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Comment: This is a great site.
1 Replies
JLS - January 2

It really helps me communicate about this horrible syndrome when people in my circles don't understand. I believe te information we share is invaluable

 

Jean - January 2

Hi: We are here to help because we all have the same problems with this condition and doctors and dealing with work, friends and family. Yes, this is a horrilble condition but remember there is always someone out there who has it worse off than you do, that's what keeps me going. :) smile

 

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