What Is Happening To Me?
Valkurja - Sep 2nd, 2005 1:30 PM
[ Original Post ]

As I sit here, having fitfully slept for 14 hours, I am in such pain that breathing hurts. I am hunched over my keyboard as my ribs and my back have a dull and constant ache. My left eye twitches, my fingers and feet feel swollen and uncoordinated. The soles of my feet burn and I have unexplained blistering (I wear only old, worn, comfortable Birkenstocks). This has gone on to some degree for years, but lately has become unbearable. I suffer hypothyroidism but I do not feel that it is being adequately treated and is still not under control. I have been doing my own research which has led me here. I am not crazy, but I hurt so bad and I am so scared. I am afraid to go to the hospital. Of course I have many other symptoms as well, but I don't know if I am more afraid of the potential diagnosis of FM, or of being wrong and still without answers as to why I feel this way. I am so lost and I feel so alone. Sometimes I swear it feels like I am dying. I have much to live for. Can anyone shed some light on these experiences?

Comment


 

SHEILA - Jul 4th, 2005 6:51 AM

OH MY FRIEND YOU ARE NOT ALONE YOU HAVE NO IDEA HOW MANY OF US ARE SUFFERING FROM THIS AWFUL THING AND ITS ABOUT TIME SOMEONE DID SOMETHING ABOUT IT.....I CRY WHEN IM FEELING PAIN ITS A RELEASE FOR ME I STAND OUT ON MY BALCONY AND SHOUT AND SCREAM AT TIMES NEIGHBOURS THINK IM NUTS LIKE BUT HELL WHO CARES MAKES ME FEEL BETTER!!!!
I AM SUFFERING WITH THE CHEST AND RIB THING AND SHORTNESS OF BREATHE TOO AT THIS MOMENT AND YES I WORRY ALOT THINKING ITS SOMETHING ELSE WORSE BUT ITS BEEN GOING ON TO LONG AND IF ANYTHING WAS GOING TO HAPPEN IM SURE IT WOULD HAVE DONE BY NOW.SO I SEEK PEACE IN THAT.GET YOURSELF TO THE DOCTORS TELL THEM HOW YOU FEEL AND YOUR SYMPTOMS BUT I THINK YOU HAVE DIAGNOSED YOURSELF.


Lisa - Jul 13th, 2005 4:23 AM

I too am having the same pains at the moment, the chest rib pain, shortness of breath, its scary. And so much pain all over it does scare you into thinking maybe you have cancer or something terminal. You need to get referred to a rheumatologist.




debs U.K - Jul 13th, 2005 7:43 AM

hi there
dont be afraid of the FM diagnosis sounds silly but i welcomed it now i can say i have this funny illness that makes me feel as i do sometimes and when i walk like a old lady instead of my 46yr old body its easier to tell work mates that its this. before id say oh i dont know whats wrong just feel like crap, then you'd get the funny look as if your lazy or crazy. now thers are more understanding of my sheer tiredness and its easier on me. although many suffer with weird and wonderful symptoms you are not alone and if was'nt for this site id go mad as there is no real help here in the U.K as my rheumatologist told me to go away and get on with my life and feel better!!!!!!! YE RIGHT like as if thats going to make it all easier silly man only rubbed up my leg and said no you dont have FM so i had to go back to my doctor and he diagnosed it. hence now rely on myself and the help of this site to understand why i have symptoms such as the chest pain which is on the left and the numb right arm and leg, he just shrigged his shoulders but at the time i thought i was having heart problems and the latter was a stroke. please dont feel alone we all deal with this in different ways and some days you feel almost normal even if its only for a short while :-)


Jules UK - Aug 2nd, 2005 9:33 AM

I have had the rib pain and shortness of breath and it totally freaked me out until I realised there were others out there with the same thing. For me it lasts a few days or so and then kind of vanishes! My doctor looked at me as tho i was mad when i tried to explain symptoms, The NHS doesn't really do fibromyalgia so isn't geared up for it. Anyone got any info on how to treat it?


Tonya IN - Aug 2nd, 2005 3:33 PM

I have been suffering in Jan. 2004 with strange symptoms. I have been to 10 Dr's so far and just got diag. with FMS. The pain that everyone is speaking about in their chest and ribs, if there is no rash, is called Tietze's Syndrome. It is the swelling of the sternum and the ribs, with lots of pain. I myself have suffered with this for months. I was finally put on a higher dose of Prednisone 60 mgs to start with and then the mgs go down every 3 days for 2 weeks. It has been 6 days and it is working. My pain felt as if I had a REALLY BAD pulled muscle in my chest and constricted my breathing. It is a symptom that goes along with FMS. The Prednisone hasn't taken away all my pain from FMS but it has helped with the chest. I hope that this helps. Good luck!!


Me Too - Aug 15th, 2005 10:54 PM

According to my last Dr. visit, my blood work appeared to be with-in-normal limits, so I have considered myself ‘crazy’ without some medical diagnosis to explain how I could feel so very depressed. And just as tired. I have felt as if my physical body was literally in the process of dying. I can’t count the times a day I find myself ‘sighing’ because I’ll be feeling so tired and just one more breath took such great effort. It’s exhausting. I can barely stand something as light as my own clothing to touch me in a particular area of my body right now. Other times, I can ‘tolerate’ the touch, but I’m aware of the “nagging pain” that is relentless. It is there twenty-four hours a day, seven days a week. Other areas of my body are most tender to the touch as well. I can’t remember the last time I slept six consecutive hours. I can’t remember sleeping even three for the past month or so. My short term memory has made me paranoid. I find it hard to concentrate and things I used to find simple to do have become very complex. I can’t even keep my mind sane enough to figure out how to see my Doctor again being that I no longer have health insurance. Stress…. So much stress. Like dirty laundry piled high on the floor. Disgusting to “sort through” so you let it pile higher and higher until one day you are lost somewhere in the stench of it all. And this stress has brought to me Depression with such severe anxiety that I’ve wondered if I’d slit my wrist before daybreak. But now…. I have found a possible diagnosis….. Fibromyalgia….. I have to learn more about this disorder. Or is it a disease? I have to beat it. Just knowing what it is has given me power. It’s given me hope that I can get better. I need to see my Doctor and determine for sure if this is what I have been suffering from for so long a time now. Thank you for the well documented infomation at this website. August 15, 2005


tonyab1838 - Aug 16th, 2005 1:32 AM

I feel for you and unfortunately don't have many answers. I actually got mad at my Dr., before I got diagnosed, because I had blood work done and she said that everything was normal. I told her that I know I am not "crazy" and what I feel and see is real. She told me to calm down and she did some tests on me to determine that it was FMS. It is a horrible feeling not knowing what is wrong with you and going from Dr. to Dr., without knowing. I went to 10 myself and I am sure that there are people that have done the same or more. You are not in this alone and luckily for people like us there is this discussion site. Keep going, I know it feels like it isn't worth it but it is. A Rhumetologist is a great way to go also. Take care and God bless!


Leo - Sep 2nd, 2005 1:30 PM

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