IS THIS TRUE?
TERESA - Aug 23rd, 2006 11:11 AM
[ Original Post ]

I saw my doctor yesterday. He told me that he didnt believe I had FMS. He has been treating me for post herpatic neuralgia. I dont believe I have PHN. Anyway he said he wanted to start taking me off my pain meds. He said that most people with FMS have pain wether they are taking narcotics or not. If I continue to take narcotics I will become addicted. I am taking Vicodin 7.5 three times a day and Lycra 75 four times a day. Im still in a lot of pain but at least I am able to function. This scares me! I dont want to be an addict but I dont want to be in pain all the time either. I need some feed back!


Comment


 

Lisa - May 27th, 2006 1:36 PM

I hope my answer goes thru.....if not email me at:spiderhouse7499@sbcglobal.net I have a lot of information reageding addiction versus "tolerance", and no you should not taken off your meds if they give u some quality of life.


Lisa Simon - May 27th, 2006 1:39 PM

What I would be more concerned about it the Acetemetaphin(tylenol) that is part of the make up of Vicodin. That can ruin your liver. Perhaps a "pure drug" like Oxycodone, Dilaudid, even methadone or durgesic patches may work better for you. The key is finding a doctor who will listen to you. Doctors don't know everything, and sometimes we tend to try to go along with the program as he dictates, but it may not be in your best interest, and not the proper treatment for you. If I was you I would be scared too! It is a blessing when a medication can mean the difference between being bed-ridden, and being able to take a shower and maybe cook a meal for yourself, or plain just have a halfway decent day!
FMS is tricky, and a lot of doctors are so mis-informed about it, even though there are so many people out there with it. If you would like, Email me and maybe I can help you with some strategies on how to get the pain control that you need.
I can be reached at: spiderhouse7499@sbcglobal.net
Hope to hear from you soon, and good luck! :)


Teresa - Jun 1st, 2006 11:14 PM

Maybe you can pull yourself out of the pain. We did. www.FibroFix.com is all free - tells how we are doing it. Mostly generic prescription meds, or over the counter, and tricks and tips. It's the combination that makes it all work.


TERESA - Jul 27th, 2006 8:40 AM

I have been too that sight. I think it's a whole lot of BS! I saw a rheumatologist & am now taking meds that are helping. At least my doctor seems to be more understanding and that helps a lot!



colleen - Aug 19th, 2006 11:12 AM

Hi Teresa,I too was on vicodin and it really did not help the pain so much but did give me some energy at times.also it is a addictive drug.Now I am taking percocet 10 for pain.along with amitripyline,halcion and feldene at night for sleep which seems to work for me.I also take a muscle relaxer called methocarbamol.When I have bad flare ups ,which usally involve a bad migrane with vomiting[I hate that word] and can last for days,I go to my Dr.and he gives me a shot he calls a cocktail and sometimes an iv drip cause I get so dehydrated.I think the cocktail he gives me is valium,demerol,and something else that starts with "c".Anyway I feel so much better after I see him.I know there is a percocet type drug that does not contain all the asprin.Maybe you could ask him about that.If he does not listen to you and not helping you I would find another doctor who cares about you and what you are telling him.
Take care and good health to you...colleen


colleen - Aug 19th, 2006 11:37 AM

Teresa,I meant to tell you also my doctor is a former pharmicist and is also the coroner in the city where his office is.He is very knowledgable about fibro and has read many books about it.I trust him more than any other doctor I have been to.


Jessica - Aug 19th, 2006 11:32 PM

I am trying to find a good doctor around green bay wi, because that is where i live. I was diagnosed with fibro about 7 years ago, I am now 27 and have it so bad I will sometimes be in bed for two days. The only thing that seems to help is a narcotic and I am trying to find a doctor around here that understands that. Colleen, you are truly lucky to find someone who helps you like they do. Where are you from?


TERESA - Aug 20th, 2006 11:09 AM

Since I wrote this back in May, I have seen a rheumatologist. He diagnosised me with FMS & lupus. My GP seems to have had a change of heart (I think he thought I was faking just to get DRUGS). In any case, he know has me on a drug regiment that is working & it does include narcotics! HE IS NOW LISTENING TO ME! That helps me so much! I've also been doing a lot of research on addiction. There are doctors out there that believe pain is it's own antidote to addiction. In other words if you are taking narcotics for true pain, you will not become addicted. When you start taking narcotics for the feelings of euphoria and haven't any pain, than you run the risk of addiction. Colleen, I'm glad you have found a doctor that will listen to you. I think the drug you are talking about is compazine. Lisa, I am now taking a long lasting pure drug with Vicodin for break through pain.Oxycotin is just way too expensive!!!!! I am one of the many American without insurance! Thanks to everyone out there that is listen.


colleen - Aug 23rd, 2006 11:11 AM

Hi Teresa,I am from New Orleans,I also do not have insurance.I was trying to go through the system at Charity hospital here and then Katrina hit us.So when I came back from evacuation in much much pain from the stress of the hurricane, there was no more hospital or records so I was back at square one.I actually heard of my dr. through a friend.I thank God every day that I found him,he is so good and knows I don't have insurance so he doesn't charge me a whole bunch of money.And never perscribes anything I can't afford.I just love him.I am very happy that your doctor is listening to you,it is so crucial to our well being that our dr's understand.I tell my dr. every little thing and he always takes the time to explain things to me.I had never heard of fibro and didn't understand all the pain I was having for years and years and was glad to have finally get a name to this.I am 50 and I have had pain for as long as I can remember,now I have more and more better days.I have a 3 year old grandson and it was really killing me that I could not pick him up and play on the floor and stuff.Now I can and that is a true blessing in itself.He is so sweet that he will ask me if my arms hurt before I pick him up.I say no they don't then he will jump into my arms.Now if I could only make my husband understand all would be better.It's a shame a 3 year old cares more than a 41 year old man.I am starting not even care about him anymore,I have to worry about me.And my grandson is the only constant in my life,I live for him and my daughter.Well I didn't mean to rattle on,sorry.Good luck to you and I hope you find some good days now that you have your doctor on your side.Good luck....Colleen


ahouck - Jul 8th, 2007 12:29 AM

You need a new doctor, one that understands that fibro is real and will be willing to help you no matter what you need. I know what it is like to have a Dr. who thinks you are full of crap. He or she doesn't sdeserve your money or your time. You have to weight the pain vs. the effects of drugs.


lightspirit - Aug 7th, 2007 9:55 AM

Get another doctor, or better still, a pain specialist. This is rubbish he is telling you. The last thing you need is to have your pain meds taken from you my friend! You are only on a small dose anyway. I take 160mg of oxycontin per day in doses of 40mg six hourly, don't let then fool you that they last for 12 hours, ask anyone, they just do not! Yes, you will become dependent, and tolerant which is a nice way of saying 'addicted'. I am addicted. I also have quality of life. I got off all my pain meds last year and I had so much pain I did not want to live so I went back on it all, and this was all started by a doctor like the one you are seeing. So, as I said, you want feedback - get a new doctor who truly understands chronic pain and fibromyalgia, which I have had for over 25 years now from a ruptured silicone breast implant so don't get those and if you already have them, take them out and get an uplift instead.
Write me if you like, I am happy to help.
Lightspirit


Misti47 - Jul 28th, 2009 2:36 PM

YOU'RE NOT AN ADDICT! It is pain medication that hedlps you. Find a better doctor or pain management and get on hydrocodone 10/500 and soma 325 mg 3-4 times a day. It will help you. IF that doesnt help, get something stronger. Never let those IGNORANT doctors tell you that you're an addict......you're not.....you're in pain and need pain relief.