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at wits end
2 Replies
shefnoles - February 2

i have had fibro for six years now have been trying to deal with it without medicines but last year has been very hard alot more pain then usual in legs having hard time walking and in so much more pain that i just feel like it is so much more than fibro. have a active job where i am always moving but everybody says you need to exercise more but by the time i get home i am exhausted and tired and fall asleep just sitting there. is there no end of pain i thought if i just try to be a strong person and deal with it byself it would go away. my mother want listen to me my kids think im lazy and i dont talk much to husband about it. i feel alone. to feel any better do you need medicine on a daily basis. dont know what to do

 

Twitch - February 2

I hear you. Unmedicated since the very beginning. Finding some difficulty in keeping up lately.
But we know the drill. Water, consistent schedule, good food, exercise, vitamins. And a support group.
It -is- tough but you -can- do it. Meds might be helpful, but they're not neccessary in my experience.
You're not alone. Especially not here.

 

Fantod - February 2

shefnoles - Welcome to the board !

Respectfully, I do not agree with Twitch at all. The longer a chronic pain cycle continues, the harder it becomes to stop or manage.

That being said, I am going to give you a crash course on Fibromyalgia (FMS) so you have a better idea of what you are dealing with.

FMS is a disorder of the central nervous system which causes widespread, chronic pain. The mechanism that causes it is not understood. There is no cure but it can be managed with certain classes of prescribed medication. OTC remedies like Tylenol, Alleve etc do not work for the type of pain associated with FMS.

Fibromyalgia is recognised by the National Arthitis Foundation, the World Health Organization and the Centers for Disease Control.

It is very common for people with FMS to have family members who refuse to accept the diagnosis. Pain is subjective. For some people, if they can not see it, than it must not exist. I have a couple of suggestions for you. Go to the National Arthitis Foundation website and use the "search" function to find the information on FMS and send a link to family and friends. Or, go on Amazon and purchase "Fibromyalgia for Dummies." Like all of the dummies series it contains good, basic information. Read it yourself and pass it along to family and friends. Knowledge is power.

There are now three prescribed medications used to treat FMS. Lryica is advertised on TV all of the time. Cymbalta is an antidepressant that is effective in treating both the pain and depression that usually accompanies FMS. I use Cymbalta and have had good results. The newest medication is Savella. It has been used in Europe for decades and was approved by the FDA for use in the USA in March of 2009. It takes time and tinkering to find the right combination of medication for each individual with FMS. Once started on a medication regimen, it can two weeks or longer before you may start to notice a difference. Do not stop any medication without consulting with your doctor. And, do not stop them when you start to feel better. This is a complex health problem that requires ongoing treatment.

One of the reasons that you are so tired and sore is due to lack of restorative sleep. FMS interrupts the deep sleep cycle with short bursts of high intensity brain activity. Your muscles require deep sleep in order to repair themselves from the days activities. No deep sleep means higher levels of pain. Amitriptyline is usually prescribed for sleep issues associated with FMS.

Diet is always very important when managing FMS.
If you use anything containing an artifical sweetner including Splenda, get rid of it. If you need a sweetner, use something made from the nontoxic Stevia plant like SunCrystals or Truvia. You can find them in the baking aisle too. Deep fried food, lunchmeat and red wine (nitrates) will all probably increase your pain level.

If you decide that you want to find a rheumotologist who treats FMS there are a couple options. Go online to National Fibromyalgia Association website. You'll be able to look at a list of healthcare providers in your area. Or, call your local hospital and ask for the physician referral service. Ask them for a recommendation to a rheumotologist and/or a pain specialist (I have both) with an interest in FMS.

I'd like to gently suggest that part of the problem with your family may be your resistance to seeking treatment. This syndrome impacts the whole family unit. It is not just about you. I believe that you would have a better quality of life with medication.

I hope that I have addressed all of your concerns. Good luck to you and take care.

 

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