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Am I having a flare up even if pain is no worse?
14 Replies
fibromite.u.k. - August 8

Hi, I am sorry to moan, but I just feel so ill at present. This has been going on for a few weeks now. I never feel well, but this is so much worse, I feel totally drained of everything and feel nauseous, my eyes keep going out of focus and my legs feel so weak. The strange thing is though, that my pain is not any worse than usual and when I have had a flare up in the past, it is always that the pain is much worse. I saw my doctor about it last week and was sent for various blood tests such as aneamia, diabetes, thyroid function and platelets and all have come back as normal, so I just can't understand it. I also have a lot of itching at the moment. It is certainly not depression as there is so much I want to do and every little thing is just so hard to do feeling like this. Has anyone any ideas about this?

 

Katzra - August 8

I get similar episodes and thought it was just fatigue. I will feel heavy all over, like something is weighing me down, my eyes will not focus (reminds me of when I took sedatives at night to go to sleep), the only difference really is that I get bad headaches that I thought were causing nausea. Whenever I feel like this I have no choice but to take a nap, and that usually makes me feel better. These naps are not like my usual sleep at night. I feel asleep but aware of what is going on around me except I can't move. It is really weird, like I am so fatigued all I can do is lay down and go into a coma state. I have noticed that these episodes usually occur after I have worked and sometimes after I eat. I have been trying to track the foods that cause this.

Have you tried napping?

 

Stacey373 - August 8

Hi Fibromite - I have had similar episodes like that. Not with my eyes, but feeling like my arms and legs are weighted down and it's hard to move. But whenever I have a flare up I always relate it to how much pain I'm in. So I've never really related those syptoms to having a flare up. Does that make sense? LOL

Have you been sleeping good since this new stuff started? Sometimes, not every time...but I've noticed that sometimes when I'm feeling like that, it's because I haven't been sleeping good. Once I get a couple good nights of sleep, I feel alot better.

I don't know....just something for you to think about. Wish I could help...Take Care, Stacey :o)

 

fibromite.u.k. - August 8

Hi Katzra and Stacey, thanks for the info. I do nap in the day time as I just can't stay awake, but I am sleeping well at night too. For instance, yesterday, I slept until 1p.m. after going to bed at 11p.m. the night before, so had 14 hours sleep apart from getting out about three times to the bathroom. Then after getting washed and dressed and having lunch, I was so tired that I had to sleep again. I feel as if I am wasting my life away just sleeping and I don't want to do that. I am not able to get on with my hobbies etc as I am so tired. This evening, I started to do a couple of things, but after about 30 minutes, I was just so exhausted and covered in a cold sweat all over (I keep getting these cold, clammy sweats all the time), so I sat down and fell asleep again. It is just really getting to me now.

 

axxie - August 9

Limit, your soft drinks, anything with sugar, and fats. Should help, do drink lots of water, it should help.

 

Fantod - August 9

I'm going through the same thing right now. I'm just drained and no amount of rest or sleep helps. I sat down yesterday in the middle of preparing dinner and went right to sleep. I'm sure part of it is due to the heat and humidity we've had this summer. I have central air but I still feel the effects. My pain level is about the same, along with my other symptoms. It is just a flare and it will pass eventually. Take care.

 

Stacey373 - August 9

Hi Fibromite! I was thinking...when you said just getting up to do something and you get super tired and sweaty and clammy...Have you by any chance started taking a new medication recently?

I know I've had new meds make me feel really tired all the time and sweaty/clammy whenever I tried to get up and do something.

I don't know...just a thought...Stacey :o)

 

fibromite.u.k. - August 9

Thanks for all the responses and tips. It sounds as if you are just the same as I am Fantod. Stacey, I haven't started any new medications lately. The only thing is that I had a week's course of antibiotics, but finished them about three weeks ago. I am under a lot of stress just now and it has been a very stressful year, so I wonder if that it part of it all. I think I will have to see my doctor again, but don't hold out much hope.

 

jaykie93612 - August 10

Fibro has its' own set of sleep issues that we're not even aware of. Talk to your doctor about doing a sleep study. When I got my results the sleep doctor said "You sure don't get much rest when you sleep." And then she explained some of the things that could be results of that. Good luck.

 

fibromite.u.k. - August 10

Hi again, I have been to see my doctor today and he says that one of the blood tests I had done last week points to me having an underactive thyroid gland, but that part of the test won't be back for another few days yet, and they will know for sure when that one is back. I have been looking up about this and it seems that it can be associated with fibromyalgia, and in reading the symptoms they sound very similar to each other. This is interesting, I wonder how many other fibro suffers have both conditions. I will keep you posted on what happens.

 

belle1329 - August 11

my recent eye problem sounds like maybe that coma state u are talking about my mind is aware that I
woke up but have no controlover opening them :( Calling Dr today and I am also having a thyroid test, Ill let u know.I get most of the other symptoms also, ex cold clamy sweats :( lack of sleep , and sometimes no pain , especially since ive been exercising. I believe these are also flareups not just when you have pain .

 

Stacey373 - August 11

Hi Fibromite! I didn't think about that! I know that I've had thyroid issues forever. when I was younger I was super skinny (5'9" - 110 lbs) I couldn't put weight on no matter how hard I tried. my Mom has thyroid issues and she always told me I was so skinny cuz of an over-active thyroid. Well about 2 years ago I had it tested again and it turns out it flip-flopped and now my thyroid is "under active". So NOT good! I've slowly put weight on ever since I had my 3rd child and I've actually noticed over the past 6 months or longer that I gain a couple of pounds every 2 months when I go see my doctor. (now I'm 148 lbs)

Have you noticed that you're putting weight on? Even if it's just a few extra pounds....it doesn't need to be a whole lot in a short time.

I know that when your thyroid is out of whack, you can be really tired all the time and there's so many other symptoms that go along with it. I think most of them are similar to Fibro, but with this you can actually take a pill and make it better.

let us know if that's what it is. I've been thinking about having another test done and trying the meds again. I couldn't take them before because the side effects were horrible...but I might be willing to do it now to get some of this weight off! LOL

Good Luck and Take Care, Stacey :o)

 

fibromite.u.k. - August 12

Hi again Stacey, I found your comments interesting. My Dad has had an under active thyroid since he was in his 20's, so I am not altogether surprised that I may have one too. Yes I have put on a lot of weight in the last year. I have always been overweight, but never so heavy as I am right now. It seems to have all piled on around my middle, and I haven't eaten more than usual. My Dad is always complaining that he is cold and that is right for an under active thyroid, so I don't know why I am getting a lot of cold clammy sweats, although my friend is like that too and she has an under active thyroid. I wonder if the fact that I lost my hearing in my right ear is anything to do with the thyroid problem, my Dad has very bad hearing too in both his ears. Has your mum been affected like this? You said that the side effects of taking medication for this were horrible, I hope I can cope with it as I am very sensitive to medications. I will let you know what the rest of the blood test says. Gentle Hugs to you.

 

fibromite.u.k. - August 18

Hi Stacey, my doctor rang me yesterday to say that the blood tests show that I do have an under active thyroid and I started on tablets for this yesterday. I am relived that they have found out what is wrong, although don't feel happy that I have yet another health problem. My doc said that it may be six to eight weeks before I will feel any benefit from the tablets, and I have to go for another blood test in six weeks. How are you doing now? Take care and all my blessings.

 

Stacey373 - August 19

Hi Fibromite! I'm glad you finally found out what's wrong and you are being treated for it. I really hope you aren't getting the side effects from the thyroid meds like I got. And remember that the bonus from taking these meds is you might even lose some weight! LOL My Mom has lost quite a bit of weight and she said she doesn't have any problems taking the meds...no bad side effects at all. So hopefully it's the same for you. (keeping my fingers crossed for you!)

I have a good friend who has thyroid problems...she even had to have hers taken out. Last week she told my husband that if I don't get mine taken care of and get back on the meds, I could die. She scared him quite a bit with everything she said...so now he's on me to go get something done and get back on the meds.

I should (hopefully) find out SOON whether I can get medical help from the state because I have no insurance with my husband being laid off for over a year now. If I can get that...the first thing I will do is have another test done to check my thyroid levels and if I still need to take the meds...I will do it this time no matter how they make me feel. First, for my husband so he's not worrying about me dying! And second, for myself so that maybe I will feel a little better and also lose some of this extra weight and maybe even be able to fit into my clothes again! LOL

Oh! You asked about the hearing loss? I don't know if that's a "normal" symptom or not. I know my Mom and my friend (one has an under-active and the other has an over-active thyroid)have not had any problems with their hearing. You might want to have that checked as a totally separate issue from the thyroid and fibro stuff. (I'm sure you've probably already done that)

Take Care and hopefully you will be feeling better with this thyroid stuff SOON, Stacey :o)

 

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