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Anyone trying to fight this ugly battle med. free?
7 Replies
LBB - November 2

I was diagnosed with fibromyalgia approx. 10 years ago. Several years after I was in a car accident. In the beginning I was prescribed a low dose of paxil to help with the deep level of sleep to hopefully control the fibro flare-ups. I took this med. for approx. two years, and then decided to try life med. free. For the next five years my flare-ups were less frequent and less severe. Unfortunately the past few years my flare-ups have returned with more frequencv. I feel like a barometer detecting storms and snowfalls hours before they come. I chose to try Zoloft this spring, but unfortunately had a bad reaction... ended up with vertigo and nausea for a week. Of course lets also throw in that most meds. are difficult on the digestive system when you also have IBS. It seems that my body is ultra-sensitive to medications. I would really like to try fighting this ugly battle of fibro flare-ups med. free. I have a good exercise program which I adjust depending on the pain and fatigue level. I see a chiropractor 1xm just for general maintenance. I am currently seeing a PT to help eleviate some hip pain and discomfort. I would appreciate any insight from those of you whom have also chosen to try this med. free. Oh, I do not take any Holistic meds, either. Thank you.

 

Fantod - November 2

The short answer is "No." I am also extremely sensitive to meds and treat any prescriptions like cynanide. It has taken a good deal of tinkering to figure out what I will tolerate. It was worth the trouble because I am, to some degree, more comfortable than when I started. I'd like to recommend you find a nutrionist who treats FMS. They should be able to help you. Mine has done wonders. But, you must be open to using some supplements. I guess I have to wonder why anyone would put themselves through going med free with a diagnosis of FMS. You have more guts than I do - that's for sure. Best of luck to you.

 

LBB - November 2

Fantod;

Thanks for your response. When you say supplements, do you mean vitamins etc..? I am on B-12 to help with the numbness and tingling. I like your idea of finding a nutritionist. Thanks!

 

Fantod - November 8

My nutritionist has me using a variety of supplements to help with inflammation (I have underlying problems in addition to FMS), memory, digestion etc. I have found her advice to be extremely useful and helpful. For example, you should be using sublinglual B12 with folic acid. The folic acid helps your body absorb more of the B12 which gives you more energy. I use a combination which has 400 mcg of folic acid and 1000 mcg of B12. I would also like to mention that compound pharmacies can be very helpful in adjusting medication doses to a level you are able to tolerate. It takes some tinkering to figure out what you can tolerate. Your doctor should be willing to partner with you to find a level of medication that works. There should be a compound pharmacy nearby to where you live. Prescriptions can also be mailed or faxed and you can have medication shipped to your home if that is more convenient.

 

Fantod - November 8

You also might try Ketoprofen which is a topical pain killer. It has to be made up by a compound pharmacy. This is an ointment which comes in 10, 20 and 30 percent strengths - lidocaine can be added to it. It does NOT get into your bloodstream which is an added bonus for those of us who are sensitive to meds. Your skin must be clean when it is applied - you can not apply one layer on top of another. Use rubbing alcohol to clean the skin prior to application. You may also apply a layer of saran wrap for better absorbtion for NO more than 2 hours. I have found this medication to be very helpful when I am having a flare. I have used accupuncture and found it be excellent for chronic pain management. Best of luck to you.

 

LBB - November 8

Fantod;

Thank you for all your information. I will definately look in to some of your suggestions. :) I have never tried acupuncture, but have heard a lot of positive results. I have had a great week... pain level is at about a 1 or 2. I always get excited thinking that my Fibro is gone for good! Laura

 

Fantod - November 10

Laura - Glad I could help. Keep us posted on your progress.

 

Fantod - November 10

Laura - Also see my post dated 6-16-2007 regarding nutritional information.

 

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