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a "Fibro Camp"
7 Replies
jrzgirl1 - November 14

we need to start a fibro camp for ourselves to go to, no stress, all relaxations., massages, warm salt water pools and hot tubs...only people with fibro are allowed,,,,in reality this is not possible Yet
but it would be nice. I am in so much pain right now, I cannot move without feeling horrific, my entire body hurts even with pain meds(darvocet 100)when I get upset or nervous, my whole body feels like it is on fire,also depression is a big issue, I see my "shrink" tomorrow but she is retiring in May, and she is the one that gives me the medication for anxiety and depression. I hope she has a name of someone who will understand what I have gone through and am going through now, my PCP does not believe in pain meds or the other meds I am taking, I am ready to scream, I wake up crying and go to bed crying(depression and being so unhappy) and no sleep and alot of pain, sometimes I pray that I will wake up in Heaven


Auvonto - November 15

I am so sorry that you are feeling that way. i have felt the same way at times because I hurt so bad. maybe one day we can all get the relief we need but in the mean time we need to be there for each other. I am feeling for you jrgirl1 i hope you feel better soon.


Stacey373 - November 15

I agree! I keep saying "this is the worst I've ever felt" and then I wake up and feel even MORE horrible! I don't know....maybe it's the weather turning bad or the stress of the holidays....but I don't think I can handle feeling like this ALL winter long! I'm barely able to walk as it is!

I hope you start to feel better soon Jrzgirl - or that you can find some relief. Take Care, Stacey :o)


axxie - November 15

Do you think the pharmaceuticals who are charging us the big bucks for there drugs, can give us a break and like jrzgirl1 said we can go to fibro camp. I'm sorry you are feeling pain, I know how you feel, I'm not too bad, with this new drug I'm taking. I think you will need to search a new doctor for pain management. Ever since I got this new doc for me, and new pain pill, I've been able to live more normal.... Can you not ask your shrink to give you some pain management relief. I would have thought that since she is giving you medication, she would be in a better position to also give you pain medication.

I feel for you girl..... hoping you can get your shrink to give you pain relief.


jrzgirl1 - November 15

I saw my shrink today, she is retiring in May, not only that, today was my last time seeing her as she no longer accepts my insurance, she gave me rx's for 3 months and I have to find another one but the names she gave me were all men and I cannot talk to a man. now what do I do,there are only ment who take my ins. and I cannot pay to go out of network, we live on ss and unemployment but the unemployment will be up soon, we have our house on the market but nothing is moving in the housing market, now my stress level is way up and the pain is horrible, my daughter is going through a nasty divorce and I get no support from my husband, he thinks I am making it up and that his pain is worse than mine, please pray for my daughter for God to find favor for her, she makes hardly anything working at WaWa, her husband makes $75K, now what do I do


Noca - November 15

I'd like to go to a fibro camp. Somewhere to relax where my pain can't follow me. Sorry you are in such a bad painful state right now jrzgirl1 (((hugsZ))) I know what its like to have pain, anxiety and depression. We are all here for one another whenever you need us.


solanadelfina - November 15

Mmmm, I like this 'fibro camp' idea. Maybe it could also have some animals around that we could cuddle and play with?

Jrzgirl, I wish you the best of luck in transitioning to a new doctor. If it's any consolation, my current 'guardian angel' doc is a male, and he's been wonderfully open-minded and compassionate since I've known him. If we do get this camp built one day, it'll be known to all the corners of the world that it was your idea.


toots2889 - November 17

I really love your idea of a fibro camp! I would love to get together with all of you and meet you in person. Im sorry to hear that things havent got much better for you yet. Keep your head up and have faith that things will get better. Know that we are all here for you.



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