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a ? for the long-time fibro sufferers here
8 Replies
Michelle F - September 5

I'm only 36, have two toddlers to raise (one with special needs), but some days I can barely get through the day. I'm too young to feel this old!! Am I always going to feel like this? Does Fibro ever go away, get better, etc??? I guess I'm feeling a little pissed off that this has happened to me, even though I guess I should be grateful that it isn't something fatal.


MB - August 28

I am intersted in responses also. I wonder the same things myself. Thanks for asking!!!


Brandy - August 29

I am 52 years old and have had FMS since my early teens. Over the early years I had what I call "remissions" here and there where the symptoms were not as bad. Not gone completely but I would feel better for extended periods of time. Then in my 40's those good times were not coming as often and this last year has been pretty bad. I get an occasional good day here and there. Everyone is different, what works for one may not help another. I know it is hard but don't ever give up. Learn to pace yourself. Surround your self with people that will understand and support you, and read as much as you can about Fibro. I wish you many blessings. Good luck to you.


Dani - August 31

I can only speak for myself, but at 48 I find that I hurt almost every day to some degree- it varies according to activity level, weather, menstrual cycle and stress. i try to control what I can, and don't know where I would be without prayer and my meds. I have taken anti-depressants for over 23 years and also muscle relaxants to help me sleep at night. Recently, my Dr. put me back on a beta- blocker (for blood pressure) and it has had a dramatic effect on feeling better and more relaxed.
Enjoy your life the best you can and don't forget to take time for yourself. You deserve it! I never had children because of my fear of not being able to take care of them, but I take great joy in my 4 dogs- they don't care if I have fibro or not!
I have a wonderful weekly study group who pray for me when I am having a rough time, but my husband struggles with the constant roller coaster I am on with this condition- please know that people do care and will be so supportive if they let you know and feel free to vent on this board because these people are suffering and totally understand where you are coming from-
God bless you!


Virg - August 31

Hi Michelle, My heart goes out to you . I've been there. My suggestion is to start now
knowing what you can or can't do. I don't know what support you have but example is
if you can't do heavy playing with the kids
it would be great to have them get that somewhere and you could do quiet reading
drawing time. If you don't have support for
your special needs child try and get it because with the stress your FM will get worse faster. I fumbled a lot with being a
single mom of two (one being a behavioural
special needs) plus being soccer mom and
carrying on like nothing was wrong getting
worse pains and tireder . When I got diagnosed I wish I had known to accept what
I had and delegate the things I needed done.
Feeling guilty about not being supermom won't
get one anywhere. Decide what are the most
important things for each child . With lots of
love it works out. you probably look good so
you might get pissed off that it isn't fatal so
the red flag would be up there for nonbelievers
but take care of yourself, handle the symptoms as they come up with your doctor
the children will be old enough to be told whats going on. I'm a young 54 have survived
need more time to rest but still have fun with
grown kids and grandkids. Praying to whatever
you believe in helps a hell of a lot. take care
lots of love and empathy virg.


JJ - September 1

I am not sure if the symptoms go away but I have been able to control the intensity and also my physical pain. The physical pain was helped once I was prescribed Elavil. Elavil is not a sleeping pill (it is actually an antidepressant) but it is prescribed to FMS sufferers to help get your body into REM sleep. I can also sometimes avoid symptoms by trying to minimize stress. This is not always possible to do, I know, especially for a mom with two toddlers. I used to be a perfectionist, wanting to do everything on my job and at my kid's schools and keep my house looking like Martha Stewart lived there, but sometimes you just have to let some things slide. Put in perspective what is most important to you. For me this meant reducing my work schedule to part time and giving up on my house being Martha Stewart perfect 24/7.


TERESA - September 1

RIGHT ON JJ! I wonder if the majority of us are perfectionest? I was the same way Michelle. I'm upset with this diagnosis, but at the sametime I am glad to know what's wrong with me. I hate not being able to do the things I want to do & I'm way to young to feel ths way. I also have lupus so it is very important to keep my stress down & that easier said than done. Let somethings go & do something you love. You'll find if you can take your mind off the pain for a while, you can kind of create your own remissions. Hope this helps.


Michelle - September 1

thanks, everyone, for your support...


R.S.Hagen - September 5

I was 32 when I was diagnosed, but had many symptoms for several years prior to that, I too had a young family, it is very sad to feel like you are unable to care for them, but I did too, my pastor loved to tease me and tell me "This too shall pass", Learning to find joy each day helps, find little things to be thankful for is important, it got me through many days while I cried into the sink of dirty dishes. My advice would be to distance yourself from the triggers, take the kids for a walk , even out to watch them play, sunshine really helps, I am told it is necessary for your psych to be happy. But I really want to say, you have not travelled this road alone.



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