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11 Points of Pain
8 Replies
freakin' out old lady - November 23

How badly are the 11 pain points supposed to hurt. My doctor was pressing on those points and I just told him some of them hurt and some didn't. I am not a person who yells when pain hits. He sounded like he didn't think I had fibromialgia, but he put me Amyltriptolene (Elavil) to see if it helps. Apparently if it helps that pretty much indicates that I have fm. So anyway, about the 11 points of pain, how much are they an indicator of whether or not you have fm. Since it wasn't bad enough to make me yell, does that mean I definitely don't have fm? Please forgive me if this makes no sense. I have a really hard time expressing myself lately. Thank you for any help you can give me. Oh, by the way, I'm a 58 year old woman.

 

tonyab1838 - September 23

Everyone is different and not all 18 trigger points have to hurt in order for it to be determined fibromyalgia. I know that I only had 12 trigger points that hurt and some more than others. Mine just feel very tender, like I am bruised. The inside of my elbows are the most painful for me, that gets me screaming. I have taken Amitriptyline it helped me sleep but it hasn't taken care of the pain. Was the Dr. that you saw a Rheumatologist? I hope that you don't have this disorder but if you do you need to see a Rheumatologist. They are the best for determining whether or not you have FMS. Take care and God bless!!

 

Jean - September 23

Ask your GP to refer you to a rheumatolgist. They can feel the problem, it's not all just the tender points. The medication that was given to you is basically used for sleep. It does help people sleep better. Fibro people have problems with sleep and sometimes when your sleep pattern gets better the symptoms you experience gets better. See how it works for about a month to see how you feel while you wait to get into a rheumatolgists office. Make sure he/she is well versed in Fibromyalgia. Let me know how it goes. [email protected]

 

Friday - October 3

When my rheumatologist hit my tender points, the ones on the inside of my knees quite literally brought me TO my knees and the nurses running! But your doctor is right... the Elavil will probably be a good indicator of whether you have FMS or not.

 

Dee - October 3

My rheumatologist prescribed Elavil for me last year when I was finally diagnosed with FMS. He told me it was a sleep aid/anti-depressant. My mom took Elavil for years for depression. It helped me sleep for about six months but I no longer get any relief from it. I see a new doctor the end of this month. He is a osteopathic doctor who has FMS himself. He's very proactive (unlike my former rheumatologist). Good luck!

 

charlie - November 19

my doc told me that he thought I had FM and I requested he refer me to a rheumatologist. When Isaw him he was not convinced that I had FM because I didn't flinch enough when he touched trigger points though I was biting the inside of my cheeks to keep from yelping. When he asked me if certain areas hurt and I said they did, he felt that I was only reacting to his positive questions. I am in constant pain since an accident a couple of years ago and my symptoms are pages long, which he does agree with. He thinks that I have just researched the ailment and that I have all the right answers. Did some blood work for thyroid and vitamin deficiency and made me feel like a fool and a hypocondriac. Here I am still in discomfort most of the day and unable to sit long. The only relief I get is with a hot shower or heating pad. Pain pills and anti'inflamatory drugs do little. My doctor prescribed a sleeping pill which I was only supposed to be on for one month, but this is now month 3. It has been a Godsend as I finally get some sleep at night and it has stopped the restless leg business. I still get night sweats, but the could be hormonal, too. I seem to be now having problems with my legs and feet at night, almost like poor circulation, though my feet do not turn blue, but they feel almost like they are frozen and then painful. They feel like they are sweaty, but when I touch them they are neither sweaty or feel cold to the touch like they feel they would be, almost numb. Sometimes I have the same problem with my hands. I am so fed up with this all and wonder if it is all in my head and only that I am getting old as the rheumatologist said. Just looking for a should to cry on. Sorry

 

Jean - November 20

I get the same reaction with my medical doctors because I don't cry or scream from pain so natually there is nothing wrong with you. It is a terrible thing when your doctor doesn't trust you and it works both ways but again they too have to be careful because there are people who fake this condition which makes it bad for the real people who have this condition have a hard time with their physicians. To tell you the truth I think the medical community started this by making this diagnosis a catch all pot and that is ashame because it will take longer to get the help you need.

 

DEE - November 22

THIS HAPPENED TO ME-MY ONE DR. TOUCHED ME ON THE KNEE REAL FAST...LIKE A QUCIK TRICK. I DID NOT HURT THERE AT THAT TIME. ONE DAY I WAS IN A STORE SHOPPING WITH MY HUSBAND AND HE RAN HIS FINGER GENTLY UP MY FOREARM RIGHT BETWEEN MY WRIST AND ELBOW AND I JERKED MY ARM AWAY-IT WAS SO PAINFUL-I WANTED TO SCREAM-IT HURT FOR LIKE 20.BUT IT IS NOT LIKE THIS ALL THE TIME/SO I DON'T KNOW IF I HAVE FIRBROMYALGIA OR NOT-I HURT AT ALMOST ALL THE TRIGGER POINTS. MY NECK HURTS SO BAD AND MY SHOULDERS THAT I GET A HEADACHE-I STAY HOME THESE DAYS SO MY BODY IS NOT UNDER THE HORRIBLE STRESS WHEN I WAS DOING LAUNDRY IN A NURSINGHOME-I,DAY AFTER DAY WAS IN PAIN.MY DAYS OFF I WOULD STAY IN BED ALL DAY IN PAIN.I DO NOT SLEEP GOOD-BUT IT IS HARD TO GET HELP. I WENT INTO MY DR. AND SAID MY KNEES HURT AND SHE SAID ONE WAS SMALLER THAN THE OTHER-I DON'T THINK SO-IT IS JUST HARD TO GET HELP IS WHAT I FIND.

 

Jean - November 23

I know and I have the same problems and even question yourself at times in the beginning. It is hard to find the help that you need but it is also hard for the doctors to diagnose. Try going to physical therapy and let them go through your muscles and they will be able to tell you something then go to a Rheumatologist to have it diagnosed. Take your medical records along with you to each doctor you see and any tests that you have taken. Keep a diary of your pain and what you were doing to produce that pain. Sometimes that can help your doctor figure out what the problem is because since there are so many other conditions that support the same symptoms other things need to be ruled out. Hope that I could help.

 

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