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burtster - December 9

hi i have been seeing my dr and now am going to a rheumatologist next month but for 2 days now the pain has kinda subsided and i feel more sore/tender then pain but before the pain was sometime unbarible. i have not been taking any meds for now because the drs still dont know for sure but i was on lyrica and that made me sick with headaces and stomach and then on savella and still the same as lyrica is the pain going away for alittle while normal and it will just come back or what?

 

Canada17 - December 9

Unfortunately, FM symptoms tend to wax and wane. I have days when I feel fantastic and then the next day I'm the complete opposite.

The good days are the ones I look forward to. Don't worry so much about when the pain will return because that is inevitable; just enjoy the freedom from the pain for now.

 

burtster - December 9

what i am wondering is is it possible it is getting better or if i do some real physical actifity will it come back

 

Canada17 - December 9

It is possible that you are better than you were but as I said, FM waxes and wanes...it's kind of like a roller coaster. But it's permanent, there is no cure.

The pain of FM will be there whether or not you do physical activity. You said that the doctors still don't know for sure. Are you referring to what kind of medication you should take or your diagnosis?

If you really feel that you are better and your symptoms don't return you can consider the fact that you may have been misdiagnosed. However, I would keep going to the doctor, keep an active life. If you don't have FM, that's great news, but if you do, the reality is your pain will return.

I know that I have always had FM and I know that some years were better than others. Over time my symptoms have gotten stronger and stronger. After a car accident and the birth of my daughter (both traumas to my system) it has really affected my life. I know that unless they can find a cure, or at least a good treatment, I will fight FM forever.

Keep talking to your doctors.

 

Fantod - December 10

Hello burster and welcome to the forum.

I am sorry to read that you are having a difficult time with medication. It also sounds like you still don't have a firm diagnosis of Fibromyalgia (FMS).

Fibromyalgia is a disorder of the central nervous system that causes widespread chronic pain. The mechanism that causes it is not understoo. There is no cure but it can be managed with certain classes of prescribed medication. FMS is recognised by the National Arthitis Foundation and the Center for Disease Control.

The problems with medication that you have described are not unusual. Many people with FMS have chemical sensitivities myself included. I had a terrible reaction to Savella. As you may know, Lyrica, Savella and Cymbalta are the primary drugs used to to treat FMS. I use Cymbalta which addresses both the pain and depression that usually accompanies FMS. I have had good results for the most part. That being said, it is not unusual to have fluctuating pain levels and other symptoms. It can take quite a bit of time and tinkering to find the best combination of medication and dosage to make you more comfortable. It is not a perfect science by any means as all of us are affected differently. You may have periods where the pain is less intense but it rarely or never goes away completely for a significant amount of time. Don't waste your time and money taking Tylenol or any other OTC pain medication. They don't work on the type of pain generated by FMS.

One of the reasons that you are so sore and achey is the lack of restorative sleep. FMS disrrupts the deep sleep cycle with short bursts of high intensity brain activity. Your muscles need deep sleep in order to repair themselves from the days activities. No deep sleep means higher levels of pain which rapidly becomes a vicious circle. Anitriptyline is usually prescribed for sleep issues associated with FMS.

There are also a couple of other things that can cause widespread pain. If your new rheumotologist is worth his salt, he will test for these also. You should be checked for a vitamin D deficiency. This is common among people with FMS. You might also consider being tested for gluten sensitivity. It is possible to be sensitive to gluten but not have celiac disease. The most accurate test is done using a stool sample.

You should be eating small high protein meals throughout the day. This will help with your fatigue issues. Stay away from deep fried foods, lunchmeat (nitrates) and anything that contains an artifical sweetner including Splenda.
Any of these items will probably increase your pain levels. If you require an artifical sweetner, use Truvia or Sun Crystals which are made from the nontoxic Stevia plant. You can find these items in the grocery store.

Take some time to read through all of the information in the blue boxes on the lefthand side of this page. There is a lot of good information which is easy to understand. We are all here to help you through this. If you have further questions, need to vent or any other concerns, please let us know. Take care and God Bless.

 

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