Why do my symptoms constantly change?
BigJohnston - Jul 2nd, 2009 1:21 PM
[ Original Post ]

I have been sick for almost 10 years now and I am still getting new symptoms. I finally find a way to get a little reief from one problem and then I have something completely new show up and make my life miserable. I will have one month of debilitating pain that brings me to my knees and then it goes away and I have terrible anxiety and I can't even leave the house and that goes away and then the fatigue and fibro fog set in and I can't get off of the couch for weeks. I can't tell you how many times in the last many years I thought there is no way I can go on if it gets any worse and it does. Sometimes I think that if there ever does come a day that there is a real cure for fibro the people who have lived through it will be the toughest people on the planet. Living through a day with fibro is like training for the olympics every day of your life.

Anyways I just thought I would see if I am the only one that has constantly changing symptoms. I am sure all of our doctors must think we a hypocondriacs because it is always something different. Thanks Tom Johnston

Comment


 

RavenFax - Jul 2nd, 2009 2:49 PM

No you are diffenately not alone. I grew up with a true hypocondriac for a mother and I rarely go to the doctor until i am in so much pain or illness i can barely move. That may be why I went so long undiagnosed. for the last 4 yrs I have had just one thing after another. just about the time i get one cleared up another hits and no real releif in between. That when I was diagnosed it all seemed to fit and fall together. If you have a good fibro friendly doctor he will not think you are a hypocondriac, there are so many different symptoms and attached illnesses that go with fibro never be afraid to ask your doctor about something

Raven


Fantod - Jul 2nd, 2009 8:57 PM

Tom - I can certainly appreciate your comments on the variable nature of fibromyalgia (FMS). It is impossible to plan anything. Right now, I am going through one of the "sleep - who needs that" phases. God knows, what will be next.

I think you are dead right on being the toughest people on the planet. It takes a lot of guts and more patience than I ever kenw I had to handle my FMS "perks."

Just remember, we are all in this together. You are not alone. Feel free to join our discussions or just rant any old time. Take care.




solanadelfina - Jul 2nd, 2009 9:14 PM

Definitely it's normal for things to fluctuate. My first symptom to get under control was the pain, then a few months later my hypoglycemia kicked in, then the dizziness was a major factor, and now I'm working on the non-pregnancy morning nausea.

The ones who aren't informed might think that way, but there are some good ones who know about fibro and are willing to listen to us.

I also agree on us being super-tough for making our lives with this in tow and dream of the day that they have a real cure instead of all these scam artists trying to make a buck off of us. Considering how much medicine has changed in the past few years gives me a lot of hope. :)Who knows, with our mental and physical toughness and shrewd ability to prioritize and say "no", we'd be excellent in leadership positions.