and have recovered. Just treating the thyroid first has give me a drastic improvement in how I feel. I still have a ways to go... Happy Healing!

 

Jeri - December 9

wow. i know i feel sorry for other ppl too who are so mad and hurting. i am hurting too, but try not to take it out on other ppl. thanx for the info.

 

Virgie - December 9

THIS IS MEANT WITH ALL GOOD INTENTIONS. Carrie Lee you mention you are from a different country and Larrys input is important. What country is that? If so why is it important? We usually go symptom by symptom and sometimes we need help with the symptoms and sometimes we just would love to have a laugh and joke, because this forum would sound like the dead are talking. LARRY, I haven't read any site of your symptoms because you don't talk to us, because you said you don't tell anyone you have fibro well shucks whats this site about?
Hon, I have researched fibromyalgia since I was diagnosed about l0 years ago and 10 years is a lifetime and I have
30 more years to go and I wont stop looking. But I believe this forum could be like a recipie of specific questions for aide and specific answers for help ALSO there is something about HUMOUR ,SHARING,EMPATHY. Not only
at this time of the year. YUP I Think I'm done now. On this post. Take Care and I
hope you all accept this as a thought.

 

Theadora - December 9

Virgie? you change your name too Virg? Guess you both get the boot hey? HA HA HA!!! Glory Be!

 

Theadora - December 9

CarrieLee i also follow Dr Bradys book my best friend gave me and in 1 month i am 90% better! Good luck you can do it too. dont waste preciuos time try to convince these poeple.... just concentrate on take care of you for now. too much stress to come here and be attack nonstop. ALWAYS by the same crazy ones too! we all have eyes to see it! Larry the same goes for you. you cant make them see the nose on they faces around here! so now i am going on vacation for 3 weeks to Hawaiii tomorow, it has been 10 years sence i had a trip pain free. i am going to swim with dolphins and drink maitai on thebeach! i say a prayer for you good poeple! Goodbye friends, Namaste!

 

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