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Back to Gabapentin
4 Replies
Noca - June 10

I saw my GP today and complained about my pain again. She did some physical tests on me and didn't seem to be convinced I was in pain IMO. She gave me Gabapentin to try again, but at some really low dose. Only gave me 300mg for the first week and 600mg after that. Though she wants to see me again in two weeks. I'll just get it upped from there I guess.

I went to the pharmacy to get it filled and they said ODSP would only cover it if it was being used for epilepsy. Good news is I just happen to have epilepsy, though it has been in remission for 15 years lol.

On another note, my blood tests came back and my iron, B12, glucose, and cholesterol were good, but I had an elevated white blood cell count(meaning infection) even though I don't feel sick. She gave me yet ANOTHER blood test to do before I see her in 2 weeks. This will be my 3rd blood test so far this year.

 

Stacey373 - June 10

Hi Noca! I'm new on here and I introduced myself in the "Support Groups" section, but thought I would also comment on some of the posts.

I was prescribed gabapentin (neurotin) a couple years ago. My doctor has me taking 3 pills (total of 900mg) every night. I actually quit taking them a couple months ago because I really didn't notice them helping me and I'm tired of taking tons of pills every night. Not to mention we lost our insurance and I just can't see paying cash for something that really doesn't help me. But I've heard both good and bad things about this medication...so I guess it's worth a try to see if it helps you.

Even though I am taking Norco for pain, my doctor is trying to slowly take me off of them. I want to tell her that the pain hasn't gone away, the headaches haven't gone away, the fibro hasn't gone away! So WHY are you taking the pain pills away??? I honestly don't want to think what life will be like without them...I remember all too well what it was like before I started taking them and I can't imagine going back to that.

I guess I don't really have any advice to give you for the pain...maybe try to find a doctor that will sympathize with you...that's probably what I will have to do eventually...

Stacey :o)

 

Fantod - June 10

Stacey373 - Noca has some complex health problems in addition to Fibromyalgia (FMS). And, he is not alone with having underlying conditions - many of us do. He had a high level of pain prior to being diagnosed with FMS.

There is no cure for FMS. It can be managed with certain classes of prescribed medication. OTC remedies do not work for the pain associated with FMS.

One of the reasons you are in pain is due to lack of restorative sleep. If you are not taking a sleep aid, you should be. This is a crucial part of treating FMS. Fibromyalgia interrupts the deep sleep cycle with short bursts of high intensity brain activity. Your muscles need deep sleep in order to repair themselves from the days activities. No deep sleep means higher levels of pain which rapidly becomes a vicious circle.

Your headaches could be a result of TMJ. You may be grinding or clenching your teeth at night while you are sleeping. If you have pain in your jaw, shoulders or neck this could be part of the problem. Your dentist should be able to determine if this is an issue. A bite splint which is worn at night will help to alleviate these symptoms. The splint may be expensive but it is far cheaper in the long run than having your teeth crowned as a result of all the damage.

If you can not afford a sleep aid, Melatonin is helpful. Make sure you understand how to use it and any risks associated with it. You can find it at any decent health food store.

Incidentally, the pharmaceutical companies all have programs to assist consumers who can not afford prescriptions. The information is available on their websites.

I hope that my comments are helpful to you in some way. Take care.

 

Stacey373 - June 10

I totally understand all the health problems and associated conditions that go along with FMS. I also understand that OTC pain meds don't work...I know, I'm not new to this and have probably tried everything in the pharmacy. I was taking all the prescription meds for about 2 years before I was diagnosed...being diagnosed with FMS just explained the WHY of it all and helped to better understand what is going on with my body.

I was just trying to tell Noca what my experience with gabapentin has been. It doesn't help me much, but hopefully it will help someone else. Because it doesn't help me, I don't see the point in paying all that money for it.

I take alot of medications...sleeping meds, anti-depressants, muscle relaxers, pain meds, vitamins, and I'm sure there's more that I can't remember right now.

I have several reasons for my constant headaches...FMS, TMJ, Dysmenorrhea, nerve damage in my neck, bone spurs, and arthritis. the problem for me was that I don't think my doctor has been treating me for all of this. Or there isn't much more to do about it....either way, I'm going to find out at my next appt. I'm also feeling like the FMS and all the other problems aren't being acknowledged and with my doctor now blaming this all on stress and taking me off the pain meds, to me that's like starting at square 1 and having to get someone to believe me again.

I apologize if I said something wrong...I know how frustrating it is to get your doctor to understand how much pain you are really in and I know how hard it is to keep trying another new medication and wait and see if it helps. I have nothing but sympathy for the people who have to deal with this without the help of the right medications.

Stacey :o)

 

Fantod - June 10

Stacey - Its all good. Sharing information on this board helps everyone. I take Gabapentin too but in a very low dose as I am extremely sensitive to meds. This is such a frustrating condition especially when you have a doctor who doesn't want to listen. You have every right to be irritated. I hope that you are either able to get them to listen or can find someone new to help you. Either way, we are all in this together - like it or not. You are not alone and I hope that you will continue to participate on the board.

 

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