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Circle with no end in sight
3 Replies
carltod1 - October 7

I first had fibro diagnosis back in 1993 after flare of symptoms and 100's of tests. This was while I was living in San Antonio, and I do have a couple of letters which were sent between a couple of the doctors both mentioning diagnosis of fibromyalgia. When it finally was diagnosed by a Dr that was specializing in the investigation and treatment of fibro I was put on meds (paxil, elavil, and klonopin and after several months I had a remission of symptoms which lasted for 9 years. I had previous flares as I grew up, at 15 years old , 23 years old, and then 31-34 years old when it was finally diagonosed. The problem is I moved to Gainesville, Florida during the 9 year remission and now my symptoms are all back and new ones to boot. Pain, skin sores, night sweats, insomnia, blood pressure, muscle spasms, and last but not least diarrhea for past 4.5 years. I have again gone through hundreds of tests trying to confirm crohn's, or IBD, or the cause of the diarrhea. I have told my Primary care doctor about Fibro diagnosis and also the gastro I was sent to and my chronic pain doctors who treat me following lumbar fusion in Dec 2002, but none ever offer up Fibro as the possible cause of the various symptoms. I have an appt this Wednesday with pain docs and am going to tell them my thoughts that everything is Fibro related and ask to be put back on the meds that helped me before, but my concern is they won't believe me when I tell them and ask for treatment. I just had colonoscopy last week (fourth one in 2 years) and again was told everything is normal. Why won't any of them say "hey maybe its fibromyalgia" and stop the insanity?


maleighamylove - October 7

so sorry you are having to go through this. And wasting money on expensive tests that were just done is not how I like to spend my money. 4 in 2 years? Bet your insurance company likes that!!

I hope that you can find the right doctor to help you, wish that I had an answer for you.


TERESA - October 8

I went through this too! Regular doctors shy away from the fibro diagnosis for some reason! I had to go to a rheumatologist to get my diagnosis. My GP refered me & I think that when the rheumatologist SAID I had fibro & lupus, then my GP believed it. My GP had even said to me, when I suggested FMS, that fibro was not a diagnosis. He said "It was a non-diagnosis" & he takes his fibro patients off all meds because, & I quote, they are always going to be in pain anyway!! I have had a slew of test also, but that was because I didn't know what was wrong with me either. You already knw what is wrong, so you need to be more insistant! Tell your doctor you don't want any more tests & see if he will refer you to a rheumatologist. Most of the time the squeaky wheel gets the grease!!! Hope this helps.


barbar - December 17

Hey, can you check in and let us know how you're doing?



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