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Have any of you been prescribed Gabapentin?
5 Replies
Spiritual - May 23

I was prescribed Gabapentin a couple of weeks ago to treat my Fibromyalgia symptoms and I was just wondering if any of you have tried it and if so does it help your symptoms? I also take Nortriptyline.

 

Noca - May 23

I tried Gabapentin at 2400mg, I dont recall it doing much for me. I'm also on Nortriptyline at the moment and want off it. I want to try Lyrica at higher doses like 400-600mg as I only tried it at 150mg before.

 

Kiwigirl - May 23

I take Gabapentin 3 x 300mg daily. It doesn't help for general body aching, but it has helped me with my neck, I actually get some relief from the constant uncomfortable feeling and I no longer get migraines. It takes some time to get into your system so don't expect any fast results.

 

Fantod - May 24

Yes - I've been taking Gabapentin for a couple of years. I am extremely sensitive to meds so I am on a very low dose (100mg). Even that makes me sleepy. I take it at night so I sleep the worst of the effect off. I have degenerative disc disease in addition to FMS. It was prescribed for me due to nerve pain in my legs from my back problem. It works pretty well most of the time. Give yourself a couple of weeks to start noticing any difference. Take care.

 

Lee2010 - May 31

I have been on Gabapentin for about 9 months. My doc started me on a fairly low dose, but drugs tend not to work on me unless I max out, so I'm currently on 1200mg 3 times daily. I haven't experienced any side effects, and my doc mentioned that it can take months before some patients notice a difference. She said that it has definitely been successful for many people. I think it's helping somewhat, so I'm going to hang in there with it. My brain does not process narcotics and other drugs the way most people do, so in order to try and get any pain relief, I also have maxed out on Norco (Hydrocodone 10/325). I take 2 pills 4 times per day and it would be like someone else taking an Advil for pain. You would never be able to tell that I'm on such a high dose if you met me. I've tried every narcotic and non-narcotic pain reliever, as well as massage and acupunture, and seeing every type of doctor, and the result has been more than frustrating. My pain doc said that at birth the area in the brain that processes narcotics, etc., is sometimes not developed properly, hence my inability to find relief with anything. I recently needed more pain help than usual, and a doctor gave me a shot of morphine. It never kicked in.

The reason I'm going into so much detail is to let you all know that there are those of us out there that do have this anomaly, and we might just have to live with never finding relief. Fortunately, I have an amazing doctor who has been with me from the beginning of my Fibro and has always been positive and tried everything. The only thing that really terrifies me about this situation is the possibility of having something physically major happen to me, and feeling more pain than I can process. I guess I'll cross that bridge when I come to it.

Good luck, Spiritual, and everyone else out there that is trying to find that "magic bullet" that will improve their lives. I truly hope that you all find relief.

 

Spiritual - June 4

Thank you all for your replies. I'm now up to 2400mg Gabapentin. I take it 4 times a day and when I first started taking it I felt an immediate effect on the pain. It was like I could actually feel it working in my brain! I know that sounds mental but it's true :-)

I thought the pain relief would get even better when the dose was put up. I've had BAD wind and there isn't much difference on the pain now.

I reasearched higher doses online and it can go right up to 4800mg! The thought of taking all those capsules fills me with dread, but, part of me thinks what if it works?

My doctor said it goes up to 2400mg she never mentioned any higher than that. Obviously I'll need to speak to her about the higher dose first.

Lee2010 mentions about "and we might just have to live with never finding relief". I think I might just be one of those people. I always have this wee feeling though that something will actually work for me without any bad side effects. Wishful thinking!

I've only been on the Gaba a few weeks so I'm just going to continue with them and probably start coming off the Nortriptyline because after more than 2 years on them, I feel it's just a waste of time taking them.

I wish all of you well on your pain journeys. x

 

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