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Q&A | Fibromyalgia Support - Family Members | family members understanding fibromyalgia

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Name: mmkmmk_1@yahoo Title of Question: family members understanding fibromyalgia

Question: is there a printout i could give family members to understand fibromyalgia ?

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Name: Shane | Date: January 7, 2005, 15:59

Answer: You could print out pages on the website to help the family understand fibromyalgia =

Name: Jan | Date: April 18, 2005, 17:00

Answer: Just do an online search, there is tons of info out there. Before you print anything out thou, I suggest you edit it, as explanations of Fibro can get very, very wordy, and not many ppl will want to read it all =

Name: Rose | Date: October 14, 2005, 23:23

Answer: I have this with my son... he thinks/ has thought... that all I need to do is just "rest up"... and I will be able to work again next year...I told him... I don't think its going to happen quite like that... he has a friend who has fibro... and she has been a real help... trying to explain to him... we can support each other... and our friends families, by stepping up to the plate in this way... I don't know what is going to happen...but I have to tell you... the sun will come up tomorrow... on you... and your loved one with fibro... take it one day at a time. =

Name: mona | Date: November 12, 2005, 16:14

Answer: look in the general file and see the letter to normals.. it is a great letter and might help you with family and friends mona =

Name: honora2929 | Date: September 23, 2006, 12:43

Answer: I think my children are so used to me being unwell ,that they dont seem to care at all if i try calmly to communicate with them about they just faze over and dont listen .They are good kids in other ways . =

Name: colleen steele | Date: November 1, 2006, 19:54

Answer: Hi mmkmmk ...I can completey understand what you mean.It is most frustrating trying to explain.I can't get my husband to read one single thing I have given him nor does he listen to me about it either.He just doesn't care.For others though , one way I found that seems to work for the most part is that I tell people to imagine running as fast as they can in about 3-4 feet of water for hours and hours. And that is not to mention all the other things that go along with fibro. [i.e.headacnes,fatigue,sleeplessness,etc,etc] Or for them to recall the last time they had a real bad flu where every fiber of there being was screaming in pain. Then let them know we feel like that 24-7. I usually can get an "oh !, I had no idea" .If they don't ask for more information then I feel they weren't intrested in the first place. I don't waste my breath or my energy.......Good Luck & Good Health..........Colleen =

Name: TERESA | Date: November 4, 2006, 16:22

Answer: Honora & Colleen both of you're justifed in the way you feel, but if you can think back to a time when you were not in sooo much pain, can you remember the co-worker who was always sick, calling in sick or complaining of pain when they WERE working? I can & I remember thinking they were just trying to get out of work (making more for me to do)! Today I see things a bit differently. I think your husband & children are not indifferent, but maybe FRIGHTEN! Avoiding the problem, like out of sight out of mind. Especially the adults in our lives! For them I think if they don't read about it, IT DOESN'T EXISIST!! =

Name: carm | Date: November 4, 2006, 20:54

Answer: Go to FM web sites look up articles and such you should be about to print them =

Name: fibromom05 | Date: May 22, 2007, 1:05

Answer: You know, I've tried to say things to even my own mother and she changes the subject. I've sent her multiple links to learn about it and she's never brought it up so I know she didnt' read any of it. It makes me sad and then reminds me how selfish she can be :( =