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All over the world
3 Replies
hellinhighwater - February 15

I am from Australia and was diagnosed in September 2003 after suffering for 18 months. I sold my business and lost everything as I had to employ many to do all the jobs I did with continued borrowing from the bank. In Australia most Super funds have permanent disability insurance against which I made a claim. That was over 5 years ago and $11000AUD legal fees later. I have seen three Rheumos and all confirm I have the illness but the insurers argument is that there is no guarantee that I won't improve. I have most of the symptoms of FMS and haven't worked since losing my business in 2003. Doctors aren't very supportive. Have been to most of them in a small town. Have had a couple of better times during the last 6 years but am now getting worse and have put on a lot of weight. Pray for a cure. Best Wishes to you all.


Anne Hillebrand - February 15

Try these great tips:

For enough deep restorative sleep, wear eye mask and ear plugs to bed.

Test Saliva pH Is supposed to be 7.4

If you have a lower number (too acid), cut out acid foods and drinks asap. Add baking soda to your drinking water.

Use guaifenesin and phenylephrine to get excess mucous out of the body.

1% Phenylephrine nasal spray gives quick relief.

Camphor Spirit wiped on anything that hurts or is stiff will give good relief. Wipe a little on the back of your neck from below your shoulders up. It will stimulate the flow of "lymph".

Anne at FibroFix


axxie - February 16

Anything for the insurance not to pay, how can you get better if you are not on treatment? Are you somekind of treatment? As for doctors, they are all the same when it comes to reports and insurance company. I'm from Canada and I'm going through the same, I have another medical review by another doctor who doesn't practice, who is very well paid by the insurance company to say what the insrance wants to hear. Insurance company have bad raps because they don't want to pay out. It's all a matter of you putting your file together and writing them without the lawyer and providing them with a copy of all your medical tests. Also put together what you have been doing for the last few years after you lost your business and write down your symptoms and what you have improved. This will help you, in showing and proving that you are doing something to help yourself and that you are getting better, but it will take time and that the insurance should review and agree with you that you should be paid. The letter and documents all have to show the prognosis, how longs its been, which doctor is treating you, what he has you own as medication and what the medication is doing for you, also write down what your symptoms where prior and what they are now, also write that you have changed your diet to help you with FMS. Insurance have words they understand such as, have fibrofog (cannot think clearly, words jump from the page and cannot understand what the subject is). Then you write, that you are on medication and that the medication is helping you with keeping your fms in check that you can actually think more clearly ie, can follow recipe.
If you can go to the library or go to the book store and buy a book that will help you navigate the insurance company. It doesn't really matter where you are from insurance company are all the same. Book title is "Fibromyalgia & Myofascial Pain" A survival Manual by Devin Starlanyl and Mary Elle Copeland. The book is in actually in it's second edition it's approximately 20.00 to 25.00 US. Then come back and will talk again.
Good luck to you


nenaya - March 5

I feel for you. I spent $125,000 from the sale of my house before I got a correct diagnosis - LYME and it common coinfections Babesia and Bartonella.

Please check out "Under Our Skin" Lyme disease epidemic documentary.

Check also the ILADS site, which has the most current Lyme info, as well as world-renowned specialist Dr. Burrascano's treatment guidelines, which you can print out and bring to your doctor.

Just Google ILADS and Lyme, or if for whatever reason the Burrascano guidelines are no longer there, just Google his name.

Good luck, and blessings to you.



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