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| nguerra - Apr 15th, 2005 4:50 AM | |
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I too am only 38 and have been having terrible night sweats for over 2yrs now. Also, I am constantly feeling dizzy and spaced out. My fingers, hands, arms feel numb and the last few day have been feeling burning. My blood tests are fine except for being anemic, but not preimenapausal. I hate the night sweats the most. Night time is very stressfull for me. I wake up soaked! I feel so yuck! Apparently I've had FM for many, many years, but was dx just last June. | |
| fibroprof - Apr 15th, 2005 9:28 AM | |
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Sounds so familiar. I was also corresponding about electric shock headaches. I don't know any better way to describe the feelings I get except to say they are like electric shocks that make me dizzy. The other person said they were painful and nauseating. | |
| Kimberley - Apr 22nd, 2005 1:04 AM | |
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Oh thank god.... I thought i was going nuts. I'm 29 years old and was diagnosed with fibro 11 years ago. I never had night sweats until the last 6 months. Which is the reason I'm up at 1am on a work night. I just had to get up from my sweating/freezing attack and take a shower. Now i'm in sweat pants and a sweat shirt but when i go back to bed and then in like 2 hours i'll be in the same position. It's very frustrating!!!! | |
| fibroprof - Apr 22nd, 2005 6:22 PM | |
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Yes, it is both that I'm freezing cold AND sweating profusely. I also get a "fever" feeling around 4-7PM each day. I have to put on several layers and still shiver.The good side of it, my husband has to cook dinner now because all I can do is lay in bed and try to stay warm. | |
| Kim - Apr 23rd, 2005 4:12 PM | |
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Well I'm pretty sure I've Fibro but still waiting for a diagnosis. I too have been suffering from terrible night sweats. In the day I find I'm either freezing cold or hot and sweaty. | |
| fibroid - Apr 26th, 2005 8:41 PM | |
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Hot/cold at the same time. Sweats/hot flashes. Brain spins and roaring in the ears. Yep, I've got it all, too, as well as too many other symptoms to mention here. But I've been thinking it's drug withdrawal for me. I was dx'd over 20 years ago, have taken every Rx known for fibro with fair to lousy results. Two years ago I allowed myself to become a guinea pig and got on the Swiss merry-go-round with SSRI's and SNRI's. They tell you "Oh, it's a new kind of anti-depressant and since other AD's work for fibro, sometimes, let's give one of these new ones a try." They're not "just another kind of anti-depressant." They are neurotransmitters, essential brain chemicals. Their activities and interactions are poorly understood and I am walking proof that too much of too many of them piled on top of each other is a very bad idea. The combination of too much of too many created symptoms and behavior which led to my being mis-diagnosed with bi-polar disorder, which led to further bad prescribing. I decided to stop taking EVERYTHING about 6 weeks ago, after I had a major melt-down at work and had to quit. I have been supervised by a fibro specialist in stopping everything, but it's been absolute hell. The constant brain spins and roaring ears, the sweats and the hot/cold stuff all started AFTER I began the tapering process and it's not getting better. The further out I get from the last dose of the last drug (there were 14 or 15 once upon a time), the worse the dizziness and sweats get. Cure worse than the disease? You betcha! | |
| fibroprof - May 7th, 2005 9:08 AM | |
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I'm sure you're onto something about the withdrawal and the correlation with your dizziness and sweating--but for those of us who aren't under withdrawal or over prescribed, it seems too coincidental that we are fibro-freezer-sweaters--great new term I made up, huh? | |
| Nancy - May 9th, 2005 11:36 PM | |
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Hi. I do get hot and cold. Sometimes the cold is so bad I shake and have to wrap myself in blankets. There will also be stretches of time when I wake up dizzy and can't walk straight. I walk into walls. It was so bad one time that I ended up vomiting. FM is a terrible collection of body responses and I so wish progess was moving faster on developing some answers to help us. | |
| Zapper - Jun 6th, 2005 10:57 PM | |
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Oh man... why don't doctors know this stuff? When mentioned to my doc I get the usual "uh huh"... "you're 48, that is to be expected." I have been telling my husband that I have some kind of "temperature regulation" problem going on because it seems so difficult for my body to regulate the hot/cold. I am either freezing or sweating! Where is the happy medium? Guess I'm just another fibro-freezer-sweater :) I have to pull off layers and layers, practically down to my bra, repeatedly during the day as I get the sweats... then next thing I'm freezing and looking for my various sweaters that I ditched a few hours before. Been having the night "drenching" for about 3 years... some months worse than others. Those who haven't experienced it don't realize what a really awful experience it is. | |
| Jen - Jun 24th, 2005 10:54 PM | |
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I am so glad I am not the only one. I am 27 and was diagnosed with FM when I was 23. I had night sweats early on and then they disappeared until about 3 months ago. Now it is horrible. I wake up a couple of hours early almost every morning completely soaked. Since my clothes and my sheets are all wet, I can't go back to sleep. Now I am getting very cranky. My doctor has been running a bunch of blood tests, but so far everything is normal. Any solutions? | |
| amberbriseno - Aug 17th, 2007 6:51 PM | |
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it was so nice to here others out there with the same problems, i just wish i heard some cures. I too have the cold sweats but mine is not at night only. i am 34, my hands are cold and like ice cubles,. they are frozen stiff, like they have frost bite, but my head and body are sweating perfusly, right now during the day in my office. it is not freezing in here. i have trouble holding a pen or evenm typing this memo. . then i will get so soaked from the sweating that i will get chilled to the bone and shake crazily. . does anyone else have this during the day??? | |
| BreeZ - Aug 19th, 2007 6:11 PM | |
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i've been suffering with night sweats as well as day sweats and cold flashes.. as i call them. It's just crazy.. i can be on fire and sweaty one min and then the next i'm shivering..In fact i seem to manage being hot and cold at the same time often.. My head gets sweaty and i have cold bumps on my arms.. and if that's not bad enough.. i get so down at times that i can laugh and cry at the very same time.. one minute laughing like crazy and the next sad and and tears running down my face back and forth from one to the other .. Not sure if this is hysteria.. i've never had the nerve to tell the docs about it.. afraid they'll have me committed! | |
| gothceltgirl - Aug 28th, 2007 2:54 PM | |
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I get numbness in my hands and feet, dizziness and night sweats like crazy. I thought I was have early menopause. I'm only 32. It doesn't happen that often lately *knock wood*, but I know how you feel. | |
| ofd123 - Oct 14th, 2007 7:14 AM | |
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I find it's hard not to be manic feeling when you are totally exhausted from lack of sleep. Woke up sweating with heavy aching arms and shoulders yet again. Would rather sit here bleary eyed on computer looking for an answer / solution than even attempt to sleep with such a feeling of impending doom. | |
| lisa1 - Oct 14th, 2007 7:23 PM | |
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I too have all of the above but I find that the worst times of day are late afternoon 4-7 then I fell al little better. then the middle of the night I am up every hour on the hour. It is either pain along with sweating and a feeling of unrest. I also have alot of pain in my rib cage area and my heart beats like crazy. My rheumatolgist tells me this is all normal. I am lucky because she specializes in FM. | |
| Gabbie - Oct 14th, 2007 8:10 PM | |
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I have those symptoms along with all the other stuff. Nothing more "fun" than waking up in sweaty pjs and flipping the pillow around to find a cool spot! Every so often I do have the dizziness that comes with nausea and seems to come out of nowhere. Whether sitting or standing when it hits, I find that taking slow, deep breaths and keep very still helps that feeling to pass. My fingers sometimes go numb especially when my hands are cold and I think that's another of the fibro things. As you said, people sometimes tell you that your symptoms are probably something else. I think people don't always know how to respond to this "illness" because we really don't look "ill". Don't feel dismissed, I think it's because they just don't quite know what to say. When we are feeling lousy from a known thing like a cold, sore throat, etc., people know how we feel and say "hope you get better soon" and tell us to have chicken soup or hot tea and lemon. With fibro, it's such a strange thing, I really think they are at a loss for words because they don't really get it, and that's why what they say comes out sounding either dumb or non-caring. So, don't let that get to you. | |
| maxinemnoel - Jul 12th, 2009 1:56 PM | |
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Hello I am a cancer survivor for the 4th time and lost both breast. for the last 2 years i have been having some severe night sweats that i wake up soaked and i am real dizzy and feel like i never slept that night at all.im bitchy and my temper is really short.sometimes i get so frustrated i cry for hours and to top it off my boyfriend of 4 years thinks its all in my head.we fight over the air conditioner all the time,im miseriable.what the heck is this crap????? | |
| Sonja44 - Jul 12th, 2009 5:02 PM | |
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Yep, dizzy, night sweats...I get tingling in my hands when I take deep breathes. ? Have no idea why. | |
| nuserrino - Sep 21st, 2009 12:36 AM | |
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standing in 90 degree weather at a large outdoor festival just yesterday... beautiful sky, band playing decent music.. much to my dismay the group of friends that joined seemed more entertained by the fact that i had goosebumps ALL up and down my arms. suppose it could have been worse, they could've opted to comment on the sweat that was pouring from my face! while i've had the FIB (snub to the many drs still out there that contest the reality of fibromyalgia) for 12 yrs now, i've only recently began experiencing the sweat ice cube thing more frequently. although i haven't received any treatment possiblities for the phenomena i am all ears if anyone can share? | |
| iliveinpain - Sep 21st, 2009 1:13 PM | |
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I was diagnosed with fibro 10 years ago, and was suffering for many years before that. I'm 55 and I know for certain that I am in menopause. However, if you read up on what Dr. Jacob Teitelbaum says on the internet, he believes there is a very strong connection between hormone fluctuations and fibro sufferers. I was getting hot/cold/sweats every hour or so around the clock until I went on a hormone patch about 6 weeks ago. This has regulated all of that for me and it's made a world of difference. Menopause or not, maybe we all need to get our hormone levels checked, as fibro does throw that out of whack, along with everything else. Hope this helps someone out there! | |
| pfiinch - Sep 21st, 2009 1:52 PM | |
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My man cannot beleive how much i sweat he wipes my lips off because of the constant sweat.I never use to sweat and now add the cold it is totally crazy. I do have to take hrt treatment evey other month.That helps alittle and i enjoy that time frame. | |
| Bailey444 - Oct 22nd, 2009 1:49 AM | |
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Hello, | |
| kassiegal - Oct 26th, 2009 8:22 PM | |
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Hi I am new here | |
| Kerrie - Oct 27th, 2009 3:50 AM | |
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I have had bad dizziness for the last couple of days and getting the facial numbness which is just awful!! Luckilyi havent got the night sweats yet although I am sure its probably on the way! | |
| Jaynie774 - Oct 27th, 2009 10:07 PM | |
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I was recently diagnosed about a month ago, but have had flare ups without knowing that it was FMS for 6 to 10 years. I have had the dizzines since July on a daily basis and it is very disruptive. I have read about blood pressure dropping when you go from sitting to standing so I am going to bring it up to my Rhuemy when I see him on Monday. I have only experience the night sweats for a couple night and then they subsided.... Know about that dizzy feeling though, and I hope they can get it under control. Peace to you all & take Care of yourselves. | |
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