Any moms out there with children with FM?
llcsmom - Jun 3rd, 2008 2:40 PM
[ Original Post ]

It's been awhile since I've checked in here. I remember seeing a few posts either by teenagers or by moms with children with FM.

I am going through a phase where I am getting exhausted helping my daughter with FM. she is 11. She is having a bout of nausea again (which I guess can be a "normal" problem with FM),so on top of the pain and fatigue--she has nausea!! Arrgghhh! This happened to her in November, too. Then the nausea just seemed to let up after a few weeks. Does anyone else have nausea like this???

I feel so bad for her, yet, I hate that she is misssing so much school. She makes it for 1/2 days most of the week. Thank goodness summer vacation is almost here. We have accomodations set up for her at school, but some of her teachers are still a bit hard on her about missing work, etc. We will have a more organized plan for school next year, at least.
Anyways, just venting and seeing if anyone replies that has a child or is a teen themselves, and how you are coping with all of this?
Thanks,
Dawn

Comment


 

momtofour - Jun 7th, 2008 12:29 AM

Dawn, what you described sounds like my 14 year old daughter. She missed 43 days of school this past year. I get so frustrated with the endless things that go wrong with her but try to support her and not show her my frustration. She rarely complains about anything and has always been very tough so when she does complain I take it very seriously. She just started having chest pains with shortness of breath too. I just found on this site that that can be from the fibro as well. She has had so many stomach aches, ear aches, headaches, body aches plus fatigue, irritabilty, menstrual problems, inability to walk for very long (around the store is too much). I feel terrible for her! But, I feel that God is allowing this in her life for a reason only He knows right now, that is my comfort and I tell her that as well. I hope to hear back from you! Diana


llcsmom - Jun 11th, 2008 11:56 AM

Hi Diana,
My daughter tends to let it all hang out with me--in terms of complaining about the pain and everything else associated with the fibro. She tends to put on a happier face with other people. (Which is fine--I'd rather have her grumpy and whining with me than with some of the other people in her life) You mentioned menstrual problems...just today is the start of another period and she has so much cramping with it! She was starting to feel alot of nausea with it too. 600mg of ibuprofen did nothing for the pain (she is adult sized at 11 so this is a normal dose for her) Today is the last day of school so she went, but was in alot of pain with the cramping. Does your daughter have that or something else with her periods? Is she in middle school or high school? What kind of doctors/medical people do you go to?
Lauren goes to a pediatric pain clinic, regular pediatricain, sometimes a physical therapist, a counselor, and sometimes a massage therapist.
Do you have an IEP or a 504 plan set up for her at school? I am trying to avoid having Lauren home bound--because I feel the socialization at school is important, so she has "accomodations" at school--it is almost a 504 plan, but she has missed alot of class time--lectures, discussions, etc in one or 2 classes--because she tends to go in (which is approved) later in the mornings-it is way to hard for her to be there and alert at 7:25 am most of the time! She usually sleeps about 10 hours at least on a good day and much more than that on a bad day (has slept up to 18-20 hours a few days this year). How about your daughter--you mentioned fatigue, too?
pcrandall@wi.rr.com
Thanks for your note. I hope the summer brings less pain to your house!
Dawn