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Celiac Disease anyone?
18 Replies
JJ1 - January 19

Researching, I found another illness that has symptoms similar to FMS. I am not sure that I was ever tested for this. Some of my symptoms (including the fact that I keep getting anemic) seem to match this better than FMS. Do any of you have celiac disease or know anyone with it? How was it diagnosed? Thx..........................................
Celiac Disease may appear at any time in a person's life. The disease can be triggered for the first time after surgery, viral infection, severe emotional stress, pregnancy or childbirth. CD is a multi-system, multi-symptom disorder. Symptoms are extremely varied and can often mimic other bowel disorders. Infants, toddlers, and children often exhibit growth failure, vomiting, bloated abdomen and behavioral changes.

Classic symptoms may include:
abdominal cramping, intestinal gas, distention and bloating
chronic diarrhea or constipation (or both)
steatorrhea -- fatty stools
anemia - unexplained, due to folic acid, B12, or iron deficiency (or all)
weight loss with large appetite, or weight gain
Other symptoms:
dental enamel defects
osteopenia, osteoporosis
bone or joint pain
fatigue, weakness and lack of energy
infertility - male/female
Aphthous ulcers
Dermatitis Herpetiformis (DH) is skin manifestation of celiac disease characterized by blistering, intensely itchy skin. The rash has a symmetrical distribution and is most frequently found on the face, elbows, knees and buttocks. DH patients can have gastrointestinal damage without perceptible symptoms.


JJ1 - January 19

I keep telling everyone to remove dashes in web links since this site seems to arbitrarily add them; however, the dash in the above listed web link (between cd and symptoms) is a part of this address ---- don't delete.


JJ1 - January 19 ...................................

Celiac Disease is a genetic disorder affecting 1 in 133 Americans. It is the most common autoimmune disease in the United States; however for every one person that is diagnosed, there are at least 89 who go undiagnosed for years. People with Celiac Disease cannot tolerate the proteins found in common cereal grains, including wheat, barley, oats and rye and referred to as gluten. When a person with Celiac Disease eats foods containing gluten, their immune system responds by damaging the small intestine, specifically the intestinal villi. With damaged villi, a person can become malnourished – regardless of the quantity of the food eaten. If Celiac Disease is left untreated, damage to the small bowel can be chronic and life threatening, causing an increased risk of associated disorders -- both nutritional and immune related.


larry - January 19

Celiac disease is discussed in Mary Sholom's books and Jacob Teitleman’s books on Fibro and hypothyroidism. It is one of the creations of a sick-thyroid that has gone un-treated for too long. I have a cousin that has (had) this. His mother and sisters also have thyroid related problems. One has breast cancer and the other one now has what is suspected to be fibro. His mother, my aunt, just had a massive stroke. She is my mother's sister. Many of my mom's sisters had strokes. My mother (she is 80) has high a fibrin levels, (thick blood) as do I and my twin sister and most fibro patients. It is genetic as is hypothyroidism. We are all now patients at the F&F centers where I learned this. It is such a shame that 90% of the time the thyroid tests are inaccurate. I look at my 80 year old mom and can now see how all of her illnesses (severe osteoporosis with a hump in her back, arthritis, acute and chronic IBS, anemia, mini strokes, clogged arteries, ringing in her ears, carpal tunnel, constant pain aggravated by weather changes, irregular and rapid heart pounding, insomnia, anxiety, slight loss of hearing, numb legs, to name a few) all are a result of her thyroid never getting diagnosed and treated properly in her lifetime. It is sad as it all could have been prevented. She was just diagnosed with fibro and hypothyroidism and CFS last month. She thought that her aches and pains were all due to aging and I thought my problems were due to menopause. I was wrong.


JJ1 - January 25

I am back from my cruise (it was wonderful, btw) and have an appointment Monday to see my gastroenterologist. I am going to inquire about Celiac disease as well as the possibility of Nexium causing my anemia.


JJ1 - January 29

Saw my gastroenterologist today. He is going to test me for Celiac disease (biopsy of the small intestine) because my anemia baffles him and I have some but not all the celiac symptoms. Will keep you posted.


larry - January 30

JJ1- Here is some info from
is a disorder characterized by a decrease in the number of red blood cells that carry oxygen to various body tissues. If you have hypothyroidism, you may also have an associated mild anemia as one manifestation of the general slowing of your body functions that occurs in your condition. The anemia usually causes no symptoms and corrects itself when your hypothyroidism is treated. It is not a separate disease, but is due instead to the low thyroid hormone level.

A more serious type of anemia, known as pernicious anemia, is a separate disease that tends to occur in older patients who have or have had Graves' disease or Hashimoto's thyroiditis, and their relatives. This kind of anemia is caused by a deficiency of Vitamin B12.

Under normal circumstances, cells lining your stomach make a substance known as intrinsic factor that enables your body to absorb Vitamin B12 from food. Some individuals lose the ability to absorb Vitamin B12 due to failure of the cells that make intrinsic factor. The damage seems to be caused by a self-destructive process involving the body's immune system, similar to what occurs in Addison's and Hashimoto's diseases.


larry - January 30

Here is another one for you JJ1,
Are All Chronic Fatigue Syndrome/Fibromyalgia Patients Low Thyroid?
There is mounting evidence that hypothyroidism is present in the majority of and possibly all Chronic Fatigue Syndrome and Fibromyalgia (CFIDS/FM) patients. The problem is that standard blood testing that consists of TSH, T4 and T3 does not detect it. Thus, many CFIDS/FM patients are erroneously told over and over that their thyroid levels are fine. TSH is secreted by the pituitary in the brain, telling the thyroid to secrete T4, which is not the active thyroid hormone. T4 must then be converted in the body to the active thyroid hormone T3. When T4 and T3 levels drop, the TSH should increase indicating hypothyroidism. This is the standard way to diagnose hypothyroidism. There are, however, many things that result in hypothyroidism but are not diagnosed using the standard TSH and T4 and T3 testing. This method misses thyroid problems with CFIDS/FM patients 90% of the time.

First of all, there is clearly pituitary dysfunction in these diseases from a variety of causes, including viruses, bacteria, stress, yeast, inflammation, toxins, pesticides, plastics and mitochondria dysfunction. This results in low normal TSH levels along with low normal T4 and T3 levels. Very few doctors understand the significance of this and incorrectly state that the thyroid is fine. In addition, most Chronic Fatigue Syndrome and Fibromyalgia patients do not adequately convert T4 to the active T3, resulting in low levels of active thyroid hormone and suffer from low thyroid despite having a normal TSH. Also, there is another problem in that T4 cannot only be converted to T3, but it can also be converted to reverse T3, which is inactive and blocks the thyroid receptor. Very few practicing physicians consider this, but it is a major problem.


JJ1 - January 30

What has led me to be tested for Celiac is that I suffer from recurring anemia and am unable to absorb it from food or vitamins and must get periodic IV injections. Celiac involves an inflamation of the lining of the small intestine (due to an allergic reaction to gluten) that results in the inability to absorb iron and other essential nutrients. I have not heard anyone else on this web site having the anemia problems that I have. I originally suspected Nexium may be the cause, because of neutralizing my stomache acid, but the more I research this, the less likely this seems (my iron went down to non-detectable last year and from what I have found, Nexium could lower my iron content but it wouldn't take it to non-detectable). I am also going to be having a colonoscopy at the same time they are biopsing my small intestine so that they can also rule out internal bleeding (I am approaching 50, so it was about time to get one done anyway). I have read nothing about a thyroid imbalance causing anemia, but if you know of something, please direct me. No offense, but I find your cut and pastes very hard to read since this site doesn't allow proper formatting of responses so I would just appreciate web links to the cited information since these are usually much easier to read. Thanks.


JJ1 - January 30

Sorry, but the "it" in my previous response, first sentence, is Iron and I must get IV iron injections to replenish my iron stores.


larry - January 30

The relationship between hypothyroidism and iron levels
Conditions related to iron levels in the blood are more common with hypothyroidism than in the average population, according to researchers.

Iron-deficiency anemia (insufficient iron) is more common in people with hypothyroidism. Hemochromatosis is less common, but more frequently seen in people with hypothyroidism. Hemachromatosis is not easy to diagnose, as it is not revealed in routine blood work so doctors need to request specific tests to diagnose it. The symptoms are similar to fibro.

Treatment for hemachromatosis is a doctor-supervised program of giving blood, known as phlebotomy....... There are 52 articles on this anemia-thyroid connection if you go to and search on anemia ..Additionally, if you search on celiac you will 391 articles on he connection to thyroid disease and celiac. "Research links Celiac Sprue Gluten-Intolerance to autoimmune thyroid disease.. According to research recently reported on in the medical journal Digestive Diseases and Sciences, a significant number of patients with autoimmune thyroid disease also have celiac disease. Celiac disease is a disorder that causes the intestines to react abnormally to gluten, a protein found in wheat, rye, barley, oats, spelt, kamut, and other related grains."


JJ1 - January 30




larry - January 30

INFECTIONS AND TRAUMA_ A COMMON THEME......The underlying propensity to develop celiac disease is considered hereditary, and the condition often runs in families.

Some practitioners theorize that celiac disease may be triggered after infection by a type of virus that biologically resembles the proteins in gluten. After the infection, the body cannot distinguish between the invading virus and the gluten protein, and subsequently, the body reacts allergically, releasing mucous into the intestinal tract upon gluten exposure, and causing damage to the intestines.

In addition to viral infections, celiac disease is also known to be triggered in susceptible people by pregnancy, severe stress, or physical trauma. Celiac disease also is more common among people with type 1 diabetes.


JJ1 - January 30

Yep, I saw that on one of the websites I referenced above. I suffered through emotional stress over a four year period when I was caring for my elderly parents (now both deceased from alzheimers and cancer), working full time plus as a business professional, and trying to raise three elementary age children (at that time). I was able to maintain while undergoing the stress, but after my mother passed away in 2000, it was like all hell broke loose with my body. If I suffered my fibromyalgia-like symptoms before 2000, I was too busy to notice. I did not begin to have problems with anemia until around 2004 +/-.


JJ1 - February 2

Sorry if I am boring people with my concerns regarding celiac disease. Will find out next week if I have it. But I wanted to thank Larry because I looked up Mary Sholom's writing last night regarding celiac and hypothyroidism and you are correct, there is a connection. It does seem to be the culprit. According to Ms. Sholom, if you suffer from celiac disease and go on a gluten free diet, the hypothyroidism remedies itself. The thyroid does appear to be the root of all evil. If I don't have celiac my next step is the endocrinologist to run additional thyroid tests. Thanks, Larry.


larry - February 2

You are most welcomed JJ1. I would suggest that before you go to the endocrinologist that you get the specific info on what tests to have your doctor take from the F&F website. Also don't be surprised if your doctor again tells you that your thyroid is ok. This happens everyday and that is why Mary Shomon wrote the book. Not many doctors understand the relationship between the glands and they place more value on the tests results than on what you say. It is only out of ignorance as they were not taught this and therefore they have you running to a zillion doctors and make you feel like a hypochrondriac. Also be prepared that your doctor might "buck" your suggestions and try to discredit Mary. If you read her book you will be empowered on how to get well and get pass the uninformed doctors. My test results showed my thyroid was ok as well, even after 5 years of having 1/2 my thyroid removed! My GP doctor only woke up after he saw my 50 lb weight gain. I took his hypothyroidism diagnosis and went right to the fibro and fatigue center and bypassed his prescription of synthroid all together. My endocrinologist still thinks that my thyroid is fine. I would love to sue the doctors that refuse to get updated. I guess I get my frustration out over my anger on how this entire syndrome could have been prevented by spending so much time on this forum. Mary's book empowered me tremendously and gave me the knowledge on how to get well and deal with the doctors. I hope that you read either the “Living well with Fibro book or the Living well with hypothyroidism book. Good luck and congrats to being on your way to getting the answers that you have been looking for.


dream69 - February 2

Tests for Neuropathy: ................
• Antinuclear Antibody (ANA)
• Anti-neutrophil Cytoplasmic Antibody (ANCA)
• Angiotensin Converting Enzyme (ACE)
• Arsenic
• Blood Urea Nitrogen (BUN)
• Complement, Total (CH50)
• Complete Blood Count (CBC)
• Creatinine
• Cryoglobulin
• Cytomegalovirus Antibodies
• Cytomegalovirus Antigen
• dsDNA Antibody
• Endomysial IgA
• Extractable Nuclear Antigen Antibodies (SM [Smith], RNP)
• Folate (Folic Acid)
• Free Thyroxine Index (FTI)
• Ganglioside Antibodies (Asialo-GM1, GD1a, GD1b, GM1, GM2, GQ1b)
• Gliadin Antibody IgA
• Glucose
• Heavy Metals
• Hemoglobin A1c
• Hepatitis B Core Antibodies
• Hepatitis B Surface Antigen
• Hepatitis C Antibody
• HIV-1 Antibody
• HIV-2 Antibody
• Immune Complex Detection, C1q Binding
• Immunoglobulin Profile (IgA, IgG, IgM)
• Lead
• Lyme Disease (Borrelia burgdorferi) Antibodies
• Lyme Disease (Borrelia burgdorferi) DNA
• Mercury
• Myelin-Associated Glycoprotein (MAG) Antibody
• Neuronal Nuclear (Anti-Hu) Antibody
• Neuronal Nuclear (Anti-Ri) Antibody
• Parvovirus B-19 Antibody
• Porphyrins
• Purkinje Cell (Yo) Antibody
• Rheumatoid Factor
• Sjogren's Syndrome, SS-A/Ro Antibody
• Sjogren's Syndrome, SS-B/La Antibody
• Sulfate-3-Glucuronyl Paragloboside (SGPG) Antibody
• Sulfatide Antibody
• T4 (Thyroxine)
• TBG (Thyroxine Binding Globulin)
• Thyroglobulin Antibody
• Thyroid Peroxidase Antibody (Anti-TPO)
• Thyroid Stimulating Hormone (TSH)
• Tissue Transglutaminase Antibody
• Varicella Zoster Virus Antibodies
• Varicella/Herpes Zoster Virus Antigen
• Vascular Endothelial Growth Factor (VEGF) 2
• Vitamin B1
• Vitamin B12
• Vitamin B6
• Vitamin E (Tocopherol)



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