Is this Fibromyalgia, please help !!
shinny - Dec 23rd, 2006 7:03 PM
[ Original Post ]

Hi all,

I'm pretty much at the end of my tether & am sick of Doctors looking at me as if I'm a hypochondriac. Please can you tell me if this is Fibromyalgia? I have listed all of my symptoms below.

Chest Area => Chest Pain, Palpitations, Heartburn, Stomach inflammation (I had this tested it was inflamed !) Fluttery feeling at top of my stomach under breastbone.

Muscle pain => I have been going to a physiotherapist for some time now & every time he finds something new wrong with me. I have torn muscles from my head right down the length of my shoulder blade, at the back. On both sides. He works on it & then it's fine, but it always comes back. Last time I was with him he pressed down hard on my collarbone & it nearly killed me & also on my left rib cage. He said I have tear all the way down from my collarbone, down my chest & under my ribs. It was so sore, I actually had to pull his hand a way. Every time he "works" on my back too, it's very sore, but the collar bone was the worst.

I've recently started getting twitches in my head; this is just a recent thing though. I often get twitches in my legs after walking really hard.

I don't really get any pain from exercise other than shin splints when I run. My legs can feel really achy & restless if I have been walking for a long while or standing on them too long.

Drink sometimes affects me too. The next day my heart is beating harder, I have chest pain & I have itchy read palms. Chocolate does this to me to, but it doesn't happen all of the time, which kinda throws me. I also get itchy eyes & can sometimes sneeze after eating chocolate.

I've had an ECG, Stress Test, BP monitor & a Holter monitor. They all showed up clear. I am 32 & have struggled with my weight since about 26 upwards (before this I found it easy to maintain my weight)

So that's about it! I've been reading up about Fibromyalgia. I'm afraid to mention it to my Dr in case he turns around & says, ah that's just a makey up thing (I live in Ireland, so it's not as accepted here !)

Let me know what you all think. Thanks, S

Comment


 

shinny - Dec 23rd, 2006 7:08 PM

Oh, I meant to say that I have suffered from painful periods since I was about 17. I had this checked out too & there is no reason for this (everything is as it should be !)


shinny - Dec 23rd, 2006 7:22 PM

I'm just reading through the site & am seeing other things I didn't even know related to it, that I have.

My eyes cannot stand daylight. I generally have to wear sunglasses, even during the winter if the light is bright.

My scalp kills me sometimes, for no apparent reason & my hair has thinned over the past few years.

My arms always seem to ache me, like I need a good massage. I get pain in my ankle & wrist quite often too.

I used to feel the cold terribly as well, but this isn't as bad over the past while. I love heat though & am always found on top of the fire !!

I have trouble with my Sinius' quite regularly, but I inherited that from my Dad (not sure if this is s fibro thing or not)

Knees hurt me on & off. About 3 years ago my right knee seezed up completely & I couldn't walk on it or bend my knee. It was gone the next day & hasn't happened since !!

Also, does anyone think that Sugar makes you worse?? I know this sounds mad but I feel that when I've eaten alot of sugar I feel like it's in my muscles & makes me feel worse.

S


BRENDA - Dec 24th, 2006 11:42 AM

Shinny, you are describing the symptoms of Grave's disease!!! I have it & it is VERY important that you get checked for it, if you haven't already!!! Grave's disease if left untreated can ccause permanent damage to your system, especialy or eyes!!


shinny - Dec 28th, 2006 1:44 PM

Hi Brenda, thanks for taking the time to reply to me !! I don't think I have Grave's disease as I had my thyroid checked & it's normal. I also don't have many of these symptoms of Graves; watery eyes, increased sweating, losing weight, changes in vision, red colour on my shins etc.

Anyone think this is Fibro? Appreciate your help.



melmel23 - May 25th, 2007 10:08 PM

Hi Shinny. Well i have done allot of my own research over the past few months and i have learned that there could be many diseases that could be causing your above symptoms. i recommend to check out the associated diseases section on this website. Or type into google perhaps conditions similar to fibromyalgia. Do some research and see what you think - only you know what symptoms your having and what conditions best describe what you experience. I have been diagnosed with Fibromyalgia a few weeksd back. An am having the worst flar up to date, however about two years ago i printed out the info on it and went to doctors who did not appreciate my trying to do his job he spent years learning. Doctors get funny like that. I do however recommend you tell your doc all your symptoms, and have heard of fms - and demand a referal to a Raumatiod specailst who woulod be the person who makes a final diagnoses. good luck.


sonniejh - Aug 12th, 2007 11:05 AM

You have alot of symptoms like myself. I who was diagnosed with Fibromyalgia. Your not crazy. We all need to contact Oprah!! Here are a list of specialist that work with these issues:
1. Pain Management
2. Neurologist
3.Infectious Disease Specialist
4.Rheumatologist ****
5.Osetopath
6.A Naturopath
7.Dentist to help with TMJD
Also do a search (netscape is awesome as also google) for clinical studies for Fibromyaligia in your area.

Be Persistant!!! Don't give up!! Write down a list of all your symptoms, write a daily log, for about a week. All of your past injuries, when you were a child did you have sleep problems? etc.
We have to look at it as if it were a CSI crime.
Good Luck


Robin1237 - Sep 19th, 2007 7:04 AM

Yeah, unfortunately, I believe i know what fibromyalgia actually is. You actually have Lyme disease, which is a bacterial infection transmitted by infected ticks. Go to www.lymenet.org/FlashDiscussion/MedicalQuestions and study up on it. There are support groups listed too, so you can go look at the European ones to connect with people, testing and Lyme-treating doctors there. You can also email me at sfrobink@aol.com to discuss.