Support sounds good...
GodsGirl4eternity - Jul 22nd, 2005 8:36 PM
[ Original Post ]

Hi, my name is Julie and I am 17 years old. I was diagnosed with fibromyalgia this past summer, but my mom has it and we have suspected it for a lot longer than that. It started with joint problems in 7th grade. My symptoms now include: joint and muscle pain and weakness, fatigue, depression, all-day-every-day migraines, chest pains, tingling and numbness in the arms and legs, and other smaller things.

I really never got a chance to be a kid and feel the way most teenagers do...healthy. It sucks. There is not one day that goes by that I don't have tons of pain and I can't do anything everyone can. I can barely walk up the stairs at my school sometimes. And I'm so tired, so when I have my good days with pain, I'm still too tired to do anything anyway. It just...doesn't seem fair sometimes. But I'm slowly getting over that.

My boyfriend is pretty supportive and does whatever he can to help, so that's nice. My mom has fibro too, but she doesn't seem to understand the way I want her too. Everyone is different. Plus, she's my mom and, I don't know, I would just rather talk to someone else about it all. As for my dad, he cares, but he doesn't know what to do, so..yeah. A lot of my friends know I have it, but they don't understand at all, so they have a hard time supporting me in ANY way except "Feel better Julie." I just think "Yeah, I would do that if I could."

Currently I am not taking any medications for the fibro, just Zoloft for my depression. My mom isn't big on me taking meds, I'm not sure why. So..yeah. I have tried "Mother Nature's Miracle (waste of money and doesn't work) and I am going to be trying something called Mannatech (anybody tried it?) It's all natural stuff so my mom is more okay with it.

Anyway, support would be nice. I really don't know anybody else around here with fibro, so the net is where I guess I will get any support I need.

But, yeah, that's all for now. Thanks y'all.

Julie

Comment


 

Hal - Mar 11th, 2005 1:29 PM

Julie, e-mail me at hwjiowa@yahoo.com and I can put you in touch with a lady that has recovered from fibromyalgia using Mannatech products.


Sue - Mar 12th, 2005 12:24 AM

I have had fibromyalgia for many years and have developed some methods that ease my pain. I see a certificed massage therapist montyly. She is trained in accupreassure and trigger points and can find the sore spots like magic. Next I use moist heat-a hot tub and bean bags. I even eat breakfast with 2 warm bags on my neck and back. Then I soak in the hot tub for about 15 min. By then much of my soreness and stiffness are gone and I can shower and start my day.

Exercise has also been a big help. I try to walk 2 miles at least 5 times a week. I started with small goals-just go a few houses away and return. Gradually built up a longer route. Water exercise is also helpful but make sure the water is warm enough for you.

I still have flare ups, react to weather changes, etc. but the pain is not as severe and I can manage to get through the day. Try some new options and I will send good thoughts out for you to start improving. Sue




Rachel - Jul 22nd, 2005 8:36 PM

hi- Julie Iunderstand how you feel. I am 21 now and dont feel up to going out. I have just been diagnosed but have had it as long as i can remember. my docter told me to start taking yoga to learn to strech properly. so i dont know if it works yet but i figured we coudl try it. it cant hurt us anymore i figure.if you ever need to talk to someone else young, i know i would like to. email me at fashiondivar@netscape.net.