Could it be fibromyalgia or were the docs right with RSI?
PianoPlayer - Oct 28th, 2009 7:51 PM
[ Original Post ]

About two and a half years ago I started to get pain in my right wrist, the pain progressively got worse and extended up to my arm into my shoulder and then my left wrist started to hurt, same thing happened, pain in my hand, elbow, and shoulder. Then my neck started to hurt and my upper back and now my lower back has started to hurt. All the docs that I have seen have said RSI and tell me to rest. I do but there is sometimes pain when I don't do anything. The pain isn’t always constant it is worse after I do something like typing or playing an instrument, and I can only play for five minutes before the pain starts. I also get pain after cooking, cleaning and then other times I can be lying in bed and my back is incredibly painful.

I have seen four different specialists and they have said RSI because they cannot find anything wrong. I have had multiple blood tests and nothing seems to come back wrong and I have also had X-rays and MRI’s on my wrists and there is also nothing wrong on them, no inflammation of tendons, muscles, ect.

I am really at my wits end I am in school and I cannot write or type for long periods of time without pain and I have stopped playing instruments and doing sport because of it. Some people have said that it is all in my head which gets so frustrating, why would I quit something I love if it was all in my head?

I sometimes get weakness in my arms and I get tired very easily and everything feels worse when on my period.

This has probably turned into a lot of rambling so I will stop now.


Comment


 

Kiwigirl - Oct 28th, 2009 10:31 PM

Hi PianoPlayer

I could have written your post myself, (well apart from the piano playing) I was also told I had RSI or OOS as they seem to call it. It got progressively worse over the years, like you all tests came back negative.
It took me 15 years to get a firm diagnosis of FMS. The doctors are only too keen to pack you out the door again with some a painkillers. One doctor told me that all I needed was to loose weight and exercise more!! Well I am not overweight and was not unfit at the time. You need to be quite insistent with your Doctor to get somewhere. I found that bursting into tears in front of my doctor spurred him into action and I was then referred into a Rheumatologist, where he finally diagnosed FMS.
After finding this site and reading the symptons everything I had suffered from over the years finally made sense. If only I had known sooner.

Please take care and good luck with getting a firm diagnosis.