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Anyone have or know about Hughes Syndrome?
1 Replies
fibromite.u.k. - May 13

Hi to all of you, this morning I went for an appointment with the rheumatolagist where I have recently had lot of blood work done. He says that it has been found that I have Hughes Syndrome which is also known as Sticky Blood Disease. It seems that I am at risk of thrombosis, heart attack and stroke (not very nice to find out) and that usually I would be given a low dose of aspirin to take every day, but unfortunately I am allergic to aspirin. I have had an MRI of my brain which was ok, and no blood clots were found thank goodness. Because of this he says my risk is small, and that it would be a worse risk to be put on blood thinning drugs as they have nasty side effects, and I am already on lots of other drugs, for fibro and other illnesses. I am very taken aback about all this, it was very unexpected and I don't know what to think about it all. It can also cause such things as migraines, dizziness and balance problems, all of which I have, it can even cause miscarrages and pre-eclampsia, and I had two miscarrages and then pre-eclampsia when I had my only child, my son now aged 21. Does anyone know if this illness is connected to fibromyalgia? or does anyone else on the forum have it? I would like to speak to people who know about it. Thanks.

 

Fantod - May 13

I'm very sorry that you have a new medical problem to deal with.

I googled "Hughes Syndrome" and discovered that there can be a correlation to Fibromyalgia, Sjogren's, Lupus and chronic fatigue among other things. The Hughes Syndrome Foundation has a website and they are located in London.

This is new information to me and I am not aware of anyone else on this board that has the same problem. Take care.

 

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