New to the forum?

Sign Up Here!


Already a member?
Please login below.





Forgot your password?
Need Help?  
Could it be fibromyalgia or were the docs right with RSI?
3 Replies
PianoPlayer - October 28

About two and a half years ago I started to get pain in my right wrist, the pain progressively got worse and extended up to my arm into my shoulder and then my left wrist started to hurt, same thing happened, pain in my hand, elbow, and shoulder. Then my neck started to hurt and my upper back and now my lower back has started to hurt. All the docs that I have seen have said RSI and tell me to rest. I do but there is sometimes pain when I don't do anything. The pain isn’t always constant it is worse after I do something like typing or playing an instrument, and I can only play for five minutes before the pain starts. I also get pain after cooking, cleaning and then other times I can be lying in bed and my back is incredibly painful.

I have seen four different specialists and they have said RSI because they cannot find anything wrong. I have had multiple blood tests and nothing seems to come back wrong and I have also had X-rays and MRI’s on my wrists and there is also nothing wrong on them, no inflammation of tendons, muscles, ect.

I am really at my wits end I am in school and I cannot write or type for long periods of time without pain and I have stopped playing instruments and doing sport because of it. Some people have said that it is all in my head which gets so frustrating, why would I quit something I love if it was all in my head?

I sometimes get weakness in my arms and I get tired very easily and everything feels worse when on my period.

This has probably turned into a lot of rambling so I will stop now.

 

Kiwigirl - October 29

Hi PianoPlayer

I could have written your post myself, (well apart from the piano playing) I was also told I had RSI or OOS as they seem to call it. It got progressively worse over the years, like you all tests came back negative.
It took me 15 years to get a firm diagnosis of FMS. The doctors are only too keen to pack you out the door again with some a painkillers. One doctor told me that all I needed was to loose weight and exercise more!! Well I am not overweight and was not unfit at the time. You need to be quite insistent with your Doctor to get somewhere. I found that bursting into tears in front of my doctor spurred him into action and I was then referred into a Rheumatologist, where he finally diagnosed FMS.
After finding this site and reading the symptons everything I had suffered from over the years finally made sense. If only I had known sooner.

Please take care and good luck with getting a firm diagnosis.

 

Jodi1111 - February 2

Hi.

Its such a pleasure to meet you both on here. No need for me to even type what's been going on with me as its a replica to your situation.

"About two and a half years ago I started to get pain in my right wrist, the pain progressively got worse and extended up to my arm into my shoulder and then my left wrist started to hurt, same thing happened, pain in my hand, elbow, and shoulder. Then my neck started to hurt and my upper back and now my lower back has started to hurt"

It shocked me to read that as this was the order my symptoms developed exactly. I also tend to hear a lot of snapping in my joints. I've been certain about RSI but a new GP just mentioned fibro.

"I found that bursting into tears in front of my doctor spurred him into action and I was then referred into a Rheumatologist, where he finally diagnosed FMS".

I did this too but in front of a physio who gave me a lovely usless analogy about a brick falling on your foot during a bad day.

I would love to hear from you both, I have not many people around me and would greatly appreciate your support.

Jodi

 

StacyA - August 26

Hello, just wondering if the rheumatologist has helped? My husband's RA Doctor said he does not treat Fibro. The only thing that has helped me is prednisone which can only be taken for a short time. I've been in misery for 5 years, although I've had Fibro for 11 years. It took forever to get a Dr to acknowledge my Fibro. I knew I had it by researching.

 

Message:


You must log in to reply.

Are you New to the forum? Sign Up Here! Already a member? Please login below.

Forgot your password?
Need Help?
Ask a Question