jim - Oct 16th, 2005 10:10 AM
[ Original Post ]

is there anything me and my brother can do to help her through this horrible disease to help ease the psychological pain she suffers and help her see theres still life its very hard thing to deal with please help

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Andrea - Oct 16th, 2005 10:10 AM

though i'm not a doctor i'm someone who lives with this on a day to day basis, It's very hard to accept the changes happening in your body especially if you don't have control, I think that was the hardest thing for me to accept. All she probably needs is someone who understands and still loves her, even though she is in pain. I get frustrated at my father when he tells me I need to excercise, I also have chronic fatigue so my muscles cramp up really easy which makes excercise hard..that isn't an excuse either..it's just how my body is..just be there for her that's all the advice i can give.