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a wonderful friendly site for all for fibromyalgia.... please check it out.... you wont be sorry
34 Replies
coco - May 4

http://groups.msn.com/Fibro-Garden

Fibro-Garden (14 members)
Now open. Fibromyalgia Support Group. Based on the theme of a Lonely Tree sitting in the middle of an open field. I myself am a lonely tree because of Fibro. I know there are many more like me. Please when applying tell me why you would like to join us. Also expect a personal e-mail from me before you can be accepted. Lois Griffin aka Dragonfly_30062
if you would like an

 

coco - December 5

here is the whole thing

 

coco - December 5

here is the whole site

Fibro-Garden (14 members)
Now open. Fibromyalgia Support Group. Based on the theme of a Lonely Tree sitting in the middle of an open field. I myself am a lonely tree because of Fibro. I know there are many more like me. Please when applying tell me why you would like to join us. Also expect a personal e-mail from me before you can be accepted. Lois Griffin aka Dragonfly_30062

 

coco - December 5

sorry i posted it twice by accident

 

coco - December 5

sorry i posted twice

 

sherry - December 6

I'm so glad there are sites like this one- knowing that your not going crazy. Family and friends sometimes look at you and think your imagining all these sytoms. Stiffness in the mornings, headaches every day-knees feel like picks and needles, feet also feel like this, total body aches and oerall always tired and feeling drained. How long does this last? When can we feel like we used to. I have gone to all kinds of neurologists, rheumotologosits,gp, and gps.. I've had accupunture,chiropractic and have taken all kinds of meds. I also dont sleep at all- kep waking up and can only sleep on one side. Any suggestions- I'e taken all kinds of herbs also.

 

coco - December 6

Hi Sherry then check out the site i sent and ask to join..... you wont be sorry
these people the managers have fibro and have gone thru every imaginable test and all of that
so have i and alot of others
coco

 

Jean - December 6

Hi coco: I've been trying to get into your site and I can not seem to get into it, are you sure you wrote it down correctly?

 

coco - December 6

Hi Jean yes this is the correct site
put this in you address bar
and see.. i will check back with you shortly
coco (but you could call me mona or moan
http://groups.msn.com/Fibro-Garden

 

COCO - December 6

http://groups.msn.com/Fibro-Garden

copy and paste the whole line above into your address bar ... it will bring you right there

 

Jean - December 6

Hi Coco: Ok, I got in and I am contemplating on joining but my question is what type of documents do you have to intice me to join.

 

Lois Griffin - December 7

In reply to Jean's question. I am the manager of Fibro-Garden. We are a support group for people with FMS and other related Diseases. Why do you need documents to "intice" you to join? This group was started in Oct. We are a small group looking to grow slowly. I add information in the links list and on the Recommeded Reading baord when I find new and useful information.

http://groups.msn.com/Fibro-Garden

 

Jean - December 8

Hi Lois Griffin: I was wondering about that because I felt if the information you have and want to share with others like us on this site and other sites why is there a need to join? Why isn't kept as an open forum?

 

Lois Griffin - December 11

Jean, As I stated before we are a small MSN "support group". The reason it is not open like this forum is because I want my members to be able to discuss intimate details if they need to. I don't want hundreds of people to join. At Fibro-Garden we play games "Diversions" to take our minds off the pain.
Sincerely Lois Griffin

 

MissL - December 11

There are no support groups in my area to go to. I am sure there are a lot of people with with FMS but are embarassed. I am 49 and I was diagnosed when I was 28. I work in a hospital and do know and see quite a bit of this disease. I just need people who believe there is such a process that is going on in our bodies.

 

Jean - December 11

Hello Everyone: I think any support group you get into will be very helpful and I would like to see more support from our doctors. They seem to get scared when they keep a patient on an opioid for too long of time. It is ashame because knowing the pain and that doctor takes you off pain medication is devistating and brings more stress and dibilitation to that person. Where are the doctors that support their patients with this terrible disease? Hi Coco,
no hard feelings I think your site will do alot of people good. Good Luck

 

coco - December 11

to jean, yes jean our group will and is doing alot of people more than good... for we are a family.....as well.... like lois the manager said ... we also laugh alot and that is the best medicine..... the main thing too is we are a safe place to come to ... and we support each other with this illness and anything else that may come our way 100%. to me that means everything.....
so for anyone else who would like to pop in and see us please we are always here....http://groups.msn.com/Fibro-Garden Fibro-Garden ... coco

 

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