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luvdoggiez - Feb 12th, 2005 11:47 AM
[ Original Post ]

Hi there,
I was diagnosed about 4 years ago. I haven't done much in the way of treatment other than the Paxil I take and occasional massage therapy. My question is, I live in northern California and wondered if anyone knows of a good fibromyalgia doctor or clinc in the area. I love my doctor but I feel like he is always guessing when it comes to the disease. Thanks!

Comment


 

Maggie - Jan 7th, 2005 8:23 PM

Politely put to him or her that there has been a lot of research done lately and its all on the net, but you don't understand it because all the medical research is in medical jargon. (you must know the ones I mean) write them down for him and say when you have a moment of your precious time to spare I would appreciate you trying to make some sense of this for me, because I am trying my best to help myself.

Remember its not what you say, its the way you say it. Good luck and if your brave enough to say it let us know what they say.


intheknow - Feb 12th, 2005 11:47 AM

Did you know your insurance company dictates the tests you get and the answers your doctor dismisses as Fibromyalgia? I've been going through this crap now for over 7 years, and continue to worsen. Lung disease, thyroid disease, nodules, fevers, liver and kidney disease, and the list goes on... The fact that doctors don't even examine or even touch me anymore and keep dismissing my problems as "fibromyalgia" made me realize that there is a conspiracy going on. Go do an internet search on "Fibromyala dismissive" and read up on the controversy. Here's what I've had to do in order to have a physician finally admit that fibromyalgia is merely passive to satisfy the patient and keep the insurance company from paying to allow a correct diagnosis and treat you effetively. You really need to research your symptoms thoroughly. Print off the facts you find, ask for specific testing and most important of all...BRING A WITNESS TO YOUR DOCTOR APPOINTMENTS. You must drill your doctor with your witness present why they don't test for other possibilities based on the facts. Be sure and request copies of your tests so you have the information you need to keep researching the possibilities. Otherwise...you're in for a rough future, and paying for the insurance company's profitability through your suffering. Best of luck!