jodiemarshall - May 15th, 2007 6:52 AM
[ Original Post ]

i have only just been diagnoised with fm and im scared, i have a 3 year old son who still mostly at home and im his full time carer, a husband who works all day and does not understand what im going through and a house to keep but im just so tired and in pain i dont know how i will cope is there anything i can do to help with my situation other than sticking my head in the sand or burning out please any advise would help

thank jodie

Comment


 

marydema - May 19th, 2007 2:26 AM

I KNOW HOW YOU FEEL. I AM 36 YEARS OLD & FEEL LIKE I'M 80...WELL, AN 80 YEAR OLD PROLLY GETS AROUND BETTER THAN ME. I REALLY DON'T KNOW WHAT TO TELL YOU. I'VE HAD THIS STUFF FOR YEARS, DIAGNOSED AT THE AGE OF 22. I HAD PROBLEMS BEFORE THEN DOCTORS JUST DID'NT KNOW WHAT WAS WRONG. THEY SAID IT WOULD GO AWAY BUT...IT HAS'NT. MAYBE YOU COULD SIT DOWN WITH YOUR HUSBAND & SHOW HIM ABOUT THIS SYNDROM. MAYBE THAT WOULD HELP. IF HE COULD READ ABOUT IT 1ST HAND. JUST REMEMBER FM WON'T KILL YOU ONLY SLOW YOU DOWN. I TRY TO THINK OF IT THAT WAY. I FEEL LIKE I JUST CAN'T MAKE IT SOMETIMES MYSELF. MY HUSBAND IS KIND OF THE SAME WAY, HE JUST DOES'NT UNDERSTAND MY PROBLEMS. ANOTHER THING IS DON'T HOLD THE WAY YOU FEEL IN, TALK TO SOMEONE, A PROFESSIONAL. FAMILY LOVES YOU BUT THEY JUST DONT GET IT. DON'T BE SCARED THINGS WILL BE FINE. I HOPE I COULD BE OF SOME HELP. KNOW THAT THERE ARE OTHERS OUT HERE & YOUR NOT ALONE. MARYDEMA : )


Robin1237 - Sep 19th, 2007 7:13 AM

I know what we have: we actually have Lyme disease, a bacterial infection usually transmitted by an infected tick bite. The bacteria inflame our nerves and soft tissue. Go to www.lymenet.org/FlashDiscussion/MedicalQuestions and study it. There are lots of people there to help you. www.Igenex.com is a good testing lab. It's best to find a Lyme-treating doctor to work with. We generally need antibiotics, plus people are also doing other kinds of treatments as well. You can also email me at sfrobink@aol.com to discuss.