dizzy, night sweats and numbness
fibroprof - Jun 24th, 2005 10:54 PM
[ Original Post ]

Is there anyone out there with a diagnosis of fms who is experiencing the combination of dizziness, night sweats and numbness in hands and face? I have many other symptoms, depression, fatigue tenderness, etc., but the three in the original question are new and only some of the sites I've visited, and not my doctor agree that the night sweats especially are necessarily linked. Some sites do mention them, but it isn't consistent as are the symptoms listed for instance on this site.

Also, I'm finding that even though there is an established diagnosis from a rheumatologist, and my friends and family trust and respect my illness as real and substantiated, when I say I'm dizzy or I say I'm soaked with sweat throughout the night, people want to tell me it's "probably something else." I know that they aren't informed, but I am feeling dismissed by "it's probably menopause." I'm only 38 and no blood work shows perimenapause and my periods are regular.


Comment


 

nguerra - Apr 15th, 2005 4:50 AM

I too am only 38 and have been having terrible night sweats for over 2yrs now. Also, I am constantly feeling dizzy and spaced out. My fingers, hands, arms feel numb and the last few day have been feeling burning. My blood tests are fine except for being anemic, but not preimenapausal. I hate the night sweats the most. Night time is very stressfull for me. I wake up soaked! I feel so yuck! Apparently I've had FM for many, many years, but was dx just last June.


fibroprof - Apr 15th, 2005 9:28 AM

Sounds so familiar. I was also corresponding about electric shock headaches. I don't know any better way to describe the feelings I get except to say they are like electric shocks that make me dizzy. The other person said they were painful and nauseating.

Back to nightsweats, some nights I have to change my entire outfit and I change the sheets constantly. I picked up the two shirts I changed out of in the middle of the night six hours later and they were still soaked--not just damp, but really wet. My husband was astounded. I shiver and sweat at the same time, do you?

I was diagnosed 8 DAYS ago, but I had figured it out months ago (had to wait for the appt weeks). I took a semester off of my teaching to get a hold of my health (Restless legs syndrome, depression, no sleep, exhaustion, numbness, pain, and bladder and constipation probs--etc) First they said Lyme's, and I tested pos on one test, neg on another. So I did a month of antibios. Got worse, and I pressed to see a rheumatologist (they kept telling me simple depression). I never accepted that.

Neurologist said Restless Legs so I take an antiparkinson's for it; GP says depression, so I take Paxil and Wellbutrin, Rheumy now draws it together and says FMS, so I add in water therapy, heat soaks, and up the advil or naproxen when I'm really stiff and achy. I feel much better since I started the naproxen 2X daily, but the sweats and dizziness were unchanged.




Kimberley - Apr 22nd, 2005 1:04 AM

Oh thank god.... I thought i was going nuts. I'm 29 years old and was diagnosed with fibro 11 years ago. I never had night sweats until the last 6 months. Which is the reason I'm up at 1am on a work night. I just had to get up from my sweating/freezing attack and take a shower. Now i'm in sweat pants and a sweat shirt but when i go back to bed and then in like 2 hours i'll be in the same position. It's very frustrating!!!!


fibroprof - Apr 22nd, 2005 6:22 PM

Yes, it is both that I'm freezing cold AND sweating profusely. I also get a "fever" feeling around 4-7PM each day. I have to put on several layers and still shiver.The good side of it, my husband has to cook dinner now because all I can do is lay in bed and try to stay warm.

But, 11 years and you are only 29????? I thought this lovely disorder was for us middle aged ladies.


Kim - Apr 23rd, 2005 4:12 PM

Well I'm pretty sure I've Fibro but still waiting for a diagnosis. I too have been suffering from terrible night sweats. In the day I find I'm either freezing cold or hot and sweaty.


fibroid - Apr 26th, 2005 8:41 PM

Hot/cold at the same time. Sweats/hot flashes. Brain spins and roaring in the ears. Yep, I've got it all, too, as well as too many other symptoms to mention here. But I've been thinking it's drug withdrawal for me. I was dx'd over 20 years ago, have taken every Rx known for fibro with fair to lousy results. Two years ago I allowed myself to become a guinea pig and got on the Swiss merry-go-round with SSRI's and SNRI's. They tell you "Oh, it's a new kind of anti-depressant and since other AD's work for fibro, sometimes, let's give one of these new ones a try." They're not "just another kind of anti-depressant." They are neurotransmitters, essential brain chemicals. Their activities and interactions are poorly understood and I am walking proof that too much of too many of them piled on top of each other is a very bad idea. The combination of too much of too many created symptoms and behavior which led to my being mis-diagnosed with bi-polar disorder, which led to further bad prescribing. I decided to stop taking EVERYTHING about 6 weeks ago, after I had a major melt-down at work and had to quit. I have been supervised by a fibro specialist in stopping everything, but it's been absolute hell. The constant brain spins and roaring ears, the sweats and the hot/cold stuff all started AFTER I began the tapering process and it's not getting better. The further out I get from the last dose of the last drug (there were 14 or 15 once upon a time), the worse the dizziness and sweats get. Cure worse than the disease? You betcha!


fibroprof - May 7th, 2005 9:08 AM

I'm sure you're onto something about the withdrawal and the correlation with your dizziness and sweating--but for those of us who aren't under withdrawal or over prescribed, it seems too coincidental that we are fibro-freezer-sweaters--great new term I made up, huh?


Nancy - May 9th, 2005 11:36 PM

Hi. I do get hot and cold. Sometimes the cold is so bad I shake and have to wrap myself in blankets. There will also be stretches of time when I wake up dizzy and can't walk straight. I walk into walls. It was so bad one time that I ended up vomiting. FM is a terrible collection of body responses and I so wish progess was moving faster on developing some answers to help us.


Zapper - Jun 6th, 2005 10:57 PM

Oh man... why don't doctors know this stuff? When mentioned to my doc I get the usual "uh huh"... "you're 48, that is to be expected." I have been telling my husband that I have some kind of "temperature regulation" problem going on because it seems so difficult for my body to regulate the hot/cold. I am either freezing or sweating! Where is the happy medium? Guess I'm just another fibro-freezer-sweater :) I have to pull off layers and layers, practically down to my bra, repeatedly during the day as I get the sweats... then next thing I'm freezing and looking for my various sweaters that I ditched a few hours before. Been having the night "drenching" for about 3 years... some months worse than others. Those who haven't experienced it don't realize what a really awful experience it is.

I'm so glad others have written about this. Once again, sorry to hear that others are having these symptoms... but glad that I'm not going nuts.


Jen - Jun 24th, 2005 10:54 PM

I am so glad I am not the only one. I am 27 and was diagnosed with FM when I was 23. I had night sweats early on and then they disappeared until about 3 months ago. Now it is horrible. I wake up a couple of hours early almost every morning completely soaked. Since my clothes and my sheets are all wet, I can't go back to sleep. Now I am getting very cranky. My doctor has been running a bunch of blood tests, but so far everything is normal. Any solutions?


amberbriseno - Aug 17th, 2007 6:51 PM

it was so nice to here others out there with the same problems, i just wish i heard some cures. I too have the cold sweats but mine is not at night only. i am 34, my hands are cold and like ice cubles,. they are frozen stiff, like they have frost bite, but my head and body are sweating perfusly, right now during the day in my office. it is not freezing in here. i have trouble holding a pen or evenm typing this memo. . then i will get so soaked from the sweating that i will get chilled to the bone and shake crazily. . does anyone else have this during the day???

i was also so happy to hear someone else explain that they had the electric shocks that make them dizzy. i swear i have been trying to explain that for years to No avail! no doctor seems to have even heard of it. i say i get electric shocks in my head that make me dizzy and they are lost,. I dont know what to tell them but I am worried.

this is no life. the doctors need to find some cure for this. them edications arent hel[pikng. I cant continue to work like this. its not fair to my employer and its killing me too.

luckily this happened with my cold hands when i saw my primary doctor so she set up an emergecny appt with the circalator surgeaon and with kaiser that meant a week later but when i showed up to that appt it wasnt doing that anymore so he had no clue what it could be. I told him it isnt cold whether that brings it on cuz it happens inside int he office and that seems to be what stumpe4d him.

does anyione else get it during the day too. has anyone else gotten an actual answer or help from the doctors?


BreeZ - Aug 19th, 2007 6:11 PM

i've been suffering with night sweats as well as day sweats and cold flashes.. as i call them. It's just crazy.. i can be on fire and sweaty one min and then the next i'm shivering..In fact i seem to manage being hot and cold at the same time often.. My head gets sweaty and i have cold bumps on my arms.. and if that's not bad enough.. i get so down at times that i can laugh and cry at the very same time.. one minute laughing like crazy and the next sad and and tears running down my face back and forth from one to the other .. Not sure if this is hysteria.. i've never had the nerve to tell the docs about it.. afraid they'll have me committed!


gothceltgirl - Aug 28th, 2007 2:54 PM

I get numbness in my hands and feet, dizziness and night sweats like crazy. I thought I was have early menopause. I'm only 32. It doesn't happen that often lately *knock wood*, but I know how you feel.


ofd123 - Oct 14th, 2007 7:14 AM

I find it's hard not to be manic feeling when you are totally exhausted from lack of sleep. Woke up sweating with heavy aching arms and shoulders yet again. Would rather sit here bleary eyed on computer looking for an answer / solution than even attempt to sleep with such a feeling of impending doom.

Fibro SUX.

If you can't laugh/cry because it's 4am and you are watching your first episode of Gunsmoke in years, when can you? Oh well, I guess it could be worse...could be Dynasty reruns at this time of night / morning?

Sorry, it's either the brain fog or lack of sleep - kind of like the chicken and the egg...hard to tell which came first.

Either way, still would be nice to have one full night of sleep. sigh.


lisa1 - Oct 14th, 2007 7:23 PM

I too have all of the above but I find that the worst times of day are late afternoon 4-7 then I fell al little better. then the middle of the night I am up every hour on the hour. It is either pain along with sweating and a feeling of unrest. I also have alot of pain in my rib cage area and my heart beats like crazy. My rheumatolgist tells me this is all normal. I am lucky because she specializes in FM.


Gabbie - Oct 14th, 2007 8:10 PM

I have those symptoms along with all the other stuff. Nothing more "fun" than waking up in sweaty pjs and flipping the pillow around to find a cool spot! Every so often I do have the dizziness that comes with nausea and seems to come out of nowhere. Whether sitting or standing when it hits, I find that taking slow, deep breaths and keep very still helps that feeling to pass. My fingers sometimes go numb especially when my hands are cold and I think that's another of the fibro things. As you said, people sometimes tell you that your symptoms are probably something else. I think people don't always know how to respond to this "illness" because we really don't look "ill". Don't feel dismissed, I think it's because they just don't quite know what to say. When we are feeling lousy from a known thing like a cold, sore throat, etc., people know how we feel and say "hope you get better soon" and tell us to have chicken soup or hot tea and lemon. With fibro, it's such a strange thing, I really think they are at a loss for words because they don't really get it, and that's why what they say comes out sounding either dumb or non-caring. So, don't let that get to you.


maxinemnoel - Jul 12th, 2009 1:56 PM

Hello I am a cancer survivor for the 4th time and lost both breast. for the last 2 years i have been having some severe night sweats that i wake up soaked and i am real dizzy and feel like i never slept that night at all.im bitchy and my temper is really short.sometimes i get so frustrated i cry for hours and to top it off my boyfriend of 4 years thinks its all in my head.we fight over the air conditioner all the time,im miseriable.what the heck is this crap?????


Sonja44 - Jul 12th, 2009 5:02 PM

Yep, dizzy, night sweats...I get tingling in my hands when I take deep breathes. ? Have no idea why.


nuserrino - Sep 21st, 2009 12:36 AM

standing in 90 degree weather at a large outdoor festival just yesterday... beautiful sky, band playing decent music.. much to my dismay the group of friends that joined seemed more entertained by the fact that i had goosebumps ALL up and down my arms. suppose it could have been worse, they could've opted to comment on the sweat that was pouring from my face! while i've had the FIB (snub to the many drs still out there that contest the reality of fibromyalgia) for 12 yrs now, i've only recently began experiencing the sweat ice cube thing more frequently. although i haven't received any treatment possiblities for the phenomena i am all ears if anyone can share?


iliveinpain - Sep 21st, 2009 1:13 PM

I was diagnosed with fibro 10 years ago, and was suffering for many years before that. I'm 55 and I know for certain that I am in menopause. However, if you read up on what Dr. Jacob Teitelbaum says on the internet, he believes there is a very strong connection between hormone fluctuations and fibro sufferers. I was getting hot/cold/sweats every hour or so around the clock until I went on a hormone patch about 6 weeks ago. This has regulated all of that for me and it's made a world of difference. Menopause or not, maybe we all need to get our hormone levels checked, as fibro does throw that out of whack, along with everything else. Hope this helps someone out there!


pfiinch - Sep 21st, 2009 1:52 PM

My man cannot beleive how much i sweat he wipes my lips off because of the constant sweat.I never use to sweat and now add the cold it is totally crazy. I do have to take hrt treatment evey other month.That helps alittle and i enjoy that time frame.
I also get the brain shocks and feel like going crazy.My body gets so haot I feel like it is goin to combust when it is really bad.I take my tampature to see and it is usually up 2 degrees all at once.Wow what a whacky illness this is .I have gotten mine more under control and am so thanful.I applied for ssi and turned doen because I am working.But how can younot work and lose your insuranc and pay the bills? Can't win for loosing.


Bailey444 - Oct 22nd, 2009 1:49 AM

Hello,

I have been suffering from fibro for years and my hot flashes and sweating plus night sweats were terrible. I am 42 and never had any hormone issues,,but in trying to figure out why I am not responding well to any treatment, I came upon some info on hormone imbalances and many symptoms were the same...all my DR's said I was too young to be having hormonal problems, basic blood work showed low estrogen, but they told me that meant nothing....so I finally found a DR that would do more extensive blood work...turns out that I had HUGE sex hormone imbalances and I have only been on Bio identical hormones for 6 weeks and my sweating has totally stopped, I use to sweat for about 5 hours straight in the am plus the night sweats, and I wouldn't leave the house in the hot summer, but now I am totally a deferent person. I even got my sex drive back, as well I just feel better. Now my fibro is still there, but I would highly suggest finding a doctor that will do indepth hormonal blood testing and if they tell you that you are too young....find another doctor...I heard that for 3 years....now I have the blood work to prove it and with the bio identicals I feel great.....Try a Doctor that believes in BIO identicals and get the special blood work]]] you may not be to young, and regular blood work may not show the problem...I am telling you, I now can wear makeup again...no more sweating for me....if only I could get rid of the fibro... Good Luck everyone...Don't give up


kassiegal - Oct 26th, 2009 8:22 PM

Hi I am new here
Not new to Fibro..but found this to be a great site
A symptom I have right now...is a achy, flu like symptom and cant get warm..but no fever
Also, I have tmj, and am being treated with Prozac for GAD and anxeitys
Usually my fibro is controlled..but I have had a stressful week, and I think it has caused this flare...anyone else get that flu like feeling...


Kerrie - Oct 27th, 2009 3:50 AM

I have had bad dizziness for the last couple of days and getting the facial numbness which is just awful!! Luckilyi havent got the night sweats yet although I am sure its probably on the way!


Jaynie774 - Oct 27th, 2009 10:07 PM

I was recently diagnosed about a month ago, but have had flare ups without knowing that it was FMS for 6 to 10 years. I have had the dizzines since July on a daily basis and it is very disruptive. I have read about blood pressure dropping when you go from sitting to standing so I am going to bring it up to my Rhuemy when I see him on Monday. I have only experience the night sweats for a couple night and then they subsided.... Know about that dizzy feeling though, and I hope they can get it under control. Peace to you all & take Care of yourselves.


J. Todd - Dec 11th, 2009 5:59 AM

Maybe this will help someone. I was recently diagnosed with this after two years of emerging symptoms. It all started with getting Dengue Fever in Puerto Rico. Since then the symptoms have progressively gotten worse and more varied. I have just started getting night sweats in the last three nights (which is what brought me to this site). I'm pretty sure it has nothing to do with menopause because I'm only 44 AND I'M A MAN !!!!! I am not on any medication for this or anything else, so it has nothing to do with that. I don't even take aspirin. I've always had great health and a high fitness level (athelete, former US Marine infantry, law enforcement officer) with an attitude that if "it" doesn't kill you, it just makes you stronger. Fibromyalgia is not making me stronger. The best I've been able to do so far is to aviod things that make me feel worse and manage my life to accomodate the issues. I used to grab a nap after work. But then I wasn't tired enough to sleep at night, so now I don't nap so that I am exhausted enough at night so that I fall into deeper sleep. I used to love to have a few drinks (mabye more). If there is any testament to this being a real problem this is it. After repeated attempts at trying to enjoy a drink here and there, I've found that I simply cannot ingest alcohol. It almost immediately makes me feel like crap. Without exception I will wake at 3:00 am, (give or take five minutes) with pain in my torso and inability to sleep. This is only with two beers folks.


jahennick - Jan 12th, 2010 5:06 AM

I am 44 and have had fms for about 25 yrs or so. I was finally diagnosed just last year. I have had night sweats[sweating/freezing/soaking wet bed,pillow(not just the pillowcase)clothes,hair] for many years off and on. I started hanging extra clothes and a towel right next to the bed so I didn't freeze to death trying to get dry. I would also sleep on towels (on top of sheet) and either layer them so I could just remove the top layer, or keep extra towels close by. I just woke up a oouple hours ago (it's 3:30am) after a short nap and the collar of my shirt was already wet. I've noticed that if I am dreaming, I will always get sweaty. If I wake up and don't remember having a dream, I am usually dry. I know I have PSTD also (from emotional abuse in childhood). I used to have family nightmares ALOT in my 20's-30's and always woke up soaked and shivering. The dreams I have now are not always bad, but I still wake up sweaty. I don't know if anyone else has sweating associated with dreaming, but if so, I would love to hear about it. I also started Lyrica last summer and it has been a wonderful help for me. I also have a C-spine impairment, but before Lyrica, I was to the point where I couldn't hold my upper body upright and was bent at the waist with my head hanging down. Needless to say, I spent alot of time lying down on my back and staring at the ceiling. After about 1.5-2 wks of Lyrica, I can stay upright. My shoulders are still rounded, which they have been for years, but I am upright! Not for long though. I have to lean back on some sort of head-rest to sit upright for more than a few minutes. But that's my story. Any similiar experiences?


iliveinpain - Jan 12th, 2010 12:13 PM

Please guys, have your hormone levels checked. It doesn't matter if you're a man or a woman, young or old. Fibro will throw your hormones out of whack. I previously posted in this thread if you want to refer to my original post from September and also read the post by Bailey444. If your doctors won't check out your hormone levels, they don't understand fibro and you need to look elsewhere. Like Bailey444, I still have my fibro pain, unfortunately, but the bio-identical hormones have given me a better quality of life. At least I can sleep at night, and not have to be constantly fanning myself throughout every day of my life, even in below zero temperatures. It's made a huge difference and I urge you all to look into it. This seems to be an extremely common thread with everyone here, so I'm thinking it has got to be "fibro" related, and not necessarily age or "menopause" related. good luck...


dkarssen79 - Jan 12th, 2010 1:30 PM

I have numbness in my hands and feet and dizziness. I have had night sweats in the past(when I was around 28-29 years old). I'm not 30 years old and dont have them anymore, at least not recently. I myself kept thinking ok this has to be something else when I would get new symptoms but the more I've researched and read the forums etc I've learned that pretty much every symptom I have other people have experienced.


axxie - Jan 12th, 2010 9:10 PM

I've had some of it, and thought it was my medication, not sure it's that. Do know, once I had my thyroid function tests done, I was not normal, get the T4 Serum thyroxine 4.6-12 ug/dl and T3 Serum Triiodothyronine 80-180 ng/dl tests done, this is not the same as just having the common tests because from one lab to another the interpretation can be different.

Not normal if you sweat and are cold, you could have other problems.


belle1329 - Jan 13th, 2010 3:16 PM

Yes I too get all your symptoms and everyone dismisses it to Menopause, Im post Menopause, diagnosed with Fibro. Hot then cold, freezing but I think the feel of freezing is like my musles and bones are hurting sooo bad. It feels like Im cold but Im not, because when I cover up too much Im back to sweating again. I feel the burning and the numbness in arms and toes . I get electric body shocks, not just in my head infact I do not get in head often. and few headaches. Mostly Body aches. It's very frustrating!!!! I sweat because I feel hot, but then get cold, but I really dont think its cold I think its pain like the flu/fever andI associate it with feeling cold Does anyone understand what I mean by that. Good too know Im not alone though :)